Hi shibumison, welcome to the board!
I am very sorry you have been sick for so long and have missed out on high school. That is really sad. I am sorry you have Lyme disease, but it is good you have been diagnosed so you can get treated. How old are you now? Are your parents supportive?
Below is a Lyme symptom list. You can have any combination of symptoms.
It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
What dose of Tetracycline are you taking? How long have you been taking it? It can take some time to tell if a med is working. Is your doctor planning on treating you with IV antibiotics for only one month? This is not long enough treatment for someone who has been infected for years. Where are you located? You can email me at email@example.com for doctor recommendations.
Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel worse. It can be scary, but it is a good sign the antibiotics are working. During treatment it is a good idea to document your symptoms daily. One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He discusses antibiotics and doses starting on page 18. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.
Hang in there okay? Good help is available, and you are not alone.
Hi shibumison. I am glad your parents are supportive.
From what I understand, some of the best Lyme doctors are in NY. We don't post doctor names on the board, but feel free to email me or have your parents email for names.
Sometimes Lyme doctors are booked. If the one you want to see is booked, ask to be notified of any cancellations. This can help you get in sooner. In the meantime, you can call IgeneX and have them send you a test kit. You take the kit to a doctor who is willing to draw the blood and send it in. It typically takes about three weeks to get the test results. The results will be reported to the doctor. If you do this ahead of time, you may be able to have your test results for your appointment. It may save a little time.
It does sound like you could be herxing. How long have you been on the antibiotic?
Post Edited (novie2) : 7/4/2009 9:38:02 AM (GMT-6)