Hey RD thanks for the advice! I didn't realized my email address was not available. It's been fixed.
Hi LabLady, welcome to the board!
How long were you sick before getting diagnosed? Below is a Lyme symptom list. You can have any combination of symptoms.
It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have been tested for all of these?
You can email me at firstname.lastname@example.org for doctor recommendations and support in Europe.
Are you familiar with the Jarisch-Herxheimer Reaction (herx)? Often when people who have Lyme take antibiotics, their symptoms get worse or they get new ones. When the antibiotics kill the bacteria toxins are released making them feel worse. It can be scary, but it is a sign the antibiotics are working. During treatment it is important to document your symptoms daily. One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He discusses antibiotics and doses starting on page 18. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.
Well, over the past few years I have gone to a phyciatrist for depression, a neurologist for dizziness, an orthopedist for neck and shoulder pain, had a sleep study done because I can sleep for 10 - 12 hours and wake up fatigue, and a hemotologist to see if something shows up in blood tests. I even told the hemotologist about tick bites, but she told me that I would have to go back to my PCP - that she was testing for other things.
A little bit about me:
I raise and train labrador retrievers for competition (AKC field trials), so I spend most of my time outdoors. As a result, I have been biten by MANY ticks - at least 10 times so far this year. None of the above doctors can find anything wrong with me except for "old age" arthritis (I am 61 years old) and possible side effects from some of the drugs I take - which I have been taking for many, many years. Synthroid for my thyroid, Crestor for colesteral, 2 meds for depression and requip for RLS.
However, after finding this forum on Lymes, I think I need to find a doctor that will actually test me for it - since none of the others will listen.