Lyme + Tourette Syndrome

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jc27
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Date Joined Sep 2007
Total Posts : 176
   Posted 6/7/2009 12:19 PM (GMT -6)   
Does anyone know of someone that has Tourette symptoms due to Lyme?

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 6/7/2009 2:17 PM (GMT -6)   
I do not. But I have seen twitching frequently listed as a Lyme symptom. And in one of the trailers for Under Our Skin, there is a guy w/ tourette type twitching.

But there are many other symptoms of Tourette's, too, so I'm not sure if this (re: twitching) addresses your question.

As you probably know, people also get 'tics' (no pun intended, hmmmm....) while under stress. Both my youngest brother and one of my sons went thru a period w/ tics that went away.
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What was this??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 6/7/2009 2:48 PM (GMT -6)   
My son was diagnosed with Tourettes about 13 years ago. He's also had rage, OCD, ADD and been diagnosed with bipolar disorder. He was bitten by a deer tick about 14 years ago and was treated with 2 weeks of anti biotics.

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 6/7/2009 4:01 PM (GMT -6)   
Oh my God, jc, I am so sorry. I cannot even imagine how angry you must be! Is there any way to get him some good TBI tests and treatment now? Maybe some of his symptoms can be reversed? Again, I am so very sorry. By now, we all certainly deserve more attention, money and work put into these diseases ticks are carrying! It is WAY past time for ID MDs and others to wake up, apologize and get cracking on this! jeeeesh, how bad does this have to get??
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What was this??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 6/7/2009 6:50 PM (GMT -6)   
I'm not sure if he has Lyme but I suspect that he may. His test from IgeniX came back negative but he did have a slightly positive band for Babesia.

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 6/7/2009 8:28 PM (GMT -6)   
Do you have a copy of that lab report? Are there any bands w/ positive reactions? Any species specific bands?
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What was this??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


KO-LD
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Date Joined Aug 2007
Total Posts : 887
   Posted 6/8/2009 7:35 AM (GMT -6)   
Maybe the infection is too old to show up.  What my first LLMD suggested for my son (he had a bull's eye rash when he was 1 yr old that the ER doctor just said "it's not Lyme") is to do a CD-57 and see what his level is.  The test, like all things connected to LD is not conclusive, but if his level is low it could indicate LD.  The test was $141 from LabCorp the only lab you should have it done at.  My insurance dosen't cover the whole thing claiming that it is experiemental but others here have had theirs covered completely.  It involves doing a blood count so that part of the test they covered about $40 worth so it was $100 out of pocket.  Hope this helps.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 6/8/2009 9:23 AM (GMT -6)   
I'll take him to my LLMD and have his cd-57 count tested.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 6/8/2009 10:57 AM (GMT -6)   
Many Doctors who have written about Lyme know that Tourettes and OCD can be caused by Lyme. CD 57 is not always an accurte indicator of Lyme. I would take him to a LLMD and get a consultation be sure to give the complete history. His initial treatment was not long enough. A few days ago a forum member PcPc posted and referred to a great but very long paper that also mentions this connection. Read it it is worth it. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 6/8/2009 1:16 PM (GMT -6)   
He saw a LLMD about a year ago and his IgeniX test was negative. His babesia had a slightly elevated marker. At the time my son didn't believe that he had either. I still think that he does have Lyme + babesia.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/8/2009 7:59 PM (GMT -6)   
Still, wondering if any of the significant bands were positive? Also, his immune system could be so supressed that he no longer had enough antibodies to show a reaction on the test. I have read that this is common when a person has Lyme. I think you are suspecting Lyme for good reason.
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  What was this??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 6/8/2009 8:02 PM (GMT -6)   
I'll have to get a hold of his report and check it.

believing
New Member


Date Joined Jan 2009
Total Posts : 15
   Posted 6/15/2009 8:56 AM (GMT -6)   
Lyme+, are you still awaiting an apt. with llmd?  Do you want to see Dr. C south of Philly this wed?
I'm new at this and trying to find out how to chance my profile so I can make my email available. 
believing
 
lyme dx 11/08
Doxy 6 weeks until allergy
Bactrim ds and Difulcan; PC Nomi, Samento, Tick Pathogens presently
 


believing
New Member


Date Joined Jan 2009
Total Posts : 15
   Posted 6/16/2009 1:14 PM (GMT -6)   
Dr. J in CT believes the CD-57 is not reliable in people under 18. Kids can be really sick and have high numbers or be totally healthy appearing with low numbers....It is a good marker for how out of control the lymes is in adults though.
believing
 
lyme dx 11/08
low dose doxy 6 weeks
Bactrim & Difulcan; 
PC Nomi, Samento, accupuncture, sauna, KMT
Mino/biaxin/rifampin presently
mother to two children with lymes
 


jc27
Regular Member


Date Joined Sep 2007
Total Posts : 176
   Posted 6/16/2009 5:06 PM (GMT -6)   

My son is 20 years old and currently going to school and living in Baltimore. His classes end this week so hopefully in the next week or so I'll be able to work on helping him get a diagnosis.

 

 

Lyme Sucks!


maxinemm
New Member


Date Joined Mar 2017
Total Posts : 2
   Posted 3/14/2017 5:41 AM (GMT -6)   
Yes, my son did the marshall protocol plan for 3 years now lyme free they say...but now he has developed tourette like symptoms...so exhausted all the time...it never stops..worse in mornings or when he gets tired...
Anyone have same or similar and know what they recommend?
We are starting back with his original dr to see if he can help us with this..
Marty

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8939
   Posted 3/14/2017 9:00 AM (GMT -6)   
Maxinemm, I am so very sorry to hear this.

Here is hoping that his doctor has some answers.
____________
You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 3/14/2017 9:09 AM (GMT -6)   
Hi Maxinemm,
Welcome to our community! I'm so glad you found us.

​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.

​ And, here's another good place to find helpful detoxing routines: ​http://www.tiredoflyme.com/detox-methods.html​

​ Not many heal well on the Marshall protocol, due to the need to avoid Vitamin D, which unless the person has very high levels of Vitamin D in their body, it's a very necessary component of our healing.

I hope that your son's original doctor can be of help, but if not, please do let us know. We have a list of Lyme literate doctors and we can help you investigate other treatments as well.

Lyme can present as Tourette's: www.tourette-syndrom.de/download/bts_lymediseasepresentingastourettesyndrome.pdf
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

LymeIsWorseThanCancer
Regular Member


Date Joined Nov 2016
Total Posts : 87
   Posted 3/14/2017 9:28 AM (GMT -6)   
I was diagnosed with TS 15 years ago and when I'm on antibiotics all my symptoms of TS are lower or non existent. My rage and anger issues are dramatically lower while on antibiotics. On my off weeks my minor tics are back with a vengeance.

jennydancingfish
Veteran Member


Date Joined Sep 2016
Total Posts : 887
   Posted 3/15/2017 12:55 AM (GMT -6)   
Lyme with pandas or pandas alone or lyme alone can cause Tourette's. Has he ever had strep throat?
Currently with LLMD planning on doing modified Cowden Protocol and Buhner
Switched to this route after very bad herxing on rifampin
Diagnosed with Bartonella and Lyme. Twin has Bartonella and Mycoplasma and Lyme.
Twin improving on rifampin, zithromax, and tinidazole. Anger, rage, explosivity, emotional volatility, head and bone squeezing, sense of overheatedness all improved.
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