CEFTIN only 500MG.. im new to all this.. is that enough?

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dejavoodoo
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/22/2009 12:36 PM (GMT -6)   
just been diagnosed with lymes.. i think ive had it for way over 10 yrs.
 
lyme doc has me on 500mg ceftin .. thats all .. is that enough? i hear ppl are on lots more. i have a pretty serious case too, some of the nerves in my spine arent working properly and my vertebrea and joints are totally screwed  shakehead  
 
im also gonna take
carnivora
fluconazole 150mg every three days
oreganol
and some stuff from Jernigan Nutraceuticals
 
im worried im not hitting the lyme hard enough.. i want to be on abx for as short a time as possible
 
any suggestions/help/advice?
 
many thanks xxxx :-)

dejavoodoo
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/22/2009 5:06 PM (GMT -6)   
anyone?

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/22/2009 6:41 PM (GMT -6)   

Hi dejavoodoo, welcome to the board!

I am sorry you have been sick for so long.  below is a Lyme symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  Have you been tested for these?

I agree that 500 mg of Ceftin is a low dose.  A higher dose is typically prescribed along with another antibiotic.  Are you seeing a Lyme knowledgeable doctor?  If you need a doctor recommendation, you can email me.

Are you aware of the Jarisch-Herxheimer Reaction (herx)?  Often when people who have Lyme take antibiotics their symptoms get worse or they get new ones.  When the antibiotics kill the bacteria, toxins are released making them feel sicker.  Although it can vary individually, many people experience this at the beginning or change of treatment and every four weeks.   During treatment it is important to document your symptoms daily.  One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10.  Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.   He discusses antibiotics and doses starting on page 18.   I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.


dejavoodoo
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/23/2009 5:50 AM (GMT -6)   
hey thanks for the replies .. yeah im in the u.k .. i worried about the small dose of ceftin .. i want this lyme OUT OF ME ASAP!! :(

i have just about every symptom listed there :(

im trying to find a doc in the u.s.a that will do phone consultations? any ideas? im seeing a doc here how does treat chronic lyme but i dont think hes being aggressive enough with this 500 mg ceftin

i finding the canivora good.. when i take it i get a kind of fever for 30 mins or so .. i think its making me herx
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