do low lymphocytes coincice with low cd-57

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veromia333
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Date Joined Mar 2009
Total Posts : 655
   Posted 5/20/2009 1:18 PM (GMT -6)   
I have been looking at my blood tests they show low very low lymphocites among other things. I would like to have the cd-57 tested. do you guys think llow lymphocites coincides w low cd-57.
I also have high neutrophil band and seg.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Lala429
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 5/20/2009 1:22 PM (GMT -6)   
My CD-57 was a 19, retested 2 months later was a 16 - now I'm on IV Rocephin and 400mg daily oral doxy. All of my other bloodwork was within normal limits (and I have a CBC, CMP done weekly and labs have been great so far since 2/25/09). But I am sure that there are others out there who may have this same thing you do. However....I do have a LOW D-25 and a HIGH D-125, which is also indicative of Lyme, so not sure if you've had those tests.

Sorry if I sound all over the place - I'm having a baaaad brain day.

Laura

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/20/2009 1:37 PM (GMT -6)   
i have had my blood worked up so many times in the last 2 yrs it should get paid for it..lol i do know that my white count is up and has been for the last 6 months, but at the same lvl, i wasnt told what it was tho, then my colesteral whent from perfict 3 yrs ago to extremly high. can this be from the lymes also?
also all tests for RA show negitive, but they say i do have some kind of arthiris. just seems to me my body is a walking contradiction ( when i can walk that is)


what is a CD_57, i have asked my PCP about this an he didnt know what it was. i'm thinking maybe i need this test done also, once i know what it is and who to have it done by.

Thanks for the input
   RD
                                                                                                                 
 
still looking for answers
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/20/2009 2:16 PM (GMT -6)   
RD    listen to this!    cd-57 these are known as our bodies immune system killer cells.   lyme eats cd-57.   the only other thing that does this is aids.    lyme patients have very low levels of cd-57.   this test can signify proof of lyme if your in a stage of lyme that it has had enough time to diminish the cd-57.    it is a good way to help prove lyme.      Lyme and Aids Rd are the only diseases that can eat the cd-57 killer cells of our bodies.   when i learned this it really put into perspective the impact and the level this disease can really come to.

In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/20/2009 3:35 PM (GMT -6)   
i would also like to know who can do the test for you

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/20/2009 3:37 PM (GMT -6)   
your not all over the place lala. who does these tests for you
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1295
   Posted 5/20/2009 7:04 PM (GMT -6)   
veromia, do you think a possible infection appx 2 yrs is long enough to note low cd57? I'm kinda stuck right now, having learned today from my insurance that they will not reimburse what I pay to a LLMD and the tests he orders. Even if I can pay the LLMD, there is NO way I can pay for labs. I literally have nothing but my job and my insurance. So maybe I could get my PCP to order one more test -- but I need it to COUNT.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/20/2009 10:02 PM (GMT -6)   
CD57 – lower counts are often observed in people that have been ill longer than one year. The test can reflect the severity of illness. It may be a helpful screening test. It is a good predictor of relapse at cessation of treatment. The following ranges are suggested:

<20 severe

20-60 most common in chronic Lyme disease

> 60 Lyme activity minimal

> 120 Relapse not likely when treatment ends

Dr. B. suggested that testing CD57 about every 3-6 months is appropriate. He noted that it often jumps towards the end of treatment and that it is not a linear improvement in all cases.

