Hi hopegirl. Have you been diagnosed with Lyme? If so, have you been treated by a knowledgeable doctor?
Some people who have Lyme were first diagnosed with other diseases inlcuding CFS, Fibromyalgia, MS, and ALS. Below is a Lyme symptom list. You can have any combination of symptoms.
In my opinion, the most important thing someone can do to rule out or confirm Lyme disease is to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you ever been tested for these?
If you need a doctor recommendation, you can email me at firstname.lastname@example.org
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.
Sorry I wasn't more clear, yes I was diagnosed last Friday with Lyme. Prior to that I was diagnosed with Fibo 13 months ago but feel that I have had it for atleast 5 years prior to that. At of all the possible symtoms you listed, I have all with the exception of the first one you listed. I was in the hospital 2x's within the last 2 years one for extra beat-palpitations that no one not even the cardio Dr's could explain, then again a few weeks ago with the chest pain and shortness of breath that once again they could not figure out what was wrong. I thought they were running every blood test under the sun, but I guess not because it was not until 2 weeks later that I had came in to my primary with flu-like symptoms and pain the they ran some tests that came back with positive results for Lyme.
Its just hard because honestly I feel like all of these things I've had for some time. My doctor did start me on a course of antibiotics which I take 2X's a day. I also have an appointment to see a Lyme specialist in the beg of July.
I did have Bells P but that was over 11 years ago. No heart problems valvue or murmurs
Post Edited (hopegirl) : 6/25/2009 1:10:32 PM (GMT-6)
Hi Monica. What antibiotic and dose are you taking?
Has the doctor you will be seeing been recommended by a Lyme patient or support group?
Do you ever have night sweats and muscle weakness? These symptoms along with shortness of breath and heart palpitations are hallmark symptoms of the co-infection Babesiosis. Make sure you are tested for all the co-infections.
Good luck at your upcoming appointment!
Post Edited (hopegirl) : 6/26/2009 1:05:51 PM (GMT-6)
Hi hopegirl. What dose of Doxy are you taking? There are some important tips to know about taking Doxy. Do not have any dairy, iron, or magnesium products within two hours of taking the Doxy, or it will not be absorbed properly. If it makes you nauseous, eat something substantial and non-dairy before taking it. Avoid the sun. You can get a severe burn in minutes even when wearing sunscreen. Do not lay down for at least an hour after taking it or you can ulcerate your esophagus. This is very painful. Drink a full glass of water when you take it for the same reason.
Please edit your post (by clicking on the pencil icon) to show just the doctor's initial and not the full name. Doctor names are not posted on the board. Is this doctor with a Lyme treatment center?
Unfortunately, many mainstream doctors do not check for Lyme even in endemic areas.
Thankyou for clarifying that. Appreciate it.
Post Edited (Sherrine) : 6/27/2009 8:56:08 AM (GMT-6)