I'm so sensitive

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CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/30/2009 5:20 PM (GMT -6)   
For the past few days, I've been a cry baby. I'm taking everything to heart and reading into things that shouldn't be read into. I feel so hopeless and I'm just not this way. Why does Lyme do this?
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/30/2009 5:58 PM (GMT -6)   
I don't know. Feeling ill and being in pain for so long is enough to make you want to cry. Maybe hormonal?
I used to get like that with PMS, but started taking evening primrose oil and it helped. Now that I skip two months between cycles, I don't get as bad, or at least not as often. I've also been using progesterone cream to try to help regulate my cycle, but that doesn't seem to be working anymore, so I don't know why I keep using that. The other thing that does seem to help me is the herbal tincture for hormonal balance.

Tink Rox
Regular Member


Date Joined May 2009
Total Posts : 20
   Posted 5/30/2009 6:07 PM (GMT -6)   
Oh Cajun, I know what you mean. I agree with Turquoise Sky that being sick just wears you down!!!! There are times that I just want to be "normal" like other people. I want to go swimming or walking in the sun and can't cause of the sun sensitivity I have cause of the meds or I want to get up early and am soooo tired that I can't. Though I can tell I'm getting better and it used to be so much worse. There is hope, really. Lyme jacks with your CNS, so yeah, you're gonna have emotional ups and downs. I started taking something called L-Theanine. I think it's an amino acid. I can't remember, but I noticed the first day I took it, I really felt good. I take it a few times a week and it's helping. Plus, my dr. prescribed B12 shots. My husband does them for me. B12 in the liquid form from a health food store is also very effective. No sugar or excessive amounts of caffeine, watching what you eat (mostly) helps me, too. Though sometimes a fun splurge cheers me up.

It's gonna be ok. And it's Ok to cry anyway. I've cried alot. I've dealt with this for a long time not knowing what was wrong. I have found that I am staring to enjoy the simple things in life more than I used to, as well. Perspective is everything.

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 5/30/2009 6:11 PM (GMT -6)   
I don't know but I've been feeling the same way lately too. Hopefully, it won't last for either of us.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/30/2009 7:27 PM (GMT -6)   
Lyme bacteria can mess with neurotransmitters, which can affect mood. The Lyme can also mess with hormones, which also can mess with neurotransmitters (hence PMS). And my understanding is that some of the coinfections can also do this (Bartonella, Babesia).

And yes, chronic illness of any variety can contribute to this. I think it is important to allow yourself to feel the emotions instead of trying to resist them. And then it is also important to have activities, things, people in your life who can come along side you and help you through it when you are struggling to stay positive. And I think this support forum can play a big role in this for those who are comfortable sharing "in public." So take heart, you're not alone in this.

Cheers,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 5/31/2009 1:01 PM (GMT -6)   
For me, I welcome the tears as I would rather FEEL sad than not feel. I know you all know what I mean. Sometimes theres this  emotional emptiness that comes with LD and I would rather have the feelings than not, good or bad. D

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 5/31/2009 2:05 PM (GMT -6)   
I just got to say that since I started IV Claforan for Bartonella I haven't cried or felt depressed and I wish I had done this weeks ago.......I have been normal and energetic and happy. Will let you know if this changes but I really think Bart causes the depression more than any infection and urge people with persistent bad moods to treat for Bart agressively. I was suicidal some days and could not stop crying most and I was so sick of hearing that I was hormonal.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2009 3:57 PM (GMT -6)   
Turquoise,

I am on the Depo Provera shot and it stopped my cycle for over a year. I used to have PMS.....it was worse than PMS a week before I started and the whole week I was on my cycle. That is when my rages would come out really bad. Since my cycle stopped, everything wasn't as bad anymore.....BUT, last month for whatever reason, I started again and have been bleeding off and on for a month. I guess that could be what's going on. My body is whacked!

I was taking the primrose oil everyday and stopped when I started my cycle because I was sleeping all day and didn't have time to take my supplements. Sad huh? My cycle is a monster! LOL.
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2009 4:02 PM (GMT -6)   
Tink Rox,

I was taking the L-Thyanine(sp?) too but recently stopped because I started my cycle and slept most of the day. I take the Depo a shot and was not suppose to start, but I did for whatever reason. Im going to start taking all of my supplements again tomorrow. This cycle really threw me for a loop. That may be why I'm so emotional too.

I wanted to ask. How much B-12 are you taking and how often?
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2009 4:04 PM (GMT -6)   
Scorpio,

It's terrible huh? I sure hope you feel better soon. I know how bad this disease is and I hate seeing others suffer with it. I wouldn't wish this on anyone.

Hugs!
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2009 4:07 PM (GMT -6)   
Razzle,

You always make everything make sense. Believe me, I don't hold it in. I cry so much sometimes that my entire face is wet. Then I get a terrible headache. Blah! Sometimes I wish I could hold it back.

