question for those in remission

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hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 7/7/2009 5:06 PM (GMT -6)   
Do people still have one lingering symptom if theyre in remission?

I have been declared in remission by a reputable LLMD but I still have days where I have that stiff neck feeling.. Could this be some leftover lyme issues or does lyme symptoms mean active lyme/co infections?

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 7/7/2009 5:20 PM (GMT -6)   
My LLMD has told me that it can take up to a year to feel "normal" after a long bout with Lyme.

Not sure if that is so...but makes alot of sense that your body has alot of recovering to do!
Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/7/2009 7:10 PM (GMT -6)   
I agree with 1bitten2xshy. Our bodies have been damaged by this disease. i think it will take time for it to recover. Just keep a close watch out and let your Lyme doctor know what's going on.
2003:]2007: Diagnosed with Lyme. Didn't start treatment.
2008: symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1000mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements


**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


nariko
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/7/2009 8:29 PM (GMT -6)   
hezzer926 -
I'm technically in remissiom. All my labs look pretty good, though. I have them checked every couple months.

3+ months after my antibiotic treatment, the arthritis finally faded to the point that it was only in my extremities. My index finger on my right hand an a couple of toes on my left foot. It still flares up worse adn i get swollen knuckles around my period. But I dont' have to take medication any more, and and I've gotten physically active again!
Recently, I've been getting pain in my right shoulder again, where the worst of the arthritis originally was.

Compared to the pain i was in before, I think a little arthritis, even at my age, is nothing to complain about.

So I guess my point is, yes, in my experience, being in remission doesnt' mean symptom free. It means feeling well enough to function normally.

Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 7/7/2009 8:43 PM (GMT -6)   
My neck is still slightly crackly sounding and my knees still have some stiffness and creaking. Thought they were doing better, but overdid it and my hamstrings tightened up and so did the knees. One Lymph node on the side of my neck is still slightly swollen, but I read that they can take time to resolve. Could be that the muscles and tendons take time to get used to activity again, and the whole body takes time to detox. I think a lot of my issues even from before Lyme were from the need to really detox my system. I had done cleanses before, but nothing regularly or consistantly.

hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 7/7/2009 9:16 PM (GMT -6)   
Thanks for everyones response.. Im currently seeing an excellent chiropractor who is helping me to detox and give me needed supplements for the gut

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/7/2009 9:30 PM (GMT -6)   
can you sign me up for the remissions please? i'm ready to check into that hotel..

hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 7/7/2009 9:51 PM (GMT -6)   
I really didnt think i was in that phase at all but all i can say is i definitely think breaks from antibiotics are needed.. after a few weeks, i felt better off of them than on them

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/7/2009 10:46 PM (GMT -6)   
Hi hezzer926,

my neighbor who was in remission for 6 months said she still had issues but they were mild compaired to b4 remission. i am sad to say it only lasted 6 months for her.

i am happy your in remission now and i pray you stay in it. that would be awesome for you.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/8/2009 1:46 AM (GMT -6)   
Hezzer,

I agree too that breaks from antibiotics works. I've actually been doing that when I have a bad herd and have noticed how much better I feel off of antibiotics. I still have a long road ahead of me but at least I'm seeing improvements.

I'm so glad you are in remission. You give all of us hope:)
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


goodoldtimes
Regular Member


Date Joined Mar 2008
Total Posts : 96
   Posted 7/8/2009 7:05 AM (GMT -6)   
since the time I am in remission I still have had problems. First yeast related symptoms and my thyroid is slow. And since three months, after a flu (or something like it) painful neck, cracking, fatigue, stiff joints, my whole body feels extremely tired. Symptoms come and go.
I don't know if it is still Lyme or something else.
EM rash oct. 24 2007, 10-30-08: doxy 100 mg. bid for three weeks. Felt better, but symptoms slowly got back and much worse
2-21-08 until 4-23-08: doxy 100 mg. bid (described by family doctor)
4-24-08: start doxy 200 mg. bid and Biaxin XL 1000 mg once a day (seeing an Infectious Disease Doctor)
8-8-08 until 8-21-08: adding Flagyl 500 mg. bid
8-21-08: off all ABX   
9-17-08: doing herbs but symptoms slowly reappeared,so started Biaxin 500 mg. bid on 9-17-08
11-12-08: off abx, start Diflucan
 

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