Head pressure?

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hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 5/24/2009 12:05 PM (GMT -6)   
It's really bad today. It's in the back of my head above my neck.

I am on 200 mgs doxy.

I need to know the cause of this.

The longer I go with Lyme etc., the more I understand that nothing can be done.

Still, it'd be nice to know if it was Lyme or some other reason. Back of head pops and snaps when turned. This is not coming from my neck. The pops occur there too, but mostly from my head. No kidding.

How do I go to a doctor and look him in the eye and say that -- "my head has popping sounds from the back and an extreme pressurirzed feeling."

Obviously, I do not like going to the doctors.

I want to cry.
Bit June 08.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/24/2009 12:24 PM (GMT -6)   
HopingToFindCure,

I have the back of the head pressure too....really bad. I don't have an answer to your question but I wanted you to know that you are not alone. I think most of us with Lyme have that nasty pressure. I just wanted to write and give you a big Internet HUG!!
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/24/2009 12:55 PM (GMT -6)   
more then once i have said plz lord remove the vice off my head, thats how it feels for me almost every day for yrs now. i havent nostest the poping sounds tho. but the vice like feeling is more then enough for me.

¤°´¯BIG.¤*¨*¤(¯`´¯)¤*¨*¤.Hugs¯`°¤.
   RD
                                                                                                                 
 
still looking for answers
 


gracietiger
Regular Member


Date Joined Dec 2008
Total Posts : 129
   Posted 5/24/2009 7:37 PM (GMT -6)   
the head pressure is definitely one of the worst, if not the worst, of my symptoms. however, i am only affected by it when the weather becomes rainy/low pressure or i am at high altitudes. in fact, i had to move from the east to west coast simply because of the head pressure. it was so bad on the rainy days on the east coast that i couldn't even stand to live anymore.
my head pressure feels like blood in my head. i can hear and feel really loud/strong whooshing in my ears, to my pulse, and my whole head goes "whoosh, whoosh" with pressure. i often describe it as a feeling like my blood is tar and "stuck" in my head.
unbearable really. i have found nothing to help, other than moving, for me. i want to rip my head off when i feel the pressure.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/24/2009 8:25 PM (GMT -6)   
since it does seem to be a weather - driven symptom, has anyone been to a dryer climate and felt "cured"?


Thanks. I got better for a bit and then the drainage hit. Bam, pressurized head feeling!
Bit June 08.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/25/2009 1:15 AM (GMT -6)   
I live in the panhandle of Tx very dry and flat. and like i said b4 i dont have the popping but i do have the pressure. it took from oct to now to get 5 inches of rain,lol ohh yeah this is the wet session. on avg we get 21 inches of rain a yr.

so i dont belive this is the cause.

also you wouldnt want to live here cause you cant get a LLMD here :(
   RD
                                                                                                                 
 
still looking for answers
 


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/25/2009 5:44 AM (GMT -6)   
HopingToFindCure,

Here's another hug!

Are your neck muscles really tight? The poppy clicky noise sounds like it is coming from insidide your head when it is coming from the area at the base of your skull. I don't remember what the chiropractor said is back there, but it was swollen. That was in March, when we thought we were dealing with sinusitis. In April, I decided to go the holistic center for a real massage and Reki. They seem to help but are too expensive to get as often as I need. I want to go back to the chiropractor this week if can see me with the PICC line.

I have figured out how to take the detox bath and get my back into the water, and that seems to be getting things to loosen up. For the past two days, I used three bath towels under my upper body, arranged for support of my neck. And only added enough water so that when flat on my back, the water is just touching the bottom of my ears. I also put a hand towel over my belly. The only problem with this is that my knees stick out. Guess I can stick towels on there too, or sit up and add water. I also figured out that when I take a bath, it is better for the PICC line, not to wear the plastic sleeve, or it steams up in there, so I have to keep it sticking straight up along the side of the tub. The hard part is getting out. And then to shower off, get dry, and put on the sleeve, so I can get back in.

I have had good Lyme days when it was raining and bad Lyme days when it was nice out. I also read somewhere on here that the moon phases affect it too.

I don't know if this is helpful, but if nothing else, the visual of my bath desciption should give you something to laugh about.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/25/2009 9:13 AM (GMT -6)   
Thank you everyone for all of the suggestions, which I will try and incorporate. Allergies, which I didn't have too bad until Lyme, have hit and hit hard, I believe because we get so much rain on the Eastern seaboard (well, I don't live near the beach or anything.)

The weird click in the back of my head maybe due to swelling -- I agree -- of the small tendons back there. Very odd symptom and I know I'll get the "are you nuts" from most doctors.

am on 200 mgs of doxy.

lots of vitamin c. lots of fruits and veggies. probiotic, b12 and mag. I eat pretty well.

sinus problems get you down!

floaters have increased this year again too. that's weird!
Bit June 08.


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/25/2009 11:26 AM (GMT -6)   
me again!

I took the bath advice -- thanks turquoise sky!

It is working today.

