UPDATE ON MY NEW COURSE OF ACTION - I'm so tired of this...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/15/2009 11:29 AM (GMT -6)   
I'm so tired.  I saw my LLDr. today and here's the plan:
 
GET LAB WORK DONE AGAIN - MY MONTHLY LEACHING.  Finish Levaquin this Friday.  Start Diflucan for 1 week ending 06/26.  Make an appointment with the hyperbaric chamber doctor.  Do an Invanz IV 7 days a week for 4 weeks along with the hyperbaric chamber 5 days a week.  Possibly add gamma globulin every 3 weeks (depending on the LAB WORK - as usual).  Add Flagyl the 2nd and 3rd week of IV.
 
I get more support on this board sometimes than I do my own family.  My husband is WONDERFUL and is there for me.... says he's not going anywhere!
 
I called my parents... BECAUSE THEY ASKED ME TO...to update them on what the doctor said.... My Dad, who hasn't watched the DVD "UOS".... although he started to and then got interupted by the neighbors.... and now my step-mom is claiming the DVD stalls and skips... I told them to dust off the DVD and try it again.... but I'm over it... I don't think they'll ever watch the darn thing.  God forbid they spend 2 hours watching a video of what I've been going through for 9 friggin' years.
 
My parents did see the "mystery diagnosis" with Brooke Landeau (who ended up using a HBOT too) and she got almost completely better.... but now my dad "doesn't remember"..... and he had to let me go so he could continue washing windows with my step-mom.
 
I am going to have a pity party for myself for a little while and then try to shake it off.  One thing about self-pity, no one else is going to do it for you! shakehead smhair shakehead
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +. 
Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/15/2009 2:46 PM (GMT -6)   
Jelaine,

Your treatment plan sounds awesome! It looks like your doctor is really being aggressive and wanting to get the ball rolling. I know how hard it is with family. I've been through it myself and because of this board, I've finally opened my eyes and started to move on and heal. Do what you have to do to get yourself healed. I've learned that I cannot make anyone understand what I am going through. I've been asking my oldest daughter to watch that video. You think she has? Nope. But she gets on Myspace and everything else. I still don't have an answer as to why people are that way, but I'm seriously tired of worrying. I'm gonna do me from now on!

Btw, even though you don't know me, you have a friend in me. I'll watch the video again for you! Big Hugs! I'm so glad you're starting treatment.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 6/15/2009 3:21 PM (GMT -6)   
My husband isn't there at all. Aren't you blessed!
Bit June 08.


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 6/15/2009 3:59 PM (GMT -6)   
At least you have your husband and you have us! The important thing is that you are taking care of yourself and if your husband is there for you, that is a lot! They don't know what you are going through or they would be different about it. It's easy to expect parents to be more than they are. We just have to be thankful for who is there for us, and not expect what people aren't ready to give or be.

3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 6/15/2009 4:08 PM (GMT -6)   
I'm glad your husband is there for you...that is so important to have atleast one person behind you. The move Under Our Skin is excellent and really educated me on the topic. Especially since I'm new to the disease.

Regards,

judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 6/15/2009 4:29 PM (GMT -6)   
Hi,
I have been looking out for your posts and keep hoping to find some good news, this seems like good news, you will be trying something new and hopefully it will work for you, dont eat yourself with the people that dont understand, just do what your doing and appreciating your husband for standing behind you, all I can say I really feel bad for you and for sure this time you will kick it!!!

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/15/2009 7:12 PM (GMT -6)   
Thanks everyone - I feel really blessed to have you all and this site to post on.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +. 
Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/15/2009 7:35 PM (GMT -6)   
You know u will have to go there and sit w them and watch it to make it happen. I had to fight w my daughters fater to get hm to watch it. He was practically yelling no he was yelling at me so annoyed then he shut up were watched it. When it was over he said....We have to get her tested (my daughter). My father wasnt very sympathetic until he watched it either. I asked his girlfriend to bring it up that she wanted to watch it and he did you know how that works.
So i did make them....it is so strange the anger it provokes though until they come out the other side the side where they know the truth about Lyme.......-V
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/15/2009 8:46 PM (GMT -6)   
Jelainep, I understand that you're tired but glad you have a new plan of action. With each new plan comes new hope.

As far as support, you're fortunate to have your husband and of course you have all of us.

I still haven't figured out how to deal with the anger and sadness I feel over my family and friends inability to understand just how sick I am.

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/16/2009 11:30 AM (GMT -6)   
Hi Jennifer,
Is this to treat all the new things your bloodwork discovered?  Most of that stuff I have never heard about.  I hear you on the family thing, my RN sister couldn't even be bothered to ask how I'm doing.  If I was having a heart attack she'd be right there!  She used to be a cardiac care ICU nurse and now does cardiac rehab.  Be thankful for your husband, sometimes I feel so alone with all this.  Hope you are finally making some progress. 
Take Care, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 25, 2017 8:16 PM (GMT -6)
There are a total of 2,873,282 posts in 315,320 threads.
View Active Threads


Who's Online
This forum has 156808 registered members. Please welcome our newest member, sammyp.
477 Guest(s), 10 Registered Member(s) are currently online.  Details
glutensugarfree, sda777, BabsBunny, SlappyHappy, Purrrsiankitty, sebreg, cspivak, Redwing57, owleyes, scar1919


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer