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3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 7/1/2009 7:36 PM (GMT -6)   
Not sure if I spelled it correctly!
 
My llmd thinks I have Bartonella based on my symptoms.  I have not been tested for coinfections, the doc did not seem concerned to run the blood work.  After looking at the symptoms I have many, but not all. 
 
Are there a few symptoms that are significant to Bartonella?
 
Can someone tell me if they have been diagnosed with coinfection without having blood work done. 
 
 
 
 

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/1/2009 7:47 PM (GMT -6)   
My llmd diagnosed me before the blood work came back.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 3951
   Posted 7/1/2009 8:26 PM (GMT -6)   
I test negative (via Fry Labs) for all coinfections, but an LLND and an LLMD both have diagnosed me clinically with Bartonella.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1295
   Posted 7/1/2009 8:34 PM (GMT -6)   
My LLMD just diagnosed me w/ bart when he looked at my ankles and feet, along w/ the red spots all over my lower leg. Altho he said the Quest tests for co-infections are worthless, he ordered some for bart, babs, erlich, rocky mt, etc, at my request since my ins will pay. He said otherwise, I'd need about $1500 to get a good co-panel from Igenex and I just don't have it.

3 whiteroses, because of my own bart diag, I'd really like to know which of your symptoms he recognized as bart, as opposed to only lyme? Can you please tell us?
 
And others of you above, can you please tell me the same about you?


Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/1/2009 9:03 PM (GMT -6)   
I was also diagnosed with Bart based on symptoms alone. I did take the test and it came back negative. I had every symptoms except one I think .

Symptoms include bottom of feet pain, Rage, Depression, Anxiety, Panic Attacks. I think these are the more common ones. Im sure someone will post a list of symptoms. There are more.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1295
   Posted 7/1/2009 9:07 PM (GMT -6)   
CajunG, for example, are sore soles and anxiety specific to Bart and not lyme? If they overlap, how does the Dr determine this is Bart, as opposed to just lyme?
Lyme in NC in 1971? Suspect TBI: Fully engorged tick followed by high fever and tonsillitis. Follwed by , lumps on neck,  chronic tonsillits w/ constant low grade to recurring high (104) fevers, severe unexplained neck stiffness and acute neck pain.   Followed by tonsillectomy, urinary tract infections, miscarriage, appendicitis while pregant, chronic severe back pain. Followed by depression, mild anxiety, mitral valve prolapse, and hypglycemia.  Was this a TBI??
 
Bit again couple of times, lyme suspect bite Mother's Day 2007. Bite, symptoms, lyme specific antibodies on the most lyme specific band of all = 39 IgG.  Still awaiting appt w/ LLMD.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/1/2009 9:11 PM (GMT -6)   
Sore soles are VERY specific to Bartonella. Anxiety is too. In my opinion, I don't think they overlap. I think someone can just have Bart and not Lyme and these are the symptoms.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


sher004
Regular Member


Date Joined Jun 2009
Total Posts : 23
   Posted 7/1/2009 11:19 PM (GMT -6)   
Is it possible to have Bartonella if you don't have red stretch marks looking things?

3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 7/2/2009 11:10 AM (GMT -6)   
I'm not sure why the llmd thinks I have Bartonella - I have her a list of all my symptoms 60+. I was thinking that bloodwork would be ordered for co-infections, but the doc did not seem concerned to bloodwork.

I was prescribed Cipro 500 mg twice a day, and I will continue with Doxy 100 mg twice a day!

Also, I have been put on the following supplements:

Solaray Spectro Multi-Vita-Min (4x a day)
Omega 3 Fish oil
Calcium Citrate
And three different probiotics that I need to rotate

I was told to stay away from dairy.
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