Hi GBuck, welcome to the board!
I am sorry your daughter is so sick. What do her rashes look like? Be sure to get photos of them, it is important documentation. Place something near the rash, like a coin or ruler, to give it size definition.
Below is a Lyme symptom list. You can have any combination of symptoms.
It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. It is good you had the Western Blot done at Igenex. I will post the breakdown of the bands below this.
Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Has she been tested for these yet?
Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel worse. It can be scary, but it is a good sign the antibiotics are working. During treatment it is a good idea to document your daughter's symptoms daily if possible. One way to do this is to list the main symptoms she has each day with a numerical rating of their severity from 1-10. Over time when you review this, you can see when her herxes occur and how she is responding to the meds.
You can email me at me at firstname.lastname@example.org for a doctor recommendation.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He discusses antibiotics and doses starting on page 18. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.
Hang in there okay? Good help is available. Your daughter is lucky to have such a caring parent!
Hi GBuck. Below is the breakdown of the Western Blot bands: 9 cross-reactive for Borrellia12 specific for Bb18 unknown20 cross-reactive for Borrellia21 unknown22 specific for Bb, probably really the 23/25 band23-25 outer surface protein C (OspC), specific for Bb 28 unknown30 unknown; probably an outer surface protein; common in European and one California strain31 outer surface protein A (OspA), specific for Bb34 outer surface protein B (OspB); specific for Bb35 specific for Bb37 specific for Bb38 cross-reactive for Bb39 is a major protein of Bb flagellin; specific for Bb41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia45 cross-reactive for all Borellia (sometimes people with Lyme who have this band positive also have the co-infection Ehrlichiosis)50 cross-reactive for all Borrellia55 cross-reactive for all Borrellia57 cross-reactive for all Borrellia58 unknown but may be a heat-shock Bb protein60 cross reactive for all Borrellia66 cross-reactive for all Borrelia, common in all bacteria 83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane93 unknown, probably the same protein in band 83, just migrates differently in some patientsThe IgM tests for a more recent infection and the IgG a longer standing one. Did your daughter have both of these done? Band 41 is often the first to show. Bands 31, 34, and 39 are all Lyme-specific bands. I think her results are significant and warrant evaluation by a knowledgeable doctor.
Hi GBuck! Welcome to the forum. I am sorry you and your daughter are having to deal with this.
I agree with Ticker. Please email her. She has lots of good info. she can give you.
We see a doctor in the SF bay area in CA. We travel a long way to go there, as we live in the central valley of CA. We have met other people from the bay area that go to various practitioners. If I can be of any help, just email me. I will do my best to assist you. Also, the Calif. Lyme Disease Assoc. is a great resource. You can contact them for info too.
Were you talking about California? If not, then sorry to add useless info. Please email Ticker to get started and "google" any lyme disease assoc or support group in your area. You will find their info valuable.
Read the topic at the top of the first page of this forum entitled "The Basics, Newbies check this out". It will have info you will find helpful.
Best wishes to you and your family. bablymers mom