Could I have Lyme Disease?

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kitsune
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/9/2009 9:25 PM (GMT -6)   
I'm now 20, at about age 13 I developed severe chronic neck pain/stiffness/cracking as well as chronic fatigue, alternating from insomnia to constant sleepiness. I also lost a lot of weight at that time and have continued to be very thin even though I eat normally. My mom recently mentioned that I went from my high weight of 130 at that time to 115 which lead them to believe I had something wrong with me, which I was not previously aware of. I am currently 107 lbs. I have also had irritable bowel since then (or as long as I could remember). Most foods go right through me and give me an upset stomach. I cannot pinpoint any certain foods that cause this.

Just recently I had been really worn down with my college schedule, and became very ill. I had severe cranial/neck pain which I feared was meningitis but thought it wasn't because I was vaccinated as a child. I didn't go to the doctor because I was at college away from home, but I was definitely SICK for about a month. I also was having such severe neck pain that I was waking up from a dead sleep for a few weeks nightly. After that for another month or two I would have intermittent nausea and dizziness. As it was getting cold out, any time I walked outside in the cold (to my car from my class) I would feel like I was going to vomit and became dizzy.

I have also been 'diagnosed' with asthma which lead me to quit sports as a child, but when I was given an inhaler it did nothing for my 'asthma.' I love being active, hiking, and running (if I could) but I easily become short of breath.

Besides my neck pains, I have chronic back pain and wake up daily feeling like I have been hit by a truck. I also have bad joints in my hips which sometimes crack and ache severely. Basically, all of my joints ache now and then and all of them crack frequently. I have had experience with short term swelling in my fingers in the past when I played an instrument.

Another symptom I developed around the same time as my other symptoms, but has progressed, is constant anxiety and intermittent depression.

I don't know if this is a symptom or not, but I bruise VERY easily and will often have bruises of unknown origin.

kitsune
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/9/2009 9:57 PM (GMT -6)   
anyone?

i went through this list and bolded my symptoms...

Musculoskeletal System
Joint pain or swelling or tenderness
Stiffness of joints, back, neck
Muscle pain or cramps
Bone pain
Heavy feeling in one or more limbs


Neurological System
Tremors or unexplained shaking (especially at night)
Burning or stabbing sensations in the body
Weakness or partial paralysis/stroke-like symptoms
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness

Sudden jerking of fingers or entire limbs
Pain in spinal column

General Well-being
Unexplained weight gain, loss
Extreme fatigue
Swollen glands

Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts

Early on, experienced a "flu-like" illness, after which you have not since felt well.  (If it was mild, you may not even recall this.)

Eyes/Vision
Double, blurry or dim vision
Increased floating spots
Pain in/behind eyes, or swelling around eyes
Over sensitivity to light
Flashing lights
Optic neuritis

Ears/Hearing
Decreased hearing in one or both ears
Buzzing or clicking noises in ears
Pain in ears or sound sensitivity
Ringing in one or both ears
Pressure or feeling of fullness in ears

Digestive and Excretory Systems
Diarrhea, irritable bowel
Constipation

Irritable bladder (trouble starting, stopping)
Frequent urination that is not normal
Upset stomach (nausea or pain)


Respiratory and Circulatory Systems
Shortness of breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills

Heart palpitations or extra beats
Heart blockage

Psychological well-being
Mood swings, irritability, rage
Unusual depression

Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Overemotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep


Mental Capability
Memory loss (short or long term)
Confusion, difficulty in thinking, brain fog
Difficulty with concentration or reading

Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks

Head, Face, Neck
Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
TMJ – sudden onset, jaw spasms
Sore throat, hoarseness
Loss of sense of taste
Difficulty swallowing, throat spasms

Females only:
Unexplained menstrual pain, irregularity
Unexplained breast pain, discharge

Males only:
Testicular or pelvic pain

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/9/2009 10:05 PM (GMT -6)   
i think if can bold at least 20 or more symptoms, you might as well go get tested and set up with a LLMD in your area. they take forever to see, but you might get lucky like me and get in with a week..

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/9/2009 10:09 PM (GMT -6)   
Kitsune,

I sure cannot say that you do have Lyme, but it's pretty obvious that you should seriously consider this as a possibility. Esp since you have so many serious symptoms. I don't know any way to rule Lyme OUT (anybody?), but it sounds like you might start trying, anyway. Because if you don't have Lyme, you do have health issues that need to be put together and addressed.

If you can afford them, it is well established that the Igenex tests are the most sensitive and reliable. If you are struggling w/ the possibility of Lyme, yet need to consider other illnesses/infections, then it seems to me some Igenex tests would be one appropriate starting point. But your Dr could also order many other tests to get an idea of what's going on and what is being affected right now.

Not that it's necessary, but do you or your Mom have any recollection of a tick bite?

Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day


kitsune
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/9/2009 10:20 PM (GMT -6)   
no, no recollection of a tick bite ever. i just talked to my mom about it though, and my sister said that when we lived where we did at the time of my life that i started developing symptoms my sister saw ticks very often and remembered picking them off of her friend's dog.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/9/2009 10:23 PM (GMT -6)   
where do you live?

i've been sleeping with the enemy prolly for over 6 years, and never really knew it.. my dog sleeps with me nightly, can't help it. i love him. i check him alot.. but i prolly missed some days of checking when i was totally consumed with everyday life..

kitsune
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/9/2009 10:36 PM (GMT -6)   
the midwest suburbs... ive spent a lot of time outside and in the woods, so i don't think the possibility of having a tick bite that i didn't know about is very unbelievable.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/9/2009 10:38 PM (GMT -6)   
that is where i lived at, midwest suburbs... no trees really, just grass and new homes

the last 3 years here in the midwest, there has been a ton of rain.. this helps them stay around longer.. plus the winters here haven't been that cold... tick season last longer and starts quicker..

