What happened to the original children from Lyme, Connecticut???

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stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 5/14/2009 4:15 PM (GMT -6)   
I wass just trying to find information about the children that got this whole LD thing going. Does anyone know what their situations are? Please let me know. thanks, amey

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 5/14/2009 4:46 PM (GMT -6)   
I was trying also after reading your post; nothing so far, also nothing in German and nothing in the online cataloque of the local universities (they have a lot about lyme though). It would be interesting to know; maybe a local support group could find out more?? greetings, dorit

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 5/14/2009 4:53 PM (GMT -6)   
thanks Dorit.

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 5/14/2009 8:43 PM (GMT -6)   
That is a very interesting question.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 5/14/2009 8:51 PM (GMT -6)   
I REALLY want to know how these people were treated and how they feel now. This information would answer a lot of questions that we have, or atleast I have.

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 5/15/2009 4:47 PM (GMT -6)   
I will try to dig deeper into this; I see a friend at the end of May who works in an archive section related to medical history; she maybe knows where to look for this. I am also very very curious.
I sent an email to our national Lyme association asking if they know sth about those children, they seem to have a lot archived too. I will let you know their answer. There should be something!

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 5/15/2009 7:19 PM (GMT -6)   
Wow. thank you so much. Let me know if you find out. amey

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 5/17/2009 2:09 PM (GMT -6)   
great question!
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 5/17/2009 5:26 PM (GMT -6)   
They are all actually "alien abductees". They have fulfilled their "mission" and are probably currrently living normal lives.

OK - I just made that up!


Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs

Post Edited (JELAINEP) : 5/17/2009 5:43:37 PM (GMT-6)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/17/2009 5:47 PM (GMT -6)   
Thats hilarious! Or hairless as my 4 year old stepson would say.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 5/18/2009 10:40 AM (GMT -6)   
If you find any info please re-post with a new title.
Thanks, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 6/1/2009 10:51 AM (GMT -6)   
Hi all, here is a quick update on the topic: I got an answer to my original email from the national (german) lymeboard saying that one of the women who had got Lyme has two daughers who have already become doctors themselves. They have been interviewed by the lady who sent me this answer. The interview is printed in one of the Lymeboard`s magazines. I am not at home this week but as soon as I am back and had some time to get a copy and read through it, I will give you further details. Greetings to all and have a good week!! dorit

yaniv_naced
Regular Member


Date Joined Sep 2007
Total Posts : 134
   Posted 6/2/2009 8:59 PM (GMT -6)   
I recall reading a post about it a couple of years ago (not sure where).
The poster was walking their dog in the woods around New Haven or Lyme and struck up a conversation with a walker on the trail.
During the conversation they started talking about the illness and the lady mentioned that that she was one of the kids in the original Lyme study.
I think that woman was in good health and leading a productive life but still tested positive for Lyme. Apparently doctors were still offering her abx but she refused because she felt mostly fine. The only problem she had was that everytime she had the cold or flu in college she would be sick more than the average person.
She did though have concerns about eventually trying to get pregnant since the blood tests are still positive.
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