help for a teenager

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lymelight3
Regular Member


Date Joined Jul 2006
Total Posts : 151
   Posted 6/18/2009 5:53 AM (GMT -6)   
I am writing on behalf of a friend. Her 15 y.o. daughter is very sick. Completely paralyzed, on a ventilator, being fed through a g-tube. She has what appears to be the Bartonella rash and has tested positive for bartonella in the past. She initially had a numb arm and it has progressed to complete paralysis. The daughter is at home, not in a hospital and they are in need of finding a LLMD to come to them. One doctor has offered at a cost of $10,000, which is unreasonable. If anyone has an idea of where they could get help PLEASE let me know.

God Bless!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/18/2009 6:01 AM (GMT -6)   
Lymelight,

Oh my gosh! How terrible. I'm so sorry this child has to go through this. There is a forum you can post to that will give you a doctors name that is closest to where your friend is. I don't know the name, but I will keep this post bumped up for you so that someone else can post it.

You are a good friend:). Good luck with everything.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/18/2009 11:36 AM (GMT -6)   
lymelight3, your a rear friend indeed. i will pray for you and them to find someone soon and better days ahead. it is a sham this is happing to this child. i cry just thinking about it.
   RD
                                                                                                                 
 
still looking for answers
 


lymelight3
Regular Member


Date Joined Jul 2006
Total Posts : 151
   Posted 6/18/2009 9:06 PM (GMT -6)   
Thank you all for your kind words, information and prayers. I will forward the website information to her so she can take a look. I will keep you all updated and hopefully we can get this precious child some help.

God Bless you all!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/19/2009 12:13 AM (GMT -6)   
There is another site to ask for a doctor. I think Veronica knows. I will ask her.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/19/2009 1:13 AM (GMT -6)   
Lymelight,

Email Stephanie@turnthecorner.org and ask for the closest doctor to where your friend lives.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4284
   Posted 6/19/2009 5:21 PM (GMT -6)   
Hi limelight3,
 
You are such a wonderful caring person!  If you would like additional information to help your friend's daughter, please e-mail me.  
 
I will be keeping this girl in my prayers,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/19/2009 8:05 PM (GMT -6)   

lymelight3, where is this teen located? 

There are some great suggestions here.  I also suggest calling International Lyme and Associated Diseases Society (ILADS).   Their contact information can be found at http://www.ilads.org/contact/contact_ilads.html

My heart goes out to this girl and her family.

 
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