Hi Barb, welcome to the board!
I am sorry you have been sick for so long. Do you have other co-infections? What doses of Mepron and Zithromax are you taking?
Babesiosis can often be hard to eradicate, and it is not unusual to need repeated treatment. I believe that four months is the minimum treatment time, but longer treatment is typically needed. Some people feel bad during treatment, but once the infection is eradicated they feel much better.
I have heard of others with Lyme getting shingles. I think it may be because the immune system is weak.
Good luck with your treatment!
Hi Barb. I understand the feeling of being treated twice as long as you have!
You may want to ask your doctor about adding Artemisinin to your protocol. I have found it helpful. If you feel like you are not making progress, you may want to talk to your doctor about possibly increasing the Mepron dose. Some doctors are now prescribing two teaspoons twice a day. Of course the protocol needs to be individualized.
When I treated Babesiosis in the past, when I was done with treatment I felt significantly better.
Hi Chief. Although co-infection tests are also not 100% reliable, I think IgeneX is a good place to start. I would recommend getting at least the antibody test and the FISH test. Have you ever been tested for them?
Although many symptoms of Lyme and co-infections may overlap, some of the hallmark symptoms for Babesiosis are
ChillsFatigue and often excessive sleepinessHigh fever at onset of illnessNight sweats that are often drenching and profuseSevere muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"DepressionEpisodes of breathlessness, "air hunger", and/or coughDecreased appetite and/or nauseaSpleen and/or liver enlargementAbnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
When I have Babesiosis, besides muscle pain I also have muscle weakness.
Huh, thanks for the responses. The only hallmark symptom that fits for me is " Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)". I only had the basic lyme test thru Igenex. I had always attributed the headaches to my #1 lyme symptom. And there is light sensitivity, some joint pain, and I had a rash (not a bullseye).
Been treated for about 1 year as of now. Of course since I'm not better, I'm wondering if I need to be treating babs or something else (maybe candida). I only had the infection for 6-9 months.
Most of your advice here tells me I need to get after my LLMD on my next visit. Any other advice??
Hi Chief. What did your rash look like?
Sometimes when people do not progress with treatment, it is because of an untreated co-infection. Definitely discuss this possibility with your doctor.
Hi Barb. When I have Babs, I have the symptoms on that list plus muscle weakness.
You may not have gotten better because the Babesiosis has not been treated. I think it will make a big difference once you get it under control.
Hi minerals. As I posted on another thread, I believe Fern's Nutrition http://www.fernsvitamins.com/Digestive/artemisinin.html has the best price for Allergy Research (which is also Nutricology) Artemisinin. You may want to Google it to check prices elsewhere.
Hi chief. I asked about the rash just to see if it sounded like a rash that may be have been caused from a co-infection.
I recommend trying to determine if you have untreated co-infections. Many Lyme doctors believe they need to be treated first for Lyme treatment to be effective.