Emily update and graduation

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mom2em
Regular Member


Date Joined Sep 2006
Total Posts : 74
   Posted 6/21/2009 5:18 PM (GMT -6)   
Well it's been over a year very since I've posted. Emily began getting sick 6 years ago and it took 2 years to get the diagnosis of Lyme. Found a LLMD and over a year of treatment. Emily was home schooled during her 10 and 11th grade and last summer. This year she was back in school full time and on Thursday Emily graduated and is planning to go off to College in August. I am very proud of how hard she worked to earn her diploma.

She no longer has joint pain, severe fatigue, her moods are stable and the meds for mood stabilization have been greatly reduced. Her anxiety is also much better and she no more night sweats (just me now). Her stomach issues are better as well. In general she is 90% better then she was 4-6 years ago and now lives a full life. The last year has been a real blessing to see her go from home schooled and lying sick on the couch for years to walking on stage and getting her diploma. No dry eyes in our family!

She still has neck pain and continues to see a Chiropractor every other week. She refused to take more antibiotics because she felt they were making her worse, we tried going with natural herbs and supplements for a few months after abx.

She continued to get migraine headaches several times a week until this winter. I took her to Jefferson Headache center, they were just wonderful, when Emily wrote 'Chronic Lyme' on her medical history the doctor said that he has seen patients with Lyme who suffer with migraines even after abx treatments. He changed some of her meds dosage and gave her a script for an anti-seizure med which we gradually increased over a month. We saw immediate improvement from several migraines a week to 1 every week or two and during the last month she hasn't had one migraine. He also recommended mega does of Vit. B2 so she takes 350 mgs of Vit B 2 now as well.

During the college search we agreed that Emily would stay close to home so I'll be able to see her and get a sense of her health. She will be living in campus housing.

I was reading the posts today and checking up on people and I wanted to let the newbies know that it is a very rough road to recovery and everyone is different but from our experience you can get better and a life back--maybe not 100% but for us we're happy with how things are now and I hope that Emily continues to stay as healthy as she is now.

Many people in town know what we've been through and I'll get asked who our LLMD was they want to share what they are going through and it all brings back the years of frustration, doubt, visits to specialist...

-Robin

Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 6/21/2009 5:29 PM (GMT -6)   
Wow! Congratulations to Emily and you also for all that it took to get her to where she is! Good luck with the continued education and healing!

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 6/21/2009 5:42 PM (GMT -6)   
CONGRATULATIONS!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +. 
Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 6/21/2009 6:40 PM (GMT -6)   
Thanks so much for posting such a positive message and giving all of those suffering so much hope. Best of luck to your daughter and congrats on the hard work!!!

sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 6/21/2009 10:10 PM (GMT -6)   
Robin!  I am Sooo thankful that I jumped on for a minute and found your update on Em.  Heth, Bear and I are so happy for Em.  Congratulations!!   We pray and hope with you that this year goes well.  Heth said to tell Em that if she is on FB, she can friend request her.  In the meantime, would you please email me so that we can stay in touch? 
 
What a beautiful blessing to share.  TY for coming back to encourage those who have since come along and who are in need of that same hope while they wait and battle..
 
Blessings,
~d
Sojourner
 
The best way to teach people is by telling a story. ~K.Blanchard
Keep telling your story and watch the tide turn!
God loves with a great love the man whose heart is bursting with a passion for the impossible. ~WmBooth
www.stylebyheatherrose.com


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/23/2009 9:42 AM (GMT -6)   
Robin,
It's so great to hear GOOD news for a change! Congrats to the Grad!
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009

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