going back monday for more tests..

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james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/26/2009 11:54 PM (GMT -6)   
i was tested for lyme/encephalitis through the cdc and was neg.. i don't believe them.. but anyways, how should i approach my dr so i can be re tested for babs and bart? He thinks i have mono.. i don't have mono.... getting tested for everything else also, lupus/hiv/ any other of type of blood disorders..

i want a co-infection test, but not sure on how to ask for it or where to tell him to send it to?

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/27/2009 12:02 AM (GMT -6)   
Igenex. go to the site to print out forms. Igenex only!!!!!
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


RottenDog
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Date Joined Apr 2009
Total Posts : 1013
   Posted 6/27/2009 12:28 AM (GMT -6)   
james i dont understand why you dont just go to a LLMD, they can answer everything for you. didnt you say you live close to one?

i wish i lived close to one i would be there in a heart beat.you have all the classice sx of lyme.

sorry i do not mean this to hurt your feelings at all. i just wish i had your options of a LLMD close enough to see.
   RD
                                                                                                                 
 
still looking for answers
 


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 6/27/2009 5:15 AM (GMT -6)   
Did have a western blot done for Lyme??? You need to get those results and post them for us to see. Some bands are very specific for Lyme. I would get in with a LLMD. They can run all the necessary tests. Don't go down the road most of us have and end up with a delay in a possible diagnosis. You want to get better. The longer you wait the harder it is.

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 6/27/2009 5:18 AM (GMT -6)   
Igenex does have the co-infection panel so you can have it done through them. Also you can be tested for mono to see if you have had it. My doc tested me when I was first sick.
 
I know quest also does a bart test but now sure how accurate that one is either.
 
 

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 6/27/2009 8:23 AM (GMT -6)   
James,

Ask him to test you for viruses. When your immune system is supressed from Lyme Disease, you can sometimes pick up viruses that make you feel just as bad as Lyme does. Certain ones that Ive had, make you feel like you have the flu and they "act" just like Mono.

I had 4 viruses. I had Cytomegalovirus, Epstein Barr(many of us get this), HHV6(which is a type of herpes, but Its viral), and I also had herpes simplex 1 which is the normal fever blister.

If you have any of these viruses, you will probably be able to move forward with being diagnosed with Lyme.

Also, ask you doctor to do an NK Stricker CD57 Panel. This will tell you how low your immune system is.

Good luck!
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/27/2009 10:21 AM (GMT -6)   
James, please ask your Dr for a copy of your lab reports. Then you can tell us what the western blot says, plus you will have your results for all the other tests on hand. I liked my PCP a lot, but learned right off the bat that he did'nt even look at all the test results (he was the one that ordered them!), also he had not noticed that the lab neglected to do a test that he requested. You may find something helpful in your labs that the Dr doesn't note. Who knows. AT LEAST let's look at your WB. CDC neg means nothing.
 
We are not Drs, but maybe you/we will note bands in the test that raise suspicion or even point directly to Lyme.


Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/27/2009 4:06 PM (GMT -6)   
how long does it take for igenex to get your results back?

i appreciate everyones concern, i'm really sick, i can barely stand up for 10 minutes at a time before wanting to sleep..

the llmd lives almost 3 hrs away, how long will it take to see him if i call? i'm so sick, i can't wait for longer than a week..

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 6/27/2009 4:29 PM (GMT -6)   
Hang in there James. Did you call the LLMD? Maybe they can squeeze you in on a cancellation. Are you on doxy now? My igenex tests took about 2-3 weeks.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 6/27/2009 4:51 PM (GMT -6)   
i'm on doxy now, but its not working... i'm alot worse than when i started. i'm going in on monday and ruling out other disease and virus first. and send my samples off to Igenex. After i get everything back, and see my results and if something points to lyme/co infections and thats it, i will be calling LLMD pronto.. i just don't like waiting 3 weeks for results..

i need more than 3 weeks of treatment.. i need a lifetime supply.. i feel something else is kicking my butt besides lyme, i just saw the rash 4 weeks ago and i feel this bad already.. something else has come up from underneath and started besides lyme..

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/27/2009 5:02 PM (GMT -6)   
James,

It could be a virus. They make you feel just as bad. I felt like I was dying. It was horrible.

Also, if you are herxing, you can feel alot worse while on antibiotics.

Hang in there James. You're doing good. You'll make it through.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

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