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/10/2009 12:27 AM (GMT -6)   
Hi you should check your temp often people w lyme have a lower body temp of 96 or 97 not to say that u dont have lyme if u dont have a low temp because coinfections can raise temps and cause fevers, coinfections will be something u will learn about as u learn about lyme, most people who have lyme also have coinfections transmitted at the same time as the lyme. Like babesia, bartonella , others, my temp is 96 to 97 all the time .
It has gone up to 97 98 now that i am on treatment.
It sounds like u could certainly have lyme. u dont have to have had a tick bite u remember. i dont remember one but i was camping one time right before i got a bad flu like illness . u also dont have to have had the bullseye rash. some nymph stage ticks are so small almost invisible capably of transmitting lyme.
u could get it fron mosquitos and other biting insects less frequently,, there are aolt of ways, sexually, congenitally, blood transfusion because it is hard to find and it is not being screened out.

Because it is so hard to find testing is not in a good place currently. Your greatest chance at an accurate test is throught the igenex lab.
You must go to a lyme doctor to get a test through them. there is a way through your primary doc but they mat not comply.
Finding a lyme doc not easy , email,, stephanie@turnthecorner.org give her the area u nd a lyme doc she sends back an email of a lyme doc nearest u. or if ur family doc complies u can go to igenex.com print out the testing form check tests 188 and 189 western blot IGM and IGG, your doc must sign the physiscian box and write in the test codes in the code line 188 and 189 then u call igenex and have then send u a blood tube shipping kit that part is free.
then the doc writes a little prescription sheet that says a fill the red tube and return it to patient. this is given to the lab tech wherever u are sent some fam docs have their own blood labs. you must have the igenex address and send it through fedex to igenex on a monday so it gets there early in the week . or it wont be processed. it will cost 200.00 for the western blots and 100.00 for shipping. it must be very fast shipping to get blood read early enough and to get it there in time to be read by the lab.
Hope that helps.
That may be a cheaper way bt not so simple a lyme doc would simplify that but if it is pos u nd to get to a lyme doc for treatment because all docs who arent lyme docs dont understand that longterm antibiotic therepy is warranted for lyme patiens who have had lyme for mor that 4 to six weeks. you seem to have had it for a long time. it may take years of antibiotic combo therepy to get u better supported by probiotics. get your self in gd hands.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

Post Edited (veromia333) : 7/11/2009 12:42:53 AM (GMT-6)


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/10/2009 10:40 AM (GMT -6)   
Hi Kitsune,

Wow- it sounds like things aren't going so well for you. I would agree that Lyme is a possibility you should get checked out, if you can. But I would also advise you to try to rule out other things as well.

Hopefully, if you go to your doctor and give him all your symptoms, he should run checks for autoimmune diseases, thyroid problems, diabetes etc. BUT- you may have to be fairly aggresive. In my experience, doctors look at people like you (and me) and say- "you're young, you don't LOOK sick- there's nothing wrong." So you will have to be persistent.

My Lyme ND was the first person to actually listen to me, and agree that something is wrong.

Whatever happens- keep looking. Whatever is wrong, Lyme or otherwise, you want to find it, and fix it. So don't let other people make you think it's "all in your head". YOU KNOW something is wrong.

Good luck!

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 7/10/2009 12:53 PM (GMT -6)   

Hi kitsune, welcome to the board!

I am sorry you have been sick for so long.  Below is a Lyme symptom list.  You can have any combination of symptoms.  

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
 

When Lyme disease is a possiblity, it is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. 

If you need a doctor recommendation, you can email me at ko_@bellsouth.net

It is also important to learn as much as possible.   I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne lllnesses  at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.   He discusses antibiotics and doses starting on page 18.   I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton M.D.


kitsune
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/10/2009 11:25 PM (GMT -6)   
whoops, i didn't bold
"Stiff or painful neck or creaking
Jaw pain or stiffness"

I also have both of those. I was talking to my friend the other night who didn't believe I have Lyme disease because I obviously never complain about my problems, but I have gone through life thinking that this was normal and how everyone felt! Anyways, I said to her that the only symptoms that really bother me on a daily basis enough to affect my life are my neck pain/stiffness/creaking/cracking, anxiety, fatigue, sleeping problems, excessive thirst, digestive problems/irritable bowel, joint and muscle pain, and now i have started to get a lot of unexplained bruising... and then i realized that i listed A LOT of problems that bother me DAILY... which is probably an indicator that most people don't feel like I do on a daily basis.

Also, having an irregular period can be frustrating as well as brain fog/confusion as I had definitely noticed a change in comprehension but just chalked it up to being abnormally smart as a child and evening out as I got older... probably not really what it is.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 11:38 PM (GMT -6)   
For the excessive thirst, have you been checked for diabetes?
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


kitsune
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/10/2009 11:56 PM (GMT -6)   
hmm, no, sounds like i have some symptoms of it though. i don't have much history of diabetes in my family at all though. maybe one relative in total.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 12:01 AM (GMT -6)   
I'd have it checked just to be on the safe side.

Looking at that list, I didn't realize how many I actually had.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/11/2009 12:26 AM (GMT -6)   
well i hope u gt tested soon so u cn gt treated for whatever is going on
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/11/2009 12:33 AM (GMT -6)   
my worst - unrelenting symptoms - are neck stiffness/creaking/cracking - plus most of the other things you 'bolded' - I removed 'swollen' tick myself - so I know I had a 'bite'!!
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