does this sound like LYME ? Thanks

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motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 6/16/2009 10:36 AM (GMT -6)   

Who knows, figured I would see if this sounds like Lyme.

 

Me, 25 male.

 

Live in Southwestern PA

 

Start of problems  2 years ago:

 

Worked in the woods - outdoors and manholes (sewer lines)

 

Never had a health problem in my life.

 

One day, became very sleepy, sick, turned into a bad fever, and had swollen lymph nodes in groin.

 

Was given some antibiotics, kind of helped. However, for several months, I had swollen lymph nodes in my groin, on and off. They hurt when they became swollen.

 

Also, general sickness for months, and months after that, docs couldn’t find anything wrong.

 

Lymph nodes finally disappeared. Then about 3 months after that, I developed a numbness on the left side of my face. Had been numb since. I have had two $7000.00 high resolution, think sliced MRI's, that were perfectly clean, so no tumors or anything. So, again, no answer to numbness. I also had a period where my left wrist went numb too, but luckily that went away.

 

I do get strange sensations- tingling in my body sometimes.

 

1 year after the facial numbness, I developed a breathing problem out of nowhere. It’s just uncomfortable at times to breathe. (60 perfect of the time), it’s not wheezing, or hypervenaltion, just hard to breathe, like pressure and stuff.

 

I have had all heart tests, which have been perfect... I have had a pulmonary function test, which came out good, lung x-ray, CT scan, w w-o contrast, all look good.

 

Again, no answers.

 

Anyone else have these symptoms?

 

I don’t ever remember being bitten by a tick, but I don’t think I would know if I did. I worked outdoors all day long, and in sewers before this happened.

 

Does this sound like LYME? 

 

If so, how do I get tested, and how much does it cost?


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35706
   Posted 6/16/2009 11:24 AM (GMT -6)   
Hi Motox,
Just a guess here, but it does sound like you should at least be tested for LD & co's to me. Numbness in the face is a possible sx of LD (Bells Palsey).
I worked outside for many years training h orses. Of course I had to give that up as my fatigue & pain got worse.
When I was about your age I ended up bed-ridden for about 3 months, myself. It was definately the pits!!! I have had nothing but issues ever since, no real breaks. 1st one thing, then the next.
I would suggest you find a good LLMD to test you - they are about the only ones who can order the right tests & then read the results right!!!
There are several Lyme sites that will help you find an LLMD near you. How near all depends on where you live of course - the closest one to me is a 5 hr drive 1 way, so I can't go to him any more. It's just too hard on me.
Good luck!!!!
- Traveler


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/16/2009 3:12 PM (GMT -6)   
Email stephanie@turnthecorner.org say u need a lyme doc near u give her your area she will send back some near u. What is so frusterating is that lyme is an endemic but no doctor who isnt a lyme doc believes that nor knows how to look for it. Dont let them give you a simple lyme blood test that shows nothing and some would say you should have a SPECT scan of your head for the function of the blood and things not the physical features like an MRI although some lyme patients have lesions and swelling. I believe i have hypercoagulation from lyme
Which isnt nec shown in MRI.
-Lyme can give you a regular body temp of 96 97 instead of 98.9
-Also a low whit blood count is possible-
-Lyme is hard to test for because it supresses your immune system so current tests look for antibodies of borrelia burgdorferi (the bacteria that is lyme)
If your immune system is low u dont produce many antibodies to show up un the bit of blood they catch from u-they may move out of your blood into tissues
-Lyme hides in so many way from the immune system also so it may not be recognized either bu your immune stem either. It will go inside your bodies cells so many scenarios it is unbelievable.
-Lyme has a gas surrounding it as it swims around it may go into your tissues and as a immune system killer cell goes after it it cannot get to it in the tissue but it is still attacking the gas around it therefor attacking your tissues making it an autoimmune disease.
There are other reasons it is anautoimmune disease but that is a big one.

- You are lucky to be in a powerful state if you have Lyme I am right next to pensylvania but in ohio it takes me a half hour to get to my Lyme
You need a western blot sent to igenex in california if you want to get tested it is the best lab for a western blot.
Lyme is hard to test for so a clinical diagnosis may be the only reliable way at this time,
-Also lyme effects everyone differently, you mayor may not still have it even if your symptoms dont sound like everyone elses
-Lyme can be passed in other ways besides from a tic, biting flies,mosquitos,sexually,blood transfusion because it is hard to test for and isnt screened out, there are other ways, also.
Sometimes a bit is never noticed but the bulleseye rash appears.
-Also you may still get Lyme even if the rash does not appear after a bite.
-You will face oppostion if you talk to a docter who isnt Lyme literate. So it is worth it to be seen by a Lyme Literate MD LLMD if you think u have it. They are the only people whgo really know aht is going on w this.
-also if Lyme is left untreated it can produce, Parkinson's,MS,Alzheimers,And many other diseases with no known cause or origin.
-It can also be passed on from mother to child.

Post Edited By Moderator (Traveler) : 5/18/2014 10:25:48 AM (GMT-6)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/16/2009 11:01 PM (GMT -6)   
bmp
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/18/2009 11:44 AM (GMT -6)   
...
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

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