Hi lymelady16, welcome to the board!
How long have you been sick? Are you being treated by a Lyme knowledgeable doctor? What oral meds and doses are you taking?
You may be familiar with this already, but below is a Lyme symptom list. You can have any combination of symptoms.
Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
People can experience new symptoms or a worsening of existing symptoms during a herx reaction. As the bacteria die, toxins are released making you feel worse. During treatment it is important to document your symptoms daily. One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
How long will you be on Rocephin? In case you don't have one yet, there is a cover you can get for your PICC so you can shower without getting the site wet. One place you can get one is Brown Medical https://www.brownmed.com/Products/StoreProductDetail29.cfm?StoreProductId=99 You can also check different pharmacies and/or hospital supply stores.
Do everything you can to strengthen your immune system such as eat healthy, drink a lot of water, take appropricate supplements, detox, get enough rest, etc. It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.
Good luck with your treatment!
Hi lymelady 16. It is great that you do not have co-infections.
Do you have a cover for your PICC line? They come in handy so you can shower without getting the site wet. If you don't have one, one place you can get them is at Brown Medical https://www.brownmed.com/Products/StoreProductDetail29.cfm?StoreProductId=99 Some pharmacies and hosptial supply stores also have them.
Documenting symptoms really does help. Sometimes it can feel like you are not making progress, but when you look back you can see that you are.