Regular, contracted labs and the Western Blot

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+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 6/29/2009 10:00 PM (GMT -6)   
Most of you know this already, but this is for those that don't realize this and who are struggling w/ negative Western Band results from regular labs.
 
My WB was done by Quest.  Good that it seemed to have been read w/in 24 hrs which is important.  However, this lab did not read or report on 17 Bb species specific bands!  Yet, many insignificant bands were read, reported, and figured into the positive/negative results.  This is completely nonsensical and seems to me to be negligent to the point of malpractice!
 
Does anyone know why they would ignore so many significant bands and report so many that are not significant?  Those who suspect or believe they have Lyme disease, yet tested negative for it, need to realize this.
 
I don't know yet if it will work, but I will ask my LLMD (hopefully tomorrow!) if he can request that ALL the bands be read and reported.


Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 6/29/2009 10:03 PM (GMT -6)   
I think this is just another way to easily tell someone they don't have lyme. I think it's crap, too.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 6/29/2009 10:26 PM (GMT -6)   
Right, LK. Exactly. I responded to you also in the other post about this -- because I am no scientist and did crappy in Biology classes -- I am still searching for any other answers as to if this band means I am currently actively infected and ill. I don't know and cannot find any other reason, and so I have to conclude this means I have Lyme. I know of no other reason.

Denial is probably part of it. At first I was excited about the prospect of having Lyme. It would explain so much of what's been wrong w/ me for the past 2 years, and I figured the treatment would simply be some abx treatment. REading all that I read about the disease, I've made an about face. So those feelings of denial creep in there. I'm sorry I don't know how else to say it.
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/30/2009 1:11 AM (GMT -6)   
The film, "Under Our Skin," and the book, "Cure Unknown" answer at least a part of your question - the part about how the powers that be can create tests to look for nonspecific bands when they knowingly ignore Lyme-specific bands... It is motivated by money. How can one develop an outer-surface protein A (OSP-A) based vaccine if the test looks at that band? You can't if you want to market your vaccine, so OSP-A was removed from the test...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 6/30/2009 1:21 AM (GMT -6)   
You show or do not show antibodies based by weeks. So this week infection may show antibodies for some reason next week no. So antibodies are not left behind from months before , they are very active and as they are produced they are used and leave the body in urine farely quickly. So showing antibodies is active infection and your immune system is doing a good job at that point, as opposed to someone very sick not showing antibodies because the bb is tricking the immune system so well it cant recognize the bb and produce successful antibodies.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

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