New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

searching66
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/6/2009 6:56 AM (GMT -6)   
I need some help...I was diagnosed in April at Sierra Integrative Med Ctr in Reno, NV with Lyme. Came home, had a Lyme test done at my family Dr.'s office and it came back negative. I am supposed to go to Dr. Ryser in a few wks but now hearing negative things about her. What do I do and where do I go?? Please help. .......I was also diagnosed with multiple sclerosis in 1991, forgot to mention that.

Post Edited (searching66) : 7/6/2009 8:31:09 AM (GMT-6)


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/6/2009 8:04 AM (GMT -6)   
i'm sure someone here will be able to help you find a Lyme literate medical doctor. LLMD in your area or close by, that is really the only way to get proper treatment.. And go to Igenex website and print off the forms and have your family doctor sign off on the papers so you can be tested for lyme and its co infections.. take that to your LLMD at that time.. you will be on your way

searching66
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/6/2009 8:24 AM (GMT -6)   
Thank you for this information.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/6/2009 8:46 AM (GMT -6)   
I am sure Ticker will be along to help you.....she has list of doctors in many states. I can't tell you how many people I have met through the years that attribute their MS to Lyme after all. In the last year have begun to give Lyme awareness trainings in our area--in hospitals, groups, and to anyone who will listen......There is always someone who has been diagnosed with MS who improves after antibiotic treatment--though many have lasting affects of demylenation .Many have been made worse with M.S. drugs when they should have been on antibiotics to kill bacteria. I tell you this so you don't waste time going to ignorant MD's who only guess at your expense. Get to a LLMD--pay the money....it is not cheap-- as most do not take insurance and insurance won'y usually reimburse you. But you might get some semblense of a life back.
Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/6/2009 10:05 AM (GMT -6)   
Ticker will give you a lot of great information. In the meantime you can request a list of llmd's in your area by e-mailing stepahanie@turnthecorner.org. Good luck.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/6/2009 2:34 PM (GMT -6)   

Hi searching66, welcome to the board!

Which test did your family doctor run?  There is no 100% reliable test for Lyme.  From what I understand, the ELISA or titer is the least reliable test and the one most doctors run first.

Below is a Lyme symptom list.  You can have any combination of symptoms.  

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
 

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  Have you been tested for these?

You can email me at ko_@bellsouth.net for doctor recommendations.

Be aware of the Jarisch-Herxheimer Reaction (herx).  Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones.  When the antibiotics kill the bacteria, toxins are released making them feel worse.  It can be scary, but it is a good sign the antibiotics are working.  During treatment it is a good idea to document your symptoms daily.  One way to do this is to list the main symptoms you have each day with a numerical rating of their severity from 1-10.  Over time when you review this, you can see when your herxes occur and how you are responding to the meds.

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.   He discusses antibiotics and doses starting on page 18.   I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.


Post Edited (ticker) : 7/6/2009 2:38:46 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 19, 2017 5:15 AM (GMT -6)
There are a total of 2,884,055 posts in 316,460 threads.
View Active Threads


Who's Online
This forum has 157584 registered members. Please welcome our newest member, nancygonzalez.
268 Guest(s), 7 Registered Member(s) are currently online.  Details
IamCurious, Wilderness, zrobinso, JasonSinis, Szabo246, k07, (Seashell)


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer