new sx. is this the begining of the end?

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/21/2009 10:20 PM (GMT -6)   
the other day i put in a post about my head and eyes. the presure was awefull, felt as if my eyes was bugging out, hard to see like looking in a smoke fulled bar.
 
this eveing i had another new thing happen to me. my head was fuzzy like i was triping on something. my body felt like it was made of rubber. it only lasted for a few hours but that was a few hours to long.
 
my question is. is this the start of brain issues? or is it something else? anyone every go thro this? if so whats the cause of it?
 
if this is the start of brain issues, reson why i stated the begining of the end as its the only thing i had left that worked right. my body is shot from lyme now.
 
now i am sweating big time. lord how i hate lyme and doctors too now


   RD
                                                                                                                 
 
still looking for answers
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 6/21/2009 11:18 PM (GMT -6)   
Brain/cognative issues are not the begining of the end. Some things help increase concentration ability in spite of Lyme, such as practicing concentration. I play Sudoku and do crossword puzzles, for example. Also, there are herbs like Ginkgo, Huperzine A, etc. that can help. And I also find B Complex vitamins, especially Vitamin B12, helpful for brain function. There are a lot of free online puzzle websites. B vitamins are also inexpensive for the benefit that they can do.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/22/2009 12:51 AM (GMT -6)   
thank you razzle, i do play spades online competively, i belive this helps to keep my mind working. i am also taking B complx 2x day. what i was wondering is this the begining of Brain/cognative issues? i did noticet the other day i forgot how to spell visit. i just couldnt for th elife of me recall how its spelled.
with my dyslica i spell everything by mimory or how it sounds to me. its the best i can do. if i lose this then i lose my way to commuate with ya'll in here too. i'm not sure i would be able to handle that right now.

this forum is my only way of getting info and i have made friends here. plus if i am loseing my mind who will i be able to fight for treatment. no one else is able to help me. i have to help myself.

i'm scared right now.
   RD
                                                                                                                 
 
still looking for answers
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/22/2009 1:03 AM (GMT -6)   
Rd i ache for u what do we do w u?
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/22/2009 1:04 AM (GMT -6)   
lyme related or not, as i'm still in the unkown phase.. i have experienced alot of dizzness and wooziness.. almost like i'm not actually living in my body for a few hrs, hard to explain, but i push through it and it is scary, and after i'm done i'm exhausted.. i'm not my normal james anymore, this or something else has taken my life from me. my goal is to find the root of everything and go from there, if i have to pay out of pocket for the best LLMD i will.. i don't care, my life is to great for me to deal with this everyday..

on a positive note, since on doxy, the light headness has gone away, but new symtpoms are coming up, like shaky hands and alot of muscle aches and spasms ..

good luck with you, we will pull through this.. i have a gut feeling

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/22/2009 1:30 AM (GMT -6)   
i am on doxy w the exact same symptoms james
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/22/2009 1:35 AM (GMT -6)   
V, in a way its nice to know i'm not alone in the lyme v Dr. battle. this forum gives me comfourt in a way i can not explane. my eyes seems to be getting worse and there isnt a dang thing i can do about it. its all in your head statments keep poping up. well its in my head along with everywere else i have now.

can someone kidnap there LLMD and bring em to my part of Tx....lol

james i know i said this b4 to you, your able to see a LLMD and this is who i would go to if i was you. reg Dr.s as a rule do not understand lyme. if your just newly infected you have the best chance to get propper treatment and cured. unlike so many of us who have had it for a longer time.

our battle is a long one. for some longer then others. in some cases it depends on treatment co-infections and Dr.'s willingness to help. as in my case the doctors here do not belive in lyme. therefore i am SOL. for the time being that is. my best hope is my disabltiy goes thro soon and i can aford to travil to a LLMD then.

till then i kinda feel like the banana left to rot, as lyme is alouwed free rain over my body.

wishing everyone well soon
   RD
                                                                                                                 
 
still looking for answers
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/22/2009 1:50 AM (GMT -6)   
Rd I believe if you go to an initial apt w a lyme doc u may be able to them over the phone afterwards. What about that?
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/22/2009 1:53 AM (GMT -6)   
thanks for responding on that thread. Im sick of them labeling me as doing something wrong. its like pick your battles that wasnt one of them, really
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/22/2009 1:55 AM (GMT -6)   
so far the closest 1 i have found is about 7 hours 1 way. and right now my car is 30 yrs old i dont think it would make it if i had the gas for it..lol plus they wouldnt take me on my looks lol
   RD
                                                                                                                 
 
still looking for answers
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/22/2009 2:14 AM (GMT -6)   
Well darling here is me last suggestion,, Ask someone to make a fundraiser for you. You do it at one of those private clubs like we have whats called the Moose lodge or amvets , those places lend there club house for thouse kinds of things or a cheap hall. Maybe a spaghetti dinner plan it like two months ahead and find people to donate baskets then buy a roll of tickets to use for winning the baskets , you put a paper bag infront of the baskets people buy the raffle tickets to put in the paper bags in front of the baskets they want to win. and they buy spaghetti dinner. And the proceded get you a bus ride to doc, doc apt. expenses , antibiotic moneys, the trip home, and possibly hotel fare and food. so u estimate what that would all be to see how big the raiser has to be.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

Post Edited (veromia333) : 6/22/2009 12:02:45 PM (GMT-6)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 6/22/2009 5:43 AM (GMT -6)   
RottenDog said...
thank you razzle, i do play spades online competively, i belive this helps to keep my mind working. i am also taking B complx 2x day. what i was wondering is this the begining of Brain/cognative issues? i did noticet the other day i forgot how to spell visit. i just couldnt for th elife of me recall how its spelled.
with my dyslica i spell everything by mimory or how it sounds to me. its the best i can do. if i lose this then i lose my way to commuate with ya'll in here too. i'm not sure i would be able to handle that right now.

this forum is my only way of getting info and i have made friends here. plus if i am loseing my mind who will i be able to fight for treatment. no one else is able to help me. i have to help myself.

i'm scared right now.

I don't know what to tell you - my cognitive issues seem to come and go, sometimes I can think just fine, other times I am totally lost inside my head and befuddled.
 
Sometimes, if I'm having trouble writing a post, I'll just put down some words and ideas in a Notepad document on my computer and save it for later.  Then when I can think clearer again, I'll open the file and work on it again.  I've done the same thing with ordinary paper and pencil too...  Someone once said to me that their memory was only as good as the paper the info is written on...so maybe try to get a notebook or use Notepad on your computer and try using that to help you remember things and organize your thoughts.  And I don't think people on here care so much about perfect spelling - so just do what you can and call it good, ok?
 
For the anxiety, I have found deep breathing to be helpful.  Also I find playing the computer games helpful for clearing my anxiety and helping me focus.
 
Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/22/2009 11:37 AM (GMT -6)   
V thats a great idea thank you so much, i will be looking into itand seeing what i can come up with as in time place and soforth

razzle thank you also for you advice. i do and will take it to heart.
   RD
                                                                                                                 
 
still looking for answers
 


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 6/22/2009 10:54 PM (GMT -6)   
well the issues are getting more frinquit and lasting longer today. at 1 point i felt as tho i had bugs crawling in my forhead. lost my vison for lil while and this frecks me out. i do not want to lose my eyesight. i called and made another appointment to the ID. maybe if i bug em enough he will treat me..lol

someone plz send you LLMD to Tx for a week , hehe
   RD
                                                                                                                 
 
still looking for answers
 


judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 6/23/2009 7:55 AM (GMT -6)   
Hi Rottendog,
I remember these symtoms, of not being able to say what I want, spell or do simple math, my kids go to school on Sundays one hour later than every day, I could never figure out one hour later, its seems funny now but was frustrating than, it was something that came and went I would say it was a herx and it is all gone!I am back to full time work and take properly care of our large family, hope this helps
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