I am going to try to answer all your questions but brain fog pretty bad just started Flagyl. Yes I believe I have Lyme after 90 days of IV rocoephin and lots of orals 2 years ago all my Lesions were gone about 7 in brain and spine. My MS Dr was shocked. My symptoms have always been so MS typical they do come and go last about 8 weeks, I had 4 bouts of optic nueritus the first year they would last 8 weeks go away and a few weeks later my other eye would go out. I finally started Doxy and have never had full blown optic Nueritus since.
I just worry that for how long it went and how Nuerological it is it may always be a problem.
Onto test results I had to pull out medical notebook I haven't seen it for awhile. I hid it I never wanted to see it again after getting better but here we go agian. I have used 3 different Labs all the same result. Stonybrook, Igenix, and a local Oregon lab. I only had 2 positive IGM bands but that still makes me CDC positive. They eveb called me and stated that I was Lyme Positive in Oregon and they wanted to know my life history.
I have always been IGG Negative band 43kDa present
IGM Positive bands 41, 23
Spinal tap showed
IGG Negative 41 kDa present Lyme
Oligoclnal Bands present
In short what LLMD Dr. K said she suffers from Demyelinating disease of the central nervous system. She requires extensive antibiotic treatment for CNS Lyme. And Ideally she should be on Copaxone due to the lack of interference with host's defense mechanism for relapsing remitting MS. Wow I haven't read that in years so even he thinks I have both.
I don't get it. I cant wait for my appointment in July to see what he says now that was back in 2006.
My last MRI showed about 7 new lesions old ones still gone. I have one in my spine that is active and is causing my legs to not work right. Since starting antibiotics again all the weird Nuero stuff is coming back. Memory, fatigue, mood problems, MS Hug they call it, all kinds of stuff. The leg problems suck I stumble all over and fall. I never thought it would come back so hard.
If none of this makes since ask me agian? it's late.
Finding Peace In This Crazy World !
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007