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Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/6/2009 11:34 AM (GMT -6)   
I cannot sleep. I don't fall asleep until 4 or 5 AM, and I'm up almost every hour or so. It has to be the Biaxin, but last night I took Benadryl which usually knocks me out...and it did NOTHING!
 
I'm so frustrated, and I think this is really hurting me because I'm not falling into a deep sleep at all. LDN works with your sleep schedule, and I wouldn't be surprised if it isn't working at all!
 
I don't want to get on sleeping pills because I don't want to depend on them, but the usual stuff just isn't working.
 
What do I do?! I wake up in the night and I just want to cry because I can't seem to get comfortable or something, and I'm kicking the sheets and blankets ready to scream.
 
I'm going to try 50mg of Diphenhydramine tonight. I only took (3) 12.5mg pills last night. It says adults can take 2-4. I had my mom get Benadryl instead of Tylenol PM because it's the same ingredient but it's cheaper.
 
I'm so frustrated!!!!!!!!!!!! 
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 7/6/2009 11:40 AM (GMT -6)   
Hi Jendays,
I have the same issue as well. I finally gave in to the use of pills (a mix of 'scripts' & supplements) in order to start getting rest.

My issues with sleep (or the lack thereof!) got to the point of being debilitating & I couldn't carry on any longer.

So sorry I dont' have any suggestions unless you would like to know what supplements I take- I would be happy to share that- if you would like. =)

Best of luck. Hope you find a solution soon!!!
- Traveler
Now living without appendx & gall bladder

"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro infection from LD, FM, CFS, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis").

Various meds for LD & co's,
1200 mg neurontin, 100mg trazodone
2000 mg chlorzoxazone 50mg Hydoxyz Pam
160 mg dicyclomine 2000mcg B12
40 mg celexa b-complex
800 IU Vit. E 2000 mg fish oil
6mg melatonin 400mg Mg Ox
AND... a multi-enzyme probiotic formula.

Gee, a person would think I was ill or something!! =)


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/6/2009 1:01 PM (GMT -6)   
jen, i have the same issues for over 2 yrs now. sometimes its 9am b4 i go to sleep and i am always up by 12 noon. about once a month i pass out do to exsion and sleep anywere from 10 to 12 hrs.

you may try sleeping with the TV on, its something that relaxes me. or if this doesnt work for you try other things to relax you. a warm bath may help too. i do not use the sleeping pills as they work backwards on me :(

and one would think with all the meds i have i wouldnt be awake much..lol

i so hope this passes you by soon and you can sleep again.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/6/2009 5:24 PM (GMT -6)   
I never had a sleep problem until Lyme disease. I too got exhausted and debilitated from lack of sleep. So I finally gave in to Ambian CR along with a combination of suppliments that include melatonin, kava kava, and valerian--it works. I hope you find relief soon.
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/6/2009 5:34 PM (GMT -6)   
Jen,

I also take a supplement to help me sleep. It has valerian root in it and works great. The melatonin and valerian root combination may work for you. You can't take it if you are on anti-depressants though because it works like anti-depressants and you would have to space it out from your Valium. I take mine about 2-3 hours after my last pain pill for the night.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/6/2009 6:21 PM (GMT -6)   
I have Valerian Root here...in liquid and in pill form. I've had it for about a year but I've always been too nervous to take it!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/6/2009 6:44 PM (GMT -6)   
I would try it if I were you. I have a different brand that relaxes the muscles as well. I tried valerian root by itself and it helped me sleep but I rather the way the Muscle Calm with Valerian Root makes me feel.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 7/6/2009 7:18 PM (GMT -6)   
Not being able to sleep is horrible. I feel for you. I would try the herbal remedies before resorting to the chemical ones, which can be addictive and have bad side effects. I have used the herbs mentioned and they worked for a while. I also used L Triptophan which works really well. Corydallis root is the most effective herb I know of. It works like a drug but has no bad side effects. You can buy it from several companies online. Zhang sells it in his Herbsom. I was taking this when I was on levaquin and could not sleep. It put me out in about 15 minutes. Last night I could not sleep and after two hours I got up and took corydallis root. I don't remember anything else after that. I hope you get some rest.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/6/2009 7:25 PM (GMT -6)   
I think herbs/supplements work way better than prescription meds and without bad side effects.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/6/2009 7:27 PM (GMT -6)   

