Can a Lyme Cycle come a week early?

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CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 11:12 PM (GMT -6)   
I've been noticing a Lyme cycle, where my symtoms get much worse around the 17th-20th of the month. Well, these last few days have been terrible for me. I've had anger issues, crying spells, depression, headaches and I hurt so much worse. I feel yucky all over too plus my throat hurts and my lymph nodes are swollen under my arm as well.

I don't think I'm herxing because I've been off of my meds again after having another bad herx. My doctor wants me doing that because I'm so sensitive to meds and he thinks I may be loaded with toxins.

Anyway, what do you guys think about early Lyme cycles?
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 7/10/2009 11:21 PM (GMT -6)   
I'd think being off of your meds might have something to do with it. That might sound contradictory, but there has to be some sense in things changing when you're going on and off meds the way you are.

I'd suggest doing as much detox as you can handle...right now I can only handle the foot baths, and that's only been about once/week, but anything helps, right?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
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Date Joined Mar 2009
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   Posted 7/10/2009 11:27 PM (GMT -6)   
That makes sense. The last time I got off, I actually felt pretty good for a change. I've been trying to do as many detox baths as I can but sometimes I'm hurting too bad of I'm too tired to stay in.

I have an appointment coming up so I will bring this up to my doctor. Why do I have to be so sensitive to everything? I can't even treat myself the correct way.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 7/10/2009 11:29 PM (GMT -6)   
I'm sensitive to everything too. The only reason I'm able to keep at it right now is because this is the ONLY thing I'm doing. I haven't even left my house since June 9th. The walking I do is upstairs to shower or to go to the bathroom or to the kitchen to grab something quickly because my legs are either too shaky or I am too off balance to stand and cook anything!

I honestly don't know how people work!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/10/2009 11:30 PM (GMT -6)   
my cycle is every 12 hrs.... i feel like crap when i wake up, i'm good about 2 hrs after wake up.. then i feel like crap 1/2 through the day, then feel like crap at night before bed.. or what is bedtime? i'm not sleeping.. i feel like a teenager that is on summer break and recently learned about nintendo

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/10/2009 11:34 PM (GMT -6)   
I don't know how they work either. I haven't left my house since Mothers Day. I won't say how long it's been since I shaved my legs. Yuck! My husband helps me wash my head. To think how I used to be. Always on top of things like that and now I'm just gross! And these head jerks are driving me nuts! My husband finally saw me have one today. They are very quick but agravating none the less.

I don't know how you do it Jen!!
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 3:02 AM (GMT -6)   
Bumping this up to see what others think.
2003: Symptoms started;Anxiety,Panic Attacks,Heightened Senses
2007: Diagnosed with Lyme. Didn't start treatment.
2008: Symptoms came back with a vengence.
2009: Diagnosed with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Currently on 1500mg Amoxicillian,Ultram,Thyro Complex 60mg,Probiotics and supplements

**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/11/2009 4:42 AM (GMT -6)   
I feel bad when I am off the meds. Then I feel better and better after starting them. I have about 8 "good" days.(not feeling like lying down all day) and then I feel kind of crappy on and off. Between the 3-4 week I have a bad herx. Lasts about 4 days. My symptom journal has helped a lot. I can pinpoint almost to the day when I will feel bad. Weird. Took 6 months of treatment for me to actually see this cycle. Before I was all over the place.

Just woke up. Bad day ahead. My heels are killing me!

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/11/2009 4:43 AM (GMT -6)   
PS- James your post cracked me up

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 4:54 AM (GMT -6)   
Lovelabs,

I used to have good days like you but since about March, I can count maybe 7 good days in all. This last month, I had no good days. I used to have about a week of feeling good but not anymore. I think I am getting worse and the neurological symptoms are terrible. I can't go to sleep because of the pain and muscle jumping. My hand literally jumps up in the air. It's weird and I cannot control it.

So, I pretty much feel bad all the time with very bad symptoms when I cycle. I think Ticker posted that a cycle can be every 3-4 weeks. Ugh! It's so frustrating.

Btw, thanks for posting. I like hearing others experiences.
I have Lyme Disease; Lyme Disease doesn't have ME![/color]

<FONT color=blue>**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**

Co-Moderator Lyme Disease Forum


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/11/2009 8:32 AM (GMT -6)   
How long have you been in treatment? I am so sorry you are feeling so bad still. I have to say, my doc gives me a 2 week break between treatments. Usually every 6 weeks. When I started I would feel really bad the first few days off the meds. But it kind of went with the whole cycle thing so I didn't think much of it.

Last time I was off meds I felt worse and worse until I went back on them. Infact the 2nd week off meds I felt no different from where I was before I started meds. I was so sad. I think being off meds kind of gives the doc an idea of how our immune systems can fight it. I go off meds next week we'll see what happens this time. It makes me appreciate my good days believe me.

I still herx pretty bad so I guess I am so not done with this thing. I am trying to look at all of the little things that improved. I leave the coffee shop with coffee in my cup. I used to pay for my coffee and leave without getting it. My brain was so fried. Now that's bad, huh?

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/11/2009 10:57 AM (GMT -6)   
CG, Most of your symptoms sound so much like mine. Last week the swollen glands and sore throat were back in full force again. I sometimes think the weather or allergies might make things worse but I've tested negative for everything so I don't know.

The head jerks must be terrible for you. My head does not jerk but it does feel like my head is shaking or vibrating at times although I don't think it's visible.

