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Date Joined Oct 2007
Total Posts : 259
Posted 7/11/2009 11:30 AM (GMT -6)
I may be getting ahead of myself, but after having started a very light exercise program I seem to be progressing well; and looking ahead to getting back to my old weightlifting/running from 10 years ago(still think I have another 6 weeks of good ol' just plain walking before then, but that's not too far out). Couple questions though about
bone density, which I ask for two big reasons, one; I know I spent the last few years getting improper nutrition and no exercise, and two, there were times they(my arm/leg bones) felt weak even to me(but whether a person can actually feel that or just get it in their mind, I don't know).
So, some questions:
1. Do any of you actually know whether your bone density/integrity was weakened as a consequence of your lyme?
2. What kind of tests are there for this? I know there's an X-ray test but as I'm currently without insurance that's probably out of reach.
3. If you did have a problem with this; what was your prognosis for fixing it?
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Date Joined Mar 2009
Total Posts : 4717
Posted 7/11/2009 3:19 PM (GMT -6)
There is a machine that they use to test your bone density. I'm not sure what else you could do besides getting that test done. Maybe do a search and see what comes up.
I have Lyme Disease; Lyme Disease DOES NOT have ME!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have.**
Co-Moderator Lyme Disease Forum
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Date Joined Aug 2007
Total Posts : 4399
Posted 7/11/2009 6:40 PM (GMT -6)
The test for bone density is the DEXA scan. It is a special x-ray machine that determines the density of the bones at a couple of specific
locations - usually the upper femer or hip and the lumbar spine. The density measured is then compared to young, healthy people's bone density, and also to the bone density of people your own age, giving a T-score and a Z-score (I forget which is which). The number of standard deviations from normal determines whether you are normal bone density, osteopoenic (slightly below normal), or have mild/moderate/severe osteoporosis.
Yes, Lyme can decrease bone density because it can interfere with nutrition, cause exercise intolerance, and mess with the hormones that regulate bone density.
Yes, I have moderate osteoporosis. There are things one can do to fix this once the cause of the problem has been addressed. Exercise, proper nutrition (protein, essential fatty acids, vitamin C, calcium, Vitamin D, magnesium, boron, etc.), adequate hydration, and balanced hormone levels (adrenal, reproductive, and thyroid) are all needed for strong bone density. When all of these things are at optimum levels, the bones will fix themselves, no matter what age a person is (my Mom was diagnosed with osteoporosis at age 70, and after the use of strontium and adequate nutrition, her bones recovered back to normal and she no longer has osteoporosis). The medications that are given to slow bone loss actually can make bone density problems worse - especially the bisphosphonates like Fosamax, Actonel, etc. - because they suppress the bone remodeling process that is required to improve bone density.
I hope this helps - take care,
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds: Zofran, Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), probiotics, homeopathy.
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Date Joined Oct 2006
Total Posts : 1458
Posted 7/12/2009 5:40 PM (GMT -6)
I have problems with bone density too. I agree with Razzle's comments, and I do blame lyme and coinfections for my problem but don't know if there is a way to prove it. I plan on using advice from my naturopath to help rebuild my bones.
If you look around town or check the newspapers, there are sometimes FREE screenings done at local drug stores/chain stores. They use a little portable machine that you put your foot/heel in and it screens for bone density. It is completely painless and you get the answer right away. If it looks like you need further evaluation, they advise you to see your doctor and take the results with you when you see the doc. It may not be as accurate as the big machines, but it can help get you started-----and it's free!! Ask your local hospital or chamber of commerce etc. to see if they know about
any of these free screenings.
Best wishes to you. bablymers mom
P.S. Razzle, you're amazing----like our own encyclopedia of knowledge about
so many things!! I really enjoy your posts.
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