(Personal Note: I have found this test to be very useful and it has tracked well with my recovery. I did not do the test at my sickest as I was unaware of it at that time. However, after several months of treatment, my CD57 was 65. It later went to 84. Later to about 130 and most recently to ~160. My personal desire is to see it over 200 before stopping treatment but based on Dr. B’s comments, ~160 suggests that stopping antibiotics may soon become a reality

This information is from dr. burrascano noted lyme md.
So L.U. it should be an appropriate time to test you!
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/20/2009 10:11 PM (GMT -6)   
L.U what tests have you had are they not paying because they dont believe you?
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/20/2009 11:09 PM (GMT -6)   
veromia333.

i understand what you mean about the test, i just need to know the tech name for it, so next time i ask my Dr. about it, maybe haven it done, i dont get the blank look from him like i have 2 heads and dont know what i'm talking about.
yes he is a good Dr. for most thinsg but he is also older and glueless about Lymes. is this test in part to and CBC test as i have had many of them in the last 2 yrs. as for my Lymes i may of got it many yrs ago and just found out i have it a few weeks ago. so if there is a propper name this test is called thats what i would like to know.
   RD
                                                                                                                 
 
still looking for answers
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/21/2009 12:01 AM (GMT -6)   
well put a post for that answer i havnt had it but i would like to know the details also alot of the people on the forum have had it. and like i said its in dr..burrascanos guidelines to test the cd-57 and i think that is what the test is just the cd-57 levels you prob have to seek out the test information to print out to give to your doc. please post for this answer i would like to know also
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4117
   Posted 5/21/2009 3:20 AM (GMT -6)   
Check out http://www.anapsid.org/lyme/strickerpanel.html for more info on the CD-57 test. Perhaps supplying your doctor with a printout of this page would enable him to order the correct test.

Here is a link to the initial study about the CD-57 test in relation to Chronic Lyme Disease:
http://www.aaem.pl/pdf/aaem0217.pdf
There is no relation between total Lymphocyte count and CD-57 count.  I happen to be low for all categories of Lymphocytes (total WBC count, total lymphocyte count, CD3, CD4, NK cells, and CD-57) but most on here aren't low on all of these.

Take care,


-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.

Post Edited (Razzle) : 5/21/2009 2:23:00 AM (GMT-6)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/21/2009 12:56 PM (GMT -6)   
thank you
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


RFM
New Member


Date Joined Apr 2008
Total Posts : 2
   Posted 5/22/2009 8:53 PM (GMT -6)   
LabCorp is the only place that can test for CD 57, I have been told. I have been tested 2x there. My first result was 17. Six months later it was 40. (Normal range is 60 - 360). I was on Diflucan for much of that time period, and did a course of Mepron right before being tested. Neither tx made me feel significantly better.

I asked my wonderful LLMD to ramp up the tx, PLEASE. So I have been getting Bicillin LA shots for the past 5 weeks and I do notice a BIG improvement in energy levels. I don't need a nap every single day and I was able to do several errands in one day. I know that doesn't sound like much, but fellow Lymies will understand. The best part is that I can work in the garden!!! For extended periods! And I have started to feel able to clean up the piles of paper in my office at work and in my house. I have read that inability to clear clutter is an actual Lyme symptom. I have always been a cluttered person but over the past 4-5 years of my Lyme-itude, it has reached epidemic proportions. To even make a dent in it is very uplifting.

On the days that I feel bad, I still feel really bad (mostly extreme tiredness) but these windows of normalcy are very exciting.


RFM

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4117
   Posted 5/22/2009 9:13 PM (GMT -6)   
Seriously, the inability to clear clutter is a Lyme symptom????  shocked     devil   devil idea So now I can blame the disarray in my house on Lyme smilewinkgrin      Cool! 
 
 
 
 
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/22/2009 9:18 PM (GMT -6)   
Hahaaa i also am in a world of clutter. On certain days i goafter it all. others i cannot move a finger while i stare at it
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 5/26/2009 3:20 PM (GMT -6)   
You can do a search for CD-57 on PubMed.gov they have a number of articles regarding the test. 
 
Veronica, I think the only thing that is suppose to affect the CD-57 count is Lyme Disease not HIV/AIDS.
 
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 5/26/2009 4:31 PM (GMT -6)   
i am so happy when someone helps me thank you. I just also wanted to say that as irrelivent as it may or may not be chronic aids and lyme paitients do have low cd-57 that is an alarming comparison to how serious lyme can be.
(i did find some more info on this since this post thank you)
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

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