Thank you. Thank you. Thank you.

I feel like a lot of the stuff is draining out. I'm sorry it that grosses you all out.

But I wanted to report positive feedback on the suggestions so far.

Blessings!

Hope for cure
Bit June 08.


gracietiger
Regular Member


Date Joined Dec 2008
Total Posts : 129
   Posted 5/25/2009 11:41 AM (GMT -6)   
that's great!!!!!

to respond to the earlier question about whether a drier, less humid climate helps, for me YES YES YES!!!! like i said, i moved from maryland to cali SOLELY because of the head pressure. and it is WAY better here. i can go outside and function. in maryland (especially over the summer on rainy days - the combo of humidity and low pressure killed me), i was bedridden with the head pressure.

i'm wondering if anyone else feels and hears a "whoosh whoosh" in their ears and head with the pressure?

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/25/2009 11:48 AM (GMT -6)   
gracie - I know what you mean.

about 5 years ago, my husband and I took a trip to Scottsdale, AZ. I couldn't believe how fresh the air was.

We had energy too! I didn't need coffee the whole time.

I wish we had never come back.
Bit June 08.


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/25/2009 11:56 AM (GMT -6)   
Glad that is helping! It seems to help me a lot! I think it has to do with the build up of toxins and they need to be released, so not gross at all. Much grosser to keep it in!

Today I used even more towels and covered both of my knees, and then moved them to cover around my neck. So if I start out with one more... Soon I will have all the towels in the house in there! I put some epsom salts in first and the hydrogen peroxide, and then some epsom salts on the towels. I also managed to bend my arms to reach each side of my neck to massage what I could reach without hurting anything or getting the PICC line wet.

It is also important to let your body completely relax, which is hard to do when you're in pain. But the more you relax, the more effective it is.

Well I'm off to go do the laundry.

Cmacaran
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 5/25/2009 1:57 PM (GMT -6)   
I had lyme encephalitis which I belive was the cause of my head pressure.  The symptom was exactly as you describe yours.  I got an SPECT scan at Columbia Presbyterian and it showed the "moderate encephalitis".  It took 2 months on IV rocephin before it went away.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/25/2009 5:03 PM (GMT -6)   
Cmacaran - Are you better?

Was it Dr. Brian Fallon's Lyme clinic that did the spect scan and ordered the IV of rocephin?

I don't live close to NYC or anything like it. So, I am hoping for someone to say let's do an MRI.

Should I see ENT, Neuro or Orthopedist or someone else.

Sick of being whoozy.
Bit June 08.


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 5/26/2009 12:58 AM (GMT -6)   
I can relate to the pain in back of the head/neck - that was one of my first symptoms - relaxation/ massage and baths - are very good for relief - I also found that a 'Tens machine is useful' - I am in U.K. - so not sure if it is called that elswhere - it is a small 'gadget' with stick on pads that gently vibrate and send pulses to the areas where attached - like the machines for 'muscle toning'.

chiropractor and masseur told me the clicking/popping sounds come from muscles/tendons that are tense and become stretched a bit like 'elastic bands'

once I believed that the more I relaxed the less pain I would have - I started to get relief. - anxiety/stress is the worst thing for neck/head/shoulder pain.

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 5/26/2009 5:21 AM (GMT -6)   
I'm so glad you are getting some relief.

I also hear the constant whooshing sound in my ears and it's driving me crazy. Also have the neck/head pain and constantly feel lightheaded, spaced out and woozy.

Was only diagnosed with Lyme this year and am into my third month of IV Rocephin. Still haven't experienced any real improvements yet but am hoping for the best.

I too had a SPECT scan done at Columbia the first year I went out on disability (2005) and it showed encephalitis and moderate to severe abnormalities although I only started to experience the whooshing sound this past year which has gotten much worse since I started treatment in February.

Sinus inflammation is one of my most annoying symptoms and I too usually feel much worse when it rains. Never had allergies or sensitivities until all of this started.

I'm so glad to hear that some are doing better out west. I currently live on the east cost and am hoping to relocate to Scottsdale for personal and financial reasons as soon as I'm well enough to do so. If relocating brings any relief that would be a blessing.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/26/2009 6:29 AM (GMT -6)   
Scorpio - Hope to see you in Scottsdale. Maybe give envita a try if you can stand all that controversial treatment...but IV Rocephin sounds tough too! I hope it brings you the relief you seek!

GorbyBelle - Googling tens machine . I've heard of it from another issue I had last year with the bladder. That's cleared up - Yay, so the body can heal itself -- that is good. The popping and snapping coming out of the tendons back there DID start when I had to work on inauguration day and got totally stressed. When I was a kid, I used to like to find golf balls and rip them open somehow. (Sounds strange but was bored). Anyways, the rubber bands would unravel. That's kind of what it feels like. That and the firecrackers we'd pop. They were red strips of firecrackers. (Anyone else recall but me?)

I guess I'm reminiscing about better days: old golf balls and firecrackers!

sigh.
Bit June 08.

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