Any else have HGE? being treated?

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springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 6/22/2009 5:06 PM (GMT -6)   
I also tested positive 1:320 for HGE.  Is this a high reading?  Does anyone else have and what are your symptoms and are you being treated.  At present I am only on amox 3000 mg but understand that doesn't treat HGE.  Thanks so much.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/22/2009 6:23 PM (GMT -6)   

Hi springsjean.  I have had HGE.  From what I understand, Doxycycline is the best antibiotic for it.  In the cases it does not work, I believe Rifampin is used.  If a positive is greater than 1:120 (I am going from memory) then 1:320 is high.

Are you seeing a Lyme doctor?  Is he/she planning on addressing co-infections first?  Do you have any other co-infections?

 

springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 6/22/2009 8:33 PM (GMT -6)   
Thanks ticker. Went to first LLMD didn't like him at all. He ran the co-infections test. I then went to new dr. who was recommended by lyme assoc. He hasn't even addressed the co-infection but seems to think 2 months of amoxicillin and I'll be fine. I did ask him if he believes in chronic lyme as I am over three years undiagnosed. He said he believes it to be rare. Made an odd comment about using a "real lab" instead of the "fly by night ones used" (Igenex, etc.) by the llmd and ordered new western blot thru lab corp. So I gotta be ready when I go back next week with all my ammunition if you know what I mean.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/23/2009 6:27 AM (GMT -6)   
springsjean, you may want to get another opinion from a Lyme doctor. 
 

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 6/23/2009 11:35 AM (GMT -6)   
Thanks ticker.  I realize that may be the eventual outcome.  I go back to him next week and will see what he says and then make my decision.  I will also make it very clear to him that I thought he would treat me thoroughly for lyme.   I thought by going with a recommended doctor (BOTH TIMES!) from the lyme association that I would be in good hands but so far,  . . .  I just don't know anymore.  I have lost faith in the medical profession after three years of no one listening to me and at the same time my brother passing away from what could have been a minor illness.  I think it is extremely hard to find a doctor that actually cares about the person anymore.  Horrible to stereotype cause they are out there, I'm just having a hard time finding one.
 
 
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