Do I have Lyme, need dr - Madison WI

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Lisa Theobald
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 7/8/2009 2:55 PM (GMT -6)   

 think i have chronic LYme disease. Can't do naturals (irritates my interstitial cystitis), tried antibiotics (quit after 3 weeks, fungal issues. Diflucan and diet weren't enough). Looking for dr who does shots or iv antibiotics. So must be in madison WI area or close.

2006 IGenex results: (please if replying let me know if you think i have lyme)

IGM
34 IND
39 ++
41 IND
66 +

IGG
41 IND
58 ++

Symtoms: increasing fatigue, muscle pain, cognitive issues, insomnia, etc

 

Even If I treat Lyme, can I really ever get rid fo it?


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 7/8/2009 3:32 PM (GMT -6)   
You have certain Lyme specific bands showing either positive or IND.

Best bet would be to see a LLMD, and work with them on a protocol that your body would be able to handle.

Many people have to travel to see a LLMD as they are far and few between!


Co-Moderator Lyme Disease Forum


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/8/2009 4:04 PM (GMT -6)   
LISA:::: I know a wonderful LLMD in Milwaukee. I use to drive 4 hours from Indiana to see him. email me and I will give you his name. STUTTERBUG1@yahoo.com

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/8/2009 5:49 PM (GMT -6)   

Hi Lisa, welcome to the board!

You may want to get restested since you were tested so long ago.  Band 41 is often the first to show.  Bands 24 and 39 are Lyme specific bands.

Below is a Lyme symptom list.  You can have any combination of symptoms.  

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
 

It is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  Have you been tested for these?

You can email me at me at ko_@bellsouth.net for a doctor recommendation.

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.   He discusses antibiotics and doses starting on page 18.   I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.


Lisa Theobald
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 7/9/2009 12:00 AM (GMT -6)   
Another question, Is it just as easy to get candida from oral antibiotics vs. iv antibiotics?

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 7/9/2009 5:15 AM (GMT -6)   
Yes it is. One needs to take high quality probiotics whether they are on oral or IV drugs.
Co-Moderator Lyme Disease Forum


Lisa Theobald
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 7/9/2009 9:01 AM (GMT -6)   
Thanks 1 bitten2xshy, unfortunately i have interstitial cystitis and can't find a one that doesn't bother me since it came out of remission a year ago.
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