I began IV Rocephin 2/25/09. PICC line has been fine up until a couple of weeks ago; I can infuse/flush, but nurse cannot draw from it so she is going to put me on Caflow and take the blood the old fashioned way, which I prefer anyway. I am also on 400 mg Doxy (oral) daily. When I began treatment in February, my CD57 level was 16. I don't know what it is now; I will find out late June, right around the time when my grandson is due to be born.
I can say that it is helping, albeit slowly. Although I know the reality - I'll probably never be the same again. My mom has been chronic since 1996. But I do have good days - it seems to be pretty cyclical in nature though - around the 25th of the month I have a really bad week - especially neurologically (rage, brain fog) which is why this may not be very well written and I apologize in advance.
I work, but I am an admin. My BIL, who has Lyme, had a PICC line put in, but due to his line of work (tree expert), they had to end up putting in a Hickman (sp?). I remember my doctor asking me if I had a "sweaty job" in which case a PICC might not be right for me. You just have to be so careful not to get the area wet and it can get infected easily as you well know. I think mine has been decent so far (and I hope remains so for the 6-12 months she's keeping me on the IV) because I'm so immobile. I'm just starting to feel like doing anything - especially on my work days because the totally wipe me out and my job is not difficult or laborious at all.
I am not on gallbladder meds; LLMD told me side effects worse than gallbladder surgery and so far (where's some wood?) no problems at all. The Doxy makes me nauseous if I don't eat, but so far, my bloodwork has also come back spic n span.
Dressing changes once a week, along with vitals and labs, which consist of CBC, CMP. When I herx, my blood pressure goes nuts, so now I am on Cozaar. Also on Atenelol for tachycardia and Xanax for anxiety, all Lyme induced.
I hope I answered all of your questions. If not, write back - I'm totally brain dead now.