I don't see any regular cycle or pattern with any of my symptoms and just feel miserable all the time although some days are much worse than others.

Jen, I also don't understand how people can work but then again I did for years before it became impossible. Now I can barely get from the bed to the couch and I'm embarrassed to say how often I shower. lol I use to take 2 a day and now if I can manage 2-3 a week I'm doing good. Gross is an understatement. ****

I also have major problems with balance and dizziness and learned the hard way not to try to push through it. Last year, I ended up in the emergency room with nerve damage in my hand from falling against the bathroom sink. Ugh! I doubled up on pain meds (that by the way were not working for the body pain but worked great for the nerve pain from the fall) for two days until I felt well enough to take a shower so I could go to the ER. LOL Unbelievable!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 2:58 PM (GMT -6)   
Lovelabs,

I just started treatment. I think I'm almost a month into it. I need to talk to my doctor again about getting off. It doesn't seem to be helping me at all. Although I did see some improvement for a day or so. I think my doctor is concerned about the toxins. I guess he wants me to get off when I'm herxing bad so that my body can get rid of the overload. I go back to see him next month. He is supposed to do some kind of toxin test.
I have Lyme Disease; Lyme Disease DOES NOT have ME!
 
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**
Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 3:02 PM (GMT -6)   
Scorpio,

I'm afraid I may have to get on the picc line. I have so many neurological symptoms now. I'm scared though. Not just of the picc line, but of how my body may react to the stronger meds. Was it you that told me you can start off slow with a certain amount of cc's?

I guess I will see when I go in to see my doctor again. I doubt he puts me on a picc line if I'm loaded with toxins. I so confused, LOL.
I have Lyme Disease; Lyme Disease DOES NOT have ME!
 
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**
Co-Moderator Lyme Disease Forum


scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/11/2009 3:45 PM (GMT -6)   
CG, I have a feeling toxins are causing my brain issues to get worse too. Let me know how your doc tests for toxins and what he says. I'm on Actol/Welchol right to help with that but I think it's too soon to tell if it's working or not.

You really don't have to worry much about the picc line itself but I don't blame you for being concerned about how you will react to the meds, especially with what you've been through. I'm not sure about starting off slow but have heard of people pulsing and not infusing every day. I'm sure your doc will know what to do.

To be honest I herxed more form the orals than from the iv's so you might end up handling it better than you expect to.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 3:52 PM (GMT -6)   
Scorpio,

I just want to say thank you so much for sharing your experiences with all of us. It gives us all an idea of what to expect. I truly appreciate you taking time out of your life posting here even though you are so sick.

I seriously think I need to do a detox tonight. My brain has been in a fog for a while now. Im sitting here typing and second guessing myself on how to spell words. I was always good at spelling and now Im making so many mistakes. I find myself "fixing" all my mistakes in almost every post. How sad is that? Ive been saying weird words again too. I think of two words in my head and it comes out as one word? LOL I have no clue how that happens. In fact, my daughter jokes around with me about it. I think shes trying to cheer me up because she knows what Ive been going through and sees a change in her mama.

I go see my doctor on the 5th....I think. I will let you all know what he does with the toxin check.

[color=blue></FONT>

<I>



Co-Moderator Lyme Disease Forum


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/11/2009 5:00 PM (GMT -6)   
You are so early into your treatment. I was just like you at the beginning. I think I went 3 months before I had a good day. My herxes were all over the place and very unpredictable. It was awful. I drank lemon water by the gallons, and did detox baths like 4 times a week. I am in my 8th month of treatment and I am up to about 1 week of good days. The rest are okay or pretty bad during my herxes. I think it is the hardest thing to go through. Don't give up. I will pray for better days ahead for you!

scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 7/11/2009 5:04 PM (GMT -6)   
CG, This forum has helped me so much and I really wish I could do so much more to help others but right now I'm limited.

I'm sorry you are experiencing so much brain fog too and understand all too well. I'm really curious to see what your doc says.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 5:14 PM (GMT -6)   
Lovelabs: Thanks for the encouragement. I definitely won't give up. I need to get better again. This staying in the house all the time is making me crazy. I want to get out and have some fun! Well, my mind wants too at least, LOL. My body is another story.

Scorpio: Thanks hun:)
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/11/2009 5:17:55 PM (GMT-6)


ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 7/11/2009 6:42 PM (GMT -6)   

CajunGrl, I am sorry you are feeling so bad.  I think cycles can change at any time, but I think stopping the meds is contributing to it. 

How long have you been off of them?  If it has been some time, it may be that your symptoms are intensifying because you are not being treated.


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 6:48 PM (GMT -6)   
Hey Ticker,

I was waiting for you to respond. I've only been off for 3 days. I don't go over 3 days. I started back on them again today and feel worse.

My doctor thinks I'm overloaded with toxins so that's why he makes me stop a few days to get my body working right again and making sure my body is getting rid of the toxins. I have been doing detox baths when I can.

What do you think?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 7/11/2009 7:21 PM (GMT -6)   

Hi CajunGrl.  I think you need to do what your doctor says, because she/he knows your history.

Drinking lemon water is also good.  Believe it or not, drinking Alka-Seltzer when herxing can help but you should not take it more than three times a day for one to two days.

 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/11/2009 7:43 PM (GMT -6)   
Thanks Ticker. I appreciate all the knowledge you bring.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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