Quote from Michael J. Fox that I thought was good

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KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/15/2009 1:37 PM (GMT -6)   
I read an interview with Michael J. Fox and one of the things he said really struck me.  He said "If you didn't know how sick you are, how sick would you think you were?"
KO


2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009

Post Edited (KO-LD) : 6/16/2009 11:16:12 AM (GMT-6)


hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 6/15/2009 2:23 PM (GMT -6)   
maybe if we can make the last year or so of our lives go away and be forgotten then I could figure out an answer. as long as I can wake up and remember, I'll be stuck in this pergatory we call LYME DISEASE

Thanks though. It's a nice thought.

When you did Zhang's were you on ABX?
Bit June 08.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 6/15/2009 5:39 PM (GMT -6)   
I saw Michael J Fox on Oprah with Dr. Oz. He is an unbelivable guy with the best attitude in the world. And look what he has to deal with daily. Made me feel lucky. D

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/15/2009 6:34 PM (GMT -6)   
I feel like its a reference to sympathizing w why other people who cant sympathize w us sometimes. You know because our body pain is invisible
-Just a bit of a take I saw in it.
-When i saw the baseball player on Under our skin cant remember his name Pete something I couldnt help but wonder if Michael was ever tested or even ever thought of it.
-I dont care if people get mad and want to suppress that possibility.
-These diseases like Parkinsons are not cureable I would want to have Lyme over leaving it at that a settleing for Parkinsons
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/15/2009 6:43 PM (GMT -6)   
Great Quote!
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/15/2009 7:02 PM (GMT -6)   
hopingToFindCure said...
maybe if we can make the last year or so of our lives go away and be forgotten then I could figure out an answer. as long as I can wake up and remember, I'll be stuck in this pergatory we call LYME DISEASE

Thanks though. It's a nice thought.

When you did Zhang's were you on ABX?

Nice quote... but, I agree with "hopingtofindacure".

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +. 
Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/15/2009 8:55 PM (GMT -6)   
Pretty sick! I also agree with hopingtofindacure and feel stuck in a neverending nightmare.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/15/2009 9:46 PM (GMT -6)   
I really wonder if he has tested for this
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 6/16/2009 10:51 AM (GMT -6)   
I was also wondering if he had been tested for LD, etc. His illness started with a twitching pinky finger, and I posted awhile back about mine doing the same thing. D

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/16/2009 11:21 AM (GMT -6)   
HI All,
I read one time that he did test pos for Lyme. I tried to find the post or article but couldn't.

Hopingtofindacure, I did Zhang after I did the Amoxicillin. Now I'm trying Buhner's, I herxed on my 5th day.

Dowa, My symptoms that I actually noticed and didn't try and explain away, started with my right ring finger twitching like it had a mind of it's own.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 6/16/2009 5:55 PM (GMT -6)   
OMG - My thumb twitches like that but only on doxy.

That was SO weird I stopped.
Bit June 08.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/16/2009 10:58 PM (GMT -6)   
i have had a twitch in my index finger a week ago.

He had a pos lyme test? Are u kidding?
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

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