I am SO sorry, Jendays.  I have had sleep issues for most of my adult life -- except for some pretty healthy periods when I worked out and walked 3mi/day. But I went thru a phase where I could not sleep for more than 2 hours per nite for over 2 months. It was so very painful, that is why I am so sorry for you.  That is the closest to the censored 'S' word I ever was.

Melatonin helped a little, but only when I was healthy. Benedryl when the problem is not severe.  Valarian root and some of the others did not help me at all.  I feel like the problem goes so much deeper than these can reach.  The only thing that gets me to sleep is my antidepressant, amiltriptalyne (sp).  I believe (and it is prescribed for) it can also take some of the edge off of some chronic pain.

Still, when insomia gets bad, it is BAD. Last nite w/ 100 mgs amil and 3 1/2 xanax, I woke up every hour on the hour.  The good part about these drugs tho, is that at least I can go back to sleep, I just don't get enough.  I would love to get off the drugs altogether, and somehow I know that I could get rid of them if I could just stop smoking!

Also, Jendays, I always sleep w/a fan beside the bed. It is perfect for drowning out all the little noises that disturb you when trying to sleep. That is something you should definitely try. Now, I cannot sleep at all w/ too much quiet!

Again, I truly sympathize w/ you, esp since plenty of rest is what you need while you are this ill!

 

 

 

 

 

 

 

 


Suspect TBI in 1972 (date corrected by Mother!) Attacked tonsils, pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/6/2009 7:32 PM (GMT -6)   
I do sleep with a fan and sometimes even the TV. Lately it's just waking up and being restless...

I don't think I'll ever be brave enough to take the Valerian for some reason.

How much helps with sleep?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/6/2009 7:47 PM (GMT -6)   
if i could run about 3 miles, i would have no problem sleeping prolly..

i hear ya jen, it sucks big time!!! i go to sleep at 12am or 1am wake up at 3am then back wake up at 5am then toss and turn all morning..

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/6/2009 7:49 PM (GMT -6)   
Jendays, from my experience, valarian root is not like taking a 'drug' at all. I believe you could definitely try it and maybe it would help you. I never felt it to be very potoent.

Suspect TBI in 1972 (date corrected by Mother!) Attacked tonsils, pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/6/2009 8:11 PM (GMT -6)   
Jen,

Do you have the pill form? If so, I'd start off with just one. Some people take more than one. I wish I could send you what I take. It really helps me so much.

The valerian root may not help you at all but it's worth a try. If you do take it, make sure it is spaced out a few ours from your Valium.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/6/2009 9:15 PM (GMT -6)   
I have pills and the liquid. I just took 14 drops of the liquid. The suggested use is 28 drops and that is 1,000mg. The pills I have are 410 mg each. The only thing that worries me is the liquid has alcohol in it. I'm not on Flagyl right now, but I will be in a few days, so if I like the Valerian, I'll have to switch to the pills since they don't contain alcohol.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/6/2009 10:34 PM (GMT -6)   
Alcohol??? Well, that will probably knock anyone out! Did it work yet? LOL.

On a more serious note, I'd take the pills instead. You don't want to take that liquid with alcohol with all of your meds. I know it's a small amour but just my opinion.
2003: symptoms started;panic attacks,anxiety,heightened senses.
2007: Diagnosed with Lyme. Didn't start treatment. 
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/6/2009 11:55 PM (GMT -6)   
I didn't really notice anything...I suppose I was relaxed but I did take a quarter of a Valium about two hours before.

I have no idea how I'll get to sleep tonight. I don't want to overdo it.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"

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