Thanks for you expertise:)
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2009 4:11 PM (GMT -6)   
Dowa,

I haven't felt the emotinal emptiness yet. Are you on anti depressants? That can sometimes make you feel that way. Sometimes I wish I felt that way instead of feeling all of these hopeless feelings. The past few days, those yucky feeling have just been staying around. How in the world can I be strong with these yucky feelings lurking around? I hope they go away soon because this is not me.
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/31/2009 4:14 PM (GMT -6)   
Pcpc,

I'm so glad you are feeling better. That gives me hope to hang onto.

I agree about the Bart and I think that's what I have. I have all of the symptoms even though my test came back negative.

Keep us updated on everything!
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 6/1/2009 1:41 AM (GMT -6)   
crying can be part of 'herx' - also - anger/despair/sadness/fear/mood swings -

the emotional roller coaster of having lyme is hard work!!

I think crying can be a good thing - it is the bodies way of relieving tension/anxiety etc;

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/1/2009 2:25 AM (GMT -6)   
Gorbybelle,

It does feel like it helps but I have to deal with sinus and bad headaches after, LOL. I cry pretty hard and I always get really bad headaches after.
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 6/1/2009 4:07 AM (GMT -6)   
If I could I would come round and give you a big HUG - do you have someone who might give you a shoulder/neck/head [gentle] massage - also 'reflexology' is very good for helping with relaxation.

it sounds like you are very 'tense' - not suprising with all that you are going through - finding ways to really relax is something that has helped me a lot - I know its not easy.

I get 'tension' if I am very tired and yet fighting to carry-on as normal - pushing myself - it is stupid but I still haven't accepted my limits since lyme started .

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/1/2009 4:08 AM (GMT -6)   
I also get the bad sinus headaches after a cry.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/1/2009 8:24 AM (GMT -6)   
Cajungrl, I hope you're feeling better.

I've been thinking that I have not herxed since starting IV Rocephin but now am hopeful that my bouts of sadness and depression are herxes and actually doing some good. The hopeless feeling is the worst.

Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 6/1/2009 3:06 PM (GMT -6)   
Hope things get better soon! Sorry that you were unable to get out to the fair. You can make it up to her when you are feeling better. I don't know why it has to take so long, and I totally understand how you can forget to take something.

It's hard to for me to remember the evening primrose (it's blended with flax oil) if I don't have a salad, because that is where I put it usually. This month I am not even able to take it or it would run right through me, not to mention a salad. I am ready to be done with the abx, so I can eat real food again, other than bread and pretzels. I love the carbs, but usually try to avoid them, and now it's practically all I'm able to live on.

I don't know if you saw the post about You know you have Lyme if...I really think that I may have been the one who took the missing Doxycycline from my dog's bottle, there should have been two pills left and there was only one. I know I didn't give him three. I should have made up pill boxes for both of us. I had been on it too, so it wouldn't have hurt me at least!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/1/2009 11:16 PM (GMT -6)   
Gorbybelle,

Awwwww, thanks!!

I haven't accepted my limits either. I still want to be the "old me".
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/1/2009 11:22 PM (GMT -6)   
Maybe were are on the same cycle from talking, I'm feeling not so stable almost panicked. Cant wait to see the doc wed.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/1/2009 11:22 PM (GMT -6)   
Razzle: I guess we get headaches because our sinuses move when we cry. I hate it and I get one everytime.

Scorpio: I think the bouts of crying could be a herx. When I herxed real bad on Amoxicillian, I had the bad bouts of crying. Worse than what I have now. I felt like I just didn't want to go on. I hate that feeling because I'm a fighter and I do want to continue with this life and get better. The feelings make you feel so hopeless and not yourself. Once I come out of it, i'm like, "oh my gosh, I can't believe I was feeling like that and thinking all those scary things".
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/1/2009 11:32 PM (GMT -6)   
Scorpio,

Yeah, I can make it up to her but I'm always making it up to her. For five years now. I know she understands but a kid is still a kid and they are still let down.....even though she doesn't show it. I was crying because I couldn't take her, then I was angry because she was going swimming at one of my ex friends house and that "I" couldn't be the one to make her happy. My husband is still friends with my ex friends husband. They have been friends since they were little and my daughter is friends with their daughter so I can't keep her away. It angers me that my ex friend hurt me so bad by just leaving me out to rot....never once asked me how I was doing....EVER! I was angry because she did me sooooo wrong, yet is still healthy and happy. I don't wish harm on her at all. I just want to know why all the good people have to suffer while the butt****** get away with everything? Sorry, I'm still pretty pissed after a year has passed. It's just not fair.

Yes, I remember you posting that. It gave me a good laugh right when I needed it. I was also glad that you didn't take anything that was harmful. It did remind me of things I do all the time though.
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

Post Edited (CajunGrl) : 6/1/2009 11:38:37 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/1/2009 11:34 PM (GMT -6)   
Veronica,

It seems like we may be on the same cycle. Maybe we can help each other when were feeling like this. I hate the emotions so much. My gosh, I've been all over the place.

I start treatment tomorrow and I'm scared to death. I don't like all those weird feelings. I almost feel like just staying sick. How rational is that?
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/2/2009 12:12 PM (GMT -6)   
I cry almost every day... I just do.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs

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