Hello Friends, Being Treated and Have a few Questions. New to This.

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Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 5/15/2009 4:18 PM (GMT -6)   
Hello Friends,
  I tested positive for babesia in a fight with My Nero of 9 years that My Multiple Sclerosis was real. I was shocked and well I've been on a long journey.
I was blessed enough to see one of the top ten doctors you have listed on here and He without question said I have Masters. I drove the long ride home trying to swallow this. No more MS after all these years.
   So I've only been on my meds about 4 weeks, I'm Having some strange things happen to my body! lol! The one thing I cant figure out is, I'm so tired! I mean sleep the whole night threw now!! Before I woke up every 2 hrs. I'm not complaining But during the day, I'm good for 3 hrs and then just pass out sleeping.
My vertigo is still around and its called my spells now...its not fun cant drive or stand or walk from them.
The neat things that have changed are...I had a growth Or something in my leg that was painful and had been there about 3 years. ITS GONE!! I just called to get a mri of it and realized its gone!!! My shoulders are down and my fingers are getting thin again! I'm using antibiotic eye drops and I SEE NO MORE black spots!
I have to admit the diet and pills are pretty tough I can barley remember the day!
So does anyone know the On set of extreme sleep? Its just so strange as Before I would just lay there in pain...wake up every 2 hours..always like a zombie. Now its like my body is working saying..NO YOU LAY DOWN.....My family I can tell is not happy with all this sleeping...But I keep explaining I have no clue why this is happening...And hey after 20 years of no sleep You think they would cut me a break lol.
I just wanted to say I'm so blessed to have found this group!
God bless
Kimmie
Thanks in advance for any help on the sleeping!!!
PS` I have a million questions But, I will wait as Im so confused Its tuff to think straight.
 

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 5/15/2009 4:36 PM (GMT -6)   
Fatigue can be a side-effect of antibiotics. I experienced this when I was on Cipro - seems I could fall asleep anywhere, any time.

Fatigue can also be a symptom of a herx (die-off) reaction. Detoxing should help this.

Fatigue can also be from the body telling you it is time to sleep so it can repair damage.

Fatigue is a symptom of Lyme/Masters and many of the coinfections.

And it may be a combination of the above.

I hope this helps - take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 5/15/2009 8:09 PM (GMT -6)   
Don't fight it and just let your body rest/sleep when it needs to. You're are exhausted because your body is fighting so hard to beat the infection. At least that's what my llmd told me and it definitely makes sense. Hang in there and good luck!

Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 5/16/2009 1:17 PM (GMT -6)   

Thanks so much for your input and support! Its just so strange as all these years and I never was able to sleep..

As for the questions from Lymkiller.

Yes I have always had problems with my memory. I have had 5 western blots done ONLY this year. I tested Posotive for Babesia.

The only reason I took the western Blot is I moved from another state after being daignosed and living with Multiple sclerosis for 9 years. I had a new nero who is a idiot and after years of ABC injections for MS he decides  he felt I only had a Little MS. He said He didnt feel like it was ms but didnt know what it could be. So I searched out every test I could find to prove I did have MS.

Funny, God Showed me the truth....Now I know.... God has blessed me with a wonderful LLMD that all of you help me find...Im tierd and a lil worried but in the end Im really so full of hope! I know this is not easy and I have a long journey...But, I know the truth!

I just want to say thanks so much again for your help and comments Im new and so confussed about all the meds and food....

God Bless You


judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 5/18/2009 8:03 AM (GMT -6)   
I am so happy you found what is wrong with you!Just sleep so your body can repair, you must catch up with 20 years of not sleeping, the meds can make you tired, I had diabetes that came with Lyme Disease and as soon as I went on a low carb diet I could function after dinner again and depression was gone, let us know how you are doing
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