Article about Dr. C.R. in KC over diagnosing LD

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KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 5/27/2009 8:53 AM (GMT -6)   
Link to article:
 
 
Date of article is May 27th, 2009  you may need to use the back issue feature if you look after today.  You'll need to put in May 27, 2009 and search on Lyme.
 
I think some of our members went to her if I remember right. 
 
The article states that some of the 11 patients treated for LD were shown to never have LD, I wonder how they were able to prove that?
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/27/2009 12:37 PM (GMT -6)   
So did they win this case against the doctors.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


hiker53
Regular Member


Date Joined Aug 2008
Total Posts : 81
   Posted 5/27/2009 3:39 PM (GMT -6)   
I never trusted Dr. R from the moment I saw her.  She diagnosed me with way too many problems and used labs that were not covered by insurance.  She didn't bother to test me for lyme, since I had a positive Igenex test.  I think she has ripped off a lot of people who are ill.
 
I know some people may have benefited from her treatment, but when she wouldn't send my test results before the phone conference (which was scheduled 3 months later than my tests were done), I had to threaten with a lawyer and I got my results.  Of course, she didn't keep the phone conference.
 
Hiker53
 <><


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 5/27/2009 9:53 PM (GMT -6)   
btw, I am in the KC area and Dr R seems to be considered a real lyme expert here. When I called, they said she was filled up, and then later, after learning she doesn't take ins, I gave her up.

I read all the earlier posts about her on this board. What some people were paying her was quite alarming. Now, seeing this, I'm really disappointed. Drs like this are responsible for the disrespect paid to people who are ill and DRs who treat Lyme.

And I am asking the same question as others: HOW did these folks learn, positively, that they did NOT have Lyme. First of all, we are told how difficult it is to diagnose w/ labwork. Also, that once you have Lyme, there is never a way to learn, proof positive, that the spirochetes are completely gone, even after treatment w/ Abx.

If THEY (ER rooms, other Drs, etc) can prove that we don't have Lyme, IF we don't have Lyme, then why can't they help all of us who are struggling with this? I think we'd sure like to have Lyme ruled out, if we don't, in fact, have Lyme!

This article and the one posted about the phoney lab earlier are very discouraging. They sure didn't help matters, only made it worse and more difficult on everyone's suffering. Sure makes it difficult to know who to believe, huh?

babs123
New Member


Date Joined Apr 2009
Total Posts : 10
   Posted 5/29/2009 1:47 PM (GMT -6)   
I too had my Dr. CR experience when I still lived in KC area. I went to her for another opinion, and I was lucky, she still took insurance then (2003), but as someone mentioned I had numerous test that insurance didn't cover and the cost for what she wanted to treat me waas astronimical. I ended up getting good IV treatment here in PA for 10 weeks for what she would have charged for 2-3 weeks. Interestingly a couple of her test did point to a couple of other problems I have....but I never went back after the "consulatation" from the testing. At the time I knew another lady who had her daughter treated by Dr. CR and spent thousands....and to this day many of us who knew the daughter greatly doubted she ever had lyme...she didn't have the right symptoms, no Herxs and her only positive test was from some experimental lab in Florida that was later closed down.

babs123
New Member


Date Joined Apr 2009
Total Posts : 10
   Posted 5/29/2009 2:12 PM (GMT -6)   
Just another quick note for anyone who would like to read further about this case surrounding Dr CR and Health Centers of America. There's an article in the KC Star that is very interesting:

http://www.kansascity.com/business/story/1215762.html

This Bowen lab was the one I mentioned in my previous post where the young girl had a positive only from this Bowen group. I also donated my $250 and got my positive result in 2003 after they were told by the state to shut down!

Weary1
Regular Member


Date Joined Oct 2006
Total Posts : 127
   Posted 6/1/2009 8:44 PM (GMT -6)   
I do know of a few people in this area who have seen and see Dr. R and have gotten a lot better and really really like her......
www.chicagolyme.com
 
"Greater things are yet to come and greater things are still to be done in this city" - Chris Tomlin
 

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