Can't remember when I felt this bad...

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Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/27/2009 9:24 PM (GMT -6)   
Okay, so I've been eating gluten free for three weeks now. Today and yesterday I decided to give myself a break. My brain fog was bad last night and all of my existing symptoms were MUCH worse today. I had to take 3/4 of one of my anxiety pills. I felt like I was completely in a dream...like at any second I would forget where I was...my brain wouldn't tell my hands and legs to do what I wanted them to do quick enough...
 
I'm three weeks into treatment without a noticable herx. Should I assume this is from gluten or is it a herx? I'm so afraid tomorrow will be just as bad. It was almost unbearable...I hadn't been that anxious in a very long time...I'm nervous for tomorrow now.
 
:(
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/27/2009 10:13 PM (GMT -6)   
I forgot to mention that my left leg is heavy again and that had been gone for a couple of weeks now.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 6/27/2009 10:27 PM (GMT -6)   

I understand. Started Flagyl a few days ago. Both my legs are numb, burning and heavy, I walk like a drunk. It's great when I go to the store with my 2 kids and people think I'm drunk.

It's going to get better, right!

 


Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/28/2009 12:47 AM (GMT -6)   
If you stop the gluten again do the symptoms improve again? Might be good to try a longer period of time gluten free before re-challenging...I went 6 months before my first gluten challenge and the symptoms that appeared were quite obviously from the gluten.

Keep in mind gluten is considered to be pro-inflammatory and many LLMD's recommend a gluten-free diet to their patients as part of their treatment for Lyme.

Good luck,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/28/2009 7:53 AM (GMT -6)   

Jendays, to me it sounds like you could be herxing.  Many people experience them every 3-4 weeks.   Are you doing things to detox?

Make sure you are documenting your symptoms so you can see when your herxes occur and how you are responding to the meds.

I hope you feel better soon.

 

 

 

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/28/2009 10:08 AM (GMT -6)   
I am documenting everything, and I am doing detox baths when I can handle them. I had been feeling bad with a steady decline for about three years, but almost exactly four weeks ago my symptoms got INTENSELY worse and a few new ones popped up. I realized this last night and thought maybe it was part of the cycle, but I've never noticed a cycle before. Things just always were worse day after day. It was never a flare here and there. Just bad days. Every day. Since four weeks ago, things were bad for about a week, then slowly got a little bit better but I just figured that was naturally happening and not due to the abx. I still don't know.

I guess it's good that I'm on the abx.

Oh, and if it's not part of a lyme cycle...it could also be because I always feel worse around my period, and that's coming in the next week or so.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/28/2009 10:17 AM (GMT -6)   
Woke up today and I'm already unable to think clearly...I feel completely in a fog...I want to scream WHY..................................?!??!?!?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 6/28/2009 12:56 PM (GMT -6)   

Jendays, I agree it is good you are getting treated.  Many women with Lyme experience a worsening of symptoms prior to and/or around their cycle.  Brain fog can be one of the worst Lyme symptoms.

Hang in there.


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 6/28/2009 1:48 PM (GMT -6)   
Jen, I hope you start to feel better. I agree that brain fog can be one of the worst Lyme symptoms. I also try to document symptoms but still can't make sense out of any of it. I'm glad you're on antibiotics and hopefully things will start to improve soon.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 6/28/2009 1:56 PM (GMT -6)   
Jen,

I'm sure you already know this because you are very knowledgeable but Lyme symptoms do get worse around your cycle. I always felt bad one week before I started. That's why I take the Depo shot now.
2003 symptoms started;panic attacks,anxiety,heightened senses.
2007 Diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence.
2009 Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start,Mepron,Ultram,Thyro Complex 60mg,Probiotics and supplements

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