HOly Crap, i'm freaked out that i might have parkisons

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james from missouri
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Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 6:10 PM (GMT -6)   
the more and more i think about it, i've developed a shaky thumb on my right hand, its like a muscle spasm on my palm which makes my thumb twitch here and there, pretty much non stop all day, espically when laying down. and recently i've had the symptom of hard to speak or talking very light. i'm freaking out, i have so many symptoms of everything. i will sound like a freak when i go to the doctor.. he might as well put me in the mental house..

not again
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Date Joined Jun 2008
Total Posts : 264
   Posted 6/20/2009 6:15 PM (GMT -6)   
Hi James, I have twitching in mt thumb and everywhere. Mine also goes numb alot. I too have speech problems sometimes words wont even come out of my mouth. I slur and stutter at times also. I had a post on this a week or so ago. try not to panic to much. Are you going to a lyme dr?

james from missouri
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Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 6:48 PM (GMT -6)   
no, i'm not going to a lyme doc yet, i'm just going to a reg doc on monday to get tested through the WB test first, i'm seriously wanting to do a mri and cat scan also.. i have some facial skin problems also, my right thumb twtiches, like i said the last couple of days, its hard to walk a decent pace or even it seems like it takes a while to talk, i'm talking softly.. this is wierd, am i going crazy or what!!

not again
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Date Joined Jun 2008
Total Posts : 264
   Posted 6/20/2009 6:52 PM (GMT -6)   
No I dont think you are going crazy. Lyme has so many symptoms. and most are scary. Do you have a Lyme Dr in mind that you are going to go to? Keep in mind that the tests are not always right. Sorry if you know that already. I have not had a chance to read your other posts yet.

james from missouri
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Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 6:55 PM (GMT -6)   
yeah, i heard about the WB test having alot of false negatives.. i'm the type of person though, i will not leave the doc office without something. i have a ton of info for every doc i see, most think i'm overeacting, which drives me crazy, but this time we are moving foward with this, and i'm going to figure whatever i have out. i'll even have him set me up with a nero to check for parkisons.. i don't really care, i had a small bruise like circle on my foot, i didn't know if it was a tick bite or a bruise, i just took it as a tick bite.. it could've been a bruise or another bug bite, don't really know.. i'm just freaking out here..

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 6/20/2009 7:00 PM (GMT -6)   
Well I hope that everything works out. You are not over reacting. You need to figure out what is going on no matter what it turns out to be. I have had this for 10 years. It stinks. Hang in there.Feel free to e mail me as well. You just click on the email tab next to my name.

3whiteroses
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Date Joined Jun 2009
Total Posts : 184
   Posted 6/20/2009 7:08 PM (GMT -6)   
Hi James -

I understand your panick...when you start twitching and spasming it feels so weird. I get twitching in my face so bad and at times my face feels like it does not want to move. When this happens I look in the mirror to make sure I can still move my face.

I have had episodes where I go completely numb and my heart starts beating really fast. When this happens I feel disconnected. I was completely convinced that I had some terminal illness that was going to kill me.

After I had my mri and blood work the only thing that was positive for me was Lyme...Yes it is hard to believe that this can cause all this horrible symptoms, but it does. It is so easy to feel like there is more to it...I still sometime worry did they give me the correct diagnosis. When I feel like this I just look at my positive WB test and I know the lyme is making me sick.

Once you get all the testing done you are going to feel relieved....Just knowing what you are battling helps mentally.

Hang in there and get the testing as soon as you can. Also, go and see a llmd.

Regards,

JELAINEP
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Date Joined Sep 2007
Total Posts : 2017
   Posted 6/20/2009 7:32 PM (GMT -6)   
This past Monday I had my latest visit with my LLDR. He asked if I had a tremor in my rt hand.... my husband and I both answered "yes" st the same time. I know I have LD, I have been tested for EVRYTHING else. Please, for your peace of mind, and a correct diagnosis, be tested for lyme Disease.

All the best.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +. 
Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


Razzle
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Date Joined Aug 2007
Total Posts : 4399
   Posted 6/20/2009 7:48 PM (GMT -6)   
James,

I had whole body shaking for 10 days a couple summers ago, was really strange and freaked me out too. But then it just stopped on its own. This was prior to my Lyme diagnosis when I still didn't know what was going on. The doctor sent me for an MRI and EEG (measures brain waves, detects seizure disorders) and both were normal. Now that I know I have Lyme, it doesn't seem so outlandish that I would have such strange things going on, but I sure was freaked out at the time. Good luck at your doctor's appointment coming up. I hope the test tells you something informative...I had 2 WB tests that were negative; it was only after my gut decided to stop working (known Lyme symptom) that I finally got a CDC positive on the Lyme WB.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


james from missouri
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Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 8:55 PM (GMT -6)   
hey guys, thanks alot... i made a list of all my symptoms that i will be taking to the doc on monday, they are long!!! Will i get the WB test results back that day or do i have to wait? What do i do if the test comes back neg? i will be upset probably.. What steps do i need to take then. I don't want to leave without them finding something, i know that sounds horrible. But i know something is wrong!! i'm a cautious person, but there is no way someone like me can go from working 10hrs everyday at a stressfull job to running 4 miles everyday, then all of sudden on bed rest the next day which has lasted for over a month and a half.. like before, no one in my family thinks i'm sick, they say you should have a fever or be vomiting or have swollen lymph nodes or something.. I said yeah, i'm not virus sick, i'm sick to where i feel like i'm disabled, and now muscle twitching and it takes everything for me to speak a sentence in my normal voice. And i haven't had any chest plhem.. or been out yelling and screaming all day..

My thumb doesn't jump around to crazy, its just like a muscle spasm in my right palm that triggers my thumb to quiver or tremble some and i can feel it pretty much when i'm laying down or if my hand is below my heart or if i bring it up in front of my face and look at it, then it starts to tremble in front of me, my left hand stays calm.. Michael J fox is amazing, i just watched some videos, which gives me hope for the disease.

How is Parkisons diagnosed? this is a mystery to me..

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 10:22 PM (GMT -6)   
^^^thanks. i'm in the not knowing phase of what is going on with me, i'm just going off of a circle type bruise with a clear center after i found a tick crawling around on me 5 days earlier. So i went to the doc and gave me 3 weeks of doxy, and the meds are making it worse. after the ELISA screening and if it comes back neg. I don't really have the money for a LLMD right now. the one everyone goes to here is in Springfield MO and is 650 just for the first visit. i'm just saying if i do the blood work mri and cat scan and it comes back normal. It will look like i'm crazy!!! i'm this close to losing my job, my G/F and other friends are thinking i'm losing my mind.. this is nuts!!! it seriously feels like i'm 70 years old, i mean my 80 year grandma gets around better than me.. its really sad..

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 6/20/2009 10:39 PM (GMT -6)   
James,

If you would come to my house and actually see what I go through with the twitching, it would probably freak you out. I used to have whole body tremors. They were very scary. I had them off and on for two years until they finally stopped. Now, I have the twitching all over. I have it in my thumb too. When it starts, I show my husband because it feels and looks so weird. It just moves on it's on. Sometimes, the muscle jerking is so bad that my whole hand flies up uncontrollably. My head jerks to the right on it's own too. It is very scary. I told my doctor and he said it's because I have a war going on inside of my body with all of the die off and toxins.

Anyway, I just wanted you to know that you are not alone. I have the speech problems sometimes too. I hope you find a good doctor that can figure out what's going on.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 11:06 PM (GMT -6)   
if you lived within a couple hundered miles i would come see.. no one around here really has this disease expect for one friend, but he is basically cured for the most part.. i don't bother him much, because who really wants to hear about something they had that could bring back some bad memories.

the twitching was basically the last straw for me to seek medical proof of what is happening with me.. i was going to blow everything off and just continue doxy until i ran out and possibly ask for another 3 weeks of treatment, but i need some proof of what is happening with me. My mind needs to rest regardless of the outcome, i need it!!

i thought about posting a youtube video of the shakes and twitching to show everyone...

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 6/20/2009 11:11 PM (GMT -6)   
I thought about video taping myself going through treatment but I don't think I could do it. Most of the time I am in bed in so much pain.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 11:24 PM (GMT -6)   
do you take and sedatives? like Valium before bed or do you just wing it? i started to take some Valium but i don't think my body likes it, it works great for going to sleep, but i wake up anxious within 4 hrs

veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 6/20/2009 11:29 PM (GMT -6)   
James i hoope you are getting your western blot through igenex because if you are not you may be waisting your time and money. I believe you need to see a Lyme doc . Have you made an appointment email stephanie@turnthecorner.org tell her the area you need a LLMD she emails u back w some nearest u.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 6/20/2009 11:29 PM (GMT -6)   
ajmes i have the same thing in my right thumb. and it is a lil scary when you dont knwo the reson why. i was tested only after i had a MRI. showing i had lesions on my brain. plus my dog has lyme. so i asked to be tested and sure enough it came back IgM positive. it took about 3 weeks b4 i got my test report back from my Dr. and the MRI report took a few days to get back. if you do have 1 tho, make sure you get a copy of the dic along with the writen report.

i wish you all the best.
   RD
                                                                                                                 
 
still looking for answers
 


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/20/2009 11:34 PM (GMT -6)   
rottendog, i had my dog tested for lyme a few days ago, they had this little device that they put blood on and if the color below the blood spot turned blue it was neg, which my dog was.. i'm not sure what the heck it going on.. my dog i thought for sure brought the tick in with him, because i let the little guy sleep with me.. i'm so much of a dog lover that never thought that the dog could cripple me..

RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 6/20/2009 11:52 PM (GMT -6)   
i found out my male had lyme when i did his bi yearly heartworm test. found out the test covers 3 things now. i am sure we both got infected around 2000 to 2002. also dogs are a lot more able to fight it then we are, they have better anitbodies to fight with. he was treated for 1 month then tested again 3 months later. he still tested posivite but it was low. vet stated his anitbodies was fight it off now.

i love my babies to the point ticks or no ticks i will not give them up or kick them out..lol
just use a good replent for them. my female who is almost 3yrs old now, has never had a flie or tick on her.
   RD
                                                                                                                 
 
still looking for answers
 


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/21/2009 12:00 AM (GMT -6)   
yeah, i use frontline every month, he has had some type of rash or lesion on him, which triggered me into the vet and i just thought about lyme since i had a tick on me crawling around in my sleep. now he is wearing a lampshade and on antibiotics for 2 weeks. i feel sorry for him.. i'm with you, i wouldn't kick my dog out of bed, ticks won't stop me..

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/21/2009 12:06 AM (GMT -6)   
james have you found the list with all the sx of lyme? if you have a printer you can print it off and check all you have to take to your Dr. appointment so you dont foreget anything. this is what i did. it helps
   RD
                                                                                                                 
 
still looking for answers
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/21/2009 12:08 AM (GMT -6)   
James,

I take Ultram for the pain and it also helps me sleep. I sometimes sleep too much. It also calms me down alot.

about the tick...Frontline won't repell ticks from your dog. It will only kill the tick IF the tick bites the dog. It is possible the tick bit you instead of the dog.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 6/21/2009 6:13 AM (GMT -6)   
James - You are possibly having a reaction to the doxy you're on. It definitely makes my thumb twitch and it is really a scary symptom...

Even if one has something like Parkinson's, which folks say is a long road diagnosing, if there is anyway you could not worry so much about it, you'd be that much ahead of the game.

I am a worrier just like you. I know that worry is worse than any disease we could imagine.

Keep looking for answers to restore your health. You're on the right path.

We're you able to give magnesium a try. It's good for cognitive and twitching and heart issues according to Dr. B's guidelines.

Dr. B has healed people of chronic Lyme and he's had it himself. He treated many in what folks claim are the endemic regions (New York).

http://organizedwisdom.com/helpbar/index.html?return=http://organizedwisdom.com/Dr._Joseph_J._Burrascano_Jr&url=www.ilads.org/burrascano_1102.html

is a link to his guidelines.

Let me say one more thing as I think everyone here will agree.

Lyme disease treatment is no walk in the park.

Some say treat the co-infections first (particularly in regions where they are known to be prevalent).

Please hang in there James. I think there's an LLMD if you can get in to see him ...Dr. Crist

http://www.drcharlescrist.com/contact.htm

First you need to know though, is this Lyme or something else?

Knowing what you got will help you start to relax and begin coping so you can start healing.

Please don't worry too much until you know what you got.

Cognitive behavioral therapy can help some. CBT works on everyone as we all naturally thinks the worst. And the worst is not always the case. And then, if by chance we find out the worst, but we know there's a chance we will heal anyways, we think, but no one else has or only one person has beat those odds. Why can't we be the ones to beat those odds? CBT challenges negative feelings and thoughts. It's worth trying! It really works.

So the next time you think the worst without knowing for sure, just "don't go there". Distract yourself with what you love. Nature. Even if it's pictures on the Internet of the Grand Canyon right now. Or if it's just gazing out your bedroom window. Distract yourself from those thoughts and feelings.

You can do this James. And you will get well. Keep the faith. Keep praying.

Take care,

Hoping
Bit June 08.


Deejavu
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Date Joined Aug 2005
Total Posts : 4296
   Posted 6/21/2009 6:25 AM (GMT -6)   
Hi again James,
 
First of all, I don't believe Parkinson's really exists in my opinion.  It's just another name for a disease that has an underlying cause such as lyme.  I also believe that Michael J. Fox is really suffering from lyme as he has had lyme before and perhaps he was not treated properly. 
 
If you can't do the detox baths, can you take a magnesium supplement?  Lack of magnesium causes twitches and other problems.
 
Look up foods that contain magnesium as well.  
 
Hope you feel better,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/21/2009 9:25 AM (GMT -6)   
i have slept pretty good the last 2 days, usually i'm at the crack of dawn. but i've been able to relax a little better.. maybe because i know i have a doc appointment and we are going to get to the bottom of this.

i saw dr. C was in springfield and in fact i do have lyme i will be making a appointment with him soon after.

it is just scary, everyone knows michael j fox started with a twitch one day and thought it was wierd, same thing here.. who knows if he started treatment the next day or was any kind of treatment for something else.

i started taken mens health one a day vitamins. but yesterday i went to KFC and loaded my system with chicken which has alot of magnesium. and actually my thumb didn't really twitch so bad after a couple of hrs of eating the chicken. who knows. but after waking up today, it has started up again.

i'm a very positive person who sees a future usually and never complains about the small things. before this has taken me over, i haven't been to the doc prolly since 2003 for a fever i had then, i haven't been sick since then.. now i'm going to the doc every 2 weeks.. but hey, regardless of what people think around me, i'm not crazy, i'm just cautious.

as far as the detox baths, i might need to try just to do the shower style detox, where i'm living we only have stand up showers.
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