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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/3/2009 1:52 PM (GMT -6)   
i go see my ID tomorrow and on my last visit he told me if i thought i had lyme he would place me on IV abx for 30 days. i would like to know witch way is better and or safer  for me. i'll explan why i need to know. 1 i have 2 rotties 1 is a 132lbs the other is small at 90lbs but maybe preg. so i will have a litter in 7 weeks to deal with. i also have a cat and bird who loves to bit anything he can get to. earrings are out  for me cause of the bird will bit them off.
most of the time  if i do get dressed i ware t-shirts so i knwo they would keep a port covered but not sure it would cove a picc well enough to protice it. any input would be nice
 
wishing everyone well soon
   RD
                                                                                                                 
 
still looking for answers
 


ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 6/3/2009 3:29 PM (GMT -6)   
Having a port is like surgery..you have to be put out. It is also obviously much more expensive. Make sure you check with your insurance so it would be covered. I was told by my LLMD that they only use ports for long term IV abx so I had to have a Picc. It lasted 8 months and I only had it pulled cause I had gall stones and needed to stop the Rocephin.
I kept my picc covered with tube stretch bandage which worked really well. If you were going to do long term I would say the port but I really don't know much about them since I had Picc line.

Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 6/3/2009 4:17 PM (GMT -6)   
The picc is not that bad. You can keep it covered, to keep it clean and away from your pets.

I was nervous about getting it put in, but it wasn't nearly as bad as I was afraid it would be. I work in a nursing home, and got to talk to the nurses there and a resident who had one in the hospital before she came in. There was even one confused resident that had pulled his out twice. This all helped me to feel less nervous about it. They numb the area where it goes in, so it just feels like someone is pinching you. Then they send you to xray to make sure it is in the right place. The cool part was that the xray tech asked if I wanted to see, so I got to see the picture of my heart. I thought it was beautiful. I just had mine taken out yesterday, and that was really nothing. You don't feel that at all!

I am feeling better, and I hope I am, and that thay are not just going dormant again. I hope it works for you! Still praying!

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/3/2009 4:44 PM (GMT -6)   
RD, If you are only getting IV's for 30 days your insurance will more than likely only cover the cost for a PICC, not a port. As Turkoise said, it really isn't too bad and as long as you keep it covered you should be fine.

Just make sure to keep your precious pets out of the room when you do your infusions and when you have the bandage changed. The infusions usually only take about 1/2 hour and the nurse's visit should not take more than 30-45 minutes once a week. The nurse who comes to my home told me one of her patient's little dog not only ripped out her PICC but also jumped on her arm while the nurse was drawing blood. Obviously, her patient was lacking basic common sense by not keeping the dog in another room at appropriate times.

The first PICC I had was inserted at the doctor's office and was placed near the bend in my arm. It was very uncomfortable and annoying. The second PICC was inserted at the hospital using the guidance of an ultrasound and was placed in my upper arm. This one feels so much better.

You might want to ask that it be placed in the upper, non-dominant arm to make things easier for you when you are with your pets and in general.

Good luck.

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/3/2009 4:48 PM (GMT -6)   
RD, Just wanted to add that I think it's great you have so many pets. Your home must be filled with a lot of good karma and great energy. I always wanted to have a big dog and 132 lbs. is certainly big. lol

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/3/2009 5:00 PM (GMT -6)   

Hi RottenDog.  Is your doctor only going to give you four weeks of IV antibiotics?  This typically is not long enough.  What meds are you on now and have you been on?  Were you tested for the co-infections?

As ktp812 stated, getting a port requires surgery.  Getting a PICC line does not.  The port is surgically impanted under the skin in the chest area above the heart.  It has to be accessed with a needle to do infusions.  Even though the skin area can be numbed before the needle is put in, it can still hurt.  If someone does infusions five days a week, the needle stays in the port for those five days.  It is reinserted each week.  Ports are typically used for long-term infusions.

The PICC line can be done in an out-patient facility and typically takes only a few minutes.  There is a netting type bandage that will keep it secure on your arm.  You do not need to access it with a needle through your skin.  

Good luck at your appointment tomorrow.

 

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/3/2009 6:34 PM (GMT -6)   
thank you all for your comments and conserns. this ID told me on my 1st visit to him he would only do 30 days IV treatment if i thought i had lyme after rulling out MS. i did that so if i can just get my foot in the door its a step in the right diricton.
i am not on any meds for Lyme but for symtons i am takeing.for join pain Celerbex 200mg daily,for dizzyness Meclizine 25mg 1/2 to whole x3.for migrains Gabapentin 300mg x3,for the burning tingling in my hands Metanx x2, and the systain ultra eye drops as needed. vits i am takeing are 1200mg calcium w/ D,
1200 mg omega-3, and probiotic 2 billion active. i am hoping to comebat the abx with this.
   RD
                                                                                                                 
 
still looking for answers
 


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/3/2009 7:34 PM (GMT -6)   

Hi RottenDog.  Did this doctor test you for Lyme and the co-infections?  In my non-medical opinion, it is very important to be tested for the co-infections also.  Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. 

From what I understand, thirty days of treatment is not typically long enough for Lyme especially if you have had it for some time.  Of course it depends on the person's symptoms and severity, but orals are often used first because they can be effective, they are less expensive, and they are less risky. 

If you need a doctor recommendation, feel free to email me.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/3/2009 7:58 PM (GMT -6)   
thanks ticker. i sent into the turntheconner site and closet LLMD to me is a ways away from me and the county program i am on wouldnt cover me to see him.so i am stuck with the Dr.s here close to me, who know nothing about lyme that is.i have only had the 1 test done at labcorp, and not 1 Dr. said anything about coinfections. i think i know more then they do and thats not saying much.
i can let ya'll know what happens after i get home tomorrow from seeing him. if he helps me thats great if he doesnt just leason outside for the roaarrrr!! that will be me in totally frustration and anger. or better yet watch the news to see me, hehe ( local Lymer gose to jail for killing Dr.) heck they cant treat me there no good to me ;) lol
   RD
                                                                                                                 
 
still looking for answers
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 6/3/2009 8:18 PM (GMT -6)   
If I were you, I'd opt for the PICC, it is less expensive to insert & remove, and easier to deal with if it gets infected (with a Port, if it gets infected you have to have surgery; not so with a PICC). Also, if you are only able to get 30 days of IV abx and then have to stop, it's better to have the PICC removed at that time until you get another doctor who is willing to do longer-term abx.

BTW, I've had a PICC for almost a year (for TPN and IV fluids) and have not had much in the way of discomfort with it.

I hope this helps - take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/3/2009 8:27 PM (GMT -6)   
Good luck at your Doctors visit tomorrow!!!! I am keeping you in my thoughts and prayers.
2003 symptoms started
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/3/2009 10:33 PM (GMT -6)   
Thank you all for your input, it was much welcomed.

i do not have to worry about ins like most do, just on my low yearly amount. thats till i find out if i get my disablety & medacare. then if this happens i can go to a real LLMD.
   RD
                                                                                                                 
 
still looking for answers
 

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