Had to go to the ER...

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Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 5:51 PM (GMT -6)   
I started getting really sick to my stomach and my arms felt so weak, my legs shakier than they've ever been before and my heart was racing and pounding out of my chest. I felt like something was really wrong and knowing how I'd probably be dismissed in the ER, I knew I had to go anyhow. I decided it's better for me to pass out there than at home!
 
So...we all know everything came back normal, lol. Or at least that's what I was told.
 
My Absolute Monocyte count was high along with my Platelets which are always high. From what I've read, you can have a high abs mono count if you have a chronic infammatory disease, some viruses, TB, or a Parasitic Infection. Has anyone else had a high ABSOLUTE mono value? Not the Mono Auto value, but the one that says 'abs' by it...either alone or in conjunction with a high platelet value?
 
They gave me ativan to help stop my shakiness which it did, and I told them I took about 5 mg of Valium before I came in too. I'm surprised I didn't fall asleep.
 
Anyhow...I forgot about all of these tests my ID wanted me to have done and because I had no insurance then I was putting them off...so in the morning, I'm going to the hospital to have these tests done: (tell me what you think)
 
Q Fever AB Panel IGG/IGM
Babesia IGG/IGM
HGE/HME IGG/IGM
Histoplasmosis CF (yeast and mycelial)
Cryptococcus AB
Blasto ID
24 Hour Urine for Porphyrins
24 Hour Urine for Heavy Metals (already had hair test done)
HSV 1 and 2 IGG/IGM
G6PD
Cat Scratch AB Panel
Toxo IGG/IGM
 
 
I wonder if I'll have any blood when I get home...!


Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"

Post Edited (Jendays247) : 7/12/2009 6:23:37 PM (GMT-6)


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/12/2009 5:58 PM (GMT -6)   
My God Jen! Poor you. I just want to give you a big hug! If I were your mom, I'd probably be freaking out. Gosh:(

I think those tests you're running are a great start. It's good to rule out all of those. Your heavy metal test was probably accurate from your hair analysis but it doesn't hurt to get it done again. Make sure you bring those results to your LLMD when you go.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 7/12/2009 6:08 PM (GMT -6)   
Jendays -- geez, I'm really sorry about your episode, but at least now you will be getting some much needed tests done, right?

Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day


Jendays247
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Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 6:08 PM (GMT -6)   
CG,

The weird thing about all of this is - remember when I told you my mom was really sick before she had me? She lost a baby boy 14 months before she had me because she was infected with Toxoplasmosis, Toxic Shock Syndrome, Legionnaire's Disease, and a Staph Infection. I've read about everything and am not too concerned...but the only thing sticking out to me is this: most infants born with Toxoplasmosis do not show symptoms until they are in their teens and then it is neurological stuff - eye problems, mental retardation, etc. And a couple of the other diseases (I think Porphuria) mention neuro stuff too.

If I was born with that infection from my mom...I wonder if they can do anything about it now...she was supposed to wait to get pregnant and oops she didn't.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/12/2009 6:43 PM (GMT -6)   
i hope you get some results after you have those tests done..

i went to the ER 3 times in may.. They all said the same thing.. your fine, go home and relax..

i stopped going, and it landed me here basically..

my mono count was 2.24, which i think .90 and below is considered normal. my LLMD looked at my mono report and it didn't bother him, he says 95% have the virus..

is the cat scratch panel, is that Bart?

i wouldn't know much about those tests, i have never asked for any of those before, but hey, i would do it too.. better safe than sorry...

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 6:50 PM (GMT -6)   
Yes, Cat Scratch is Bart and HGE/HME is Erlichiosis
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/12/2009 6:51 PM (GMT -6)   
Jen,

I would ask the doctor about that one. Maybe you are on the right track with that. I think there is a test for toxoplasmosis if I'm not mistaken but, would it still show up in your system?

Do everything you need to do. You seem to be on to something for sure.

What is the treatment for toxoplasmosis?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/12/2009 6:54 PM (GMT -6)   
this disease is so complicated.. why couldn't it be easy.. Like removing a cancerous mole or something..

it has us second and third guessing ourselves.. It resembles every single disease on the market.. the only thing to do is rule out EVERYTHING!

i'm still waiting for IGENEX and it was 1500 dollars.. I can't believe it! but when it comes back and its neg i will flip my lid, but if it comes back positive, i will be relieved. I have a feeling its coming back Negative.. But i really think I have Bart like crazy.. i have every symptom plus BABS..

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 6:55 PM (GMT -6)   
did you get the FISH test done for babs?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/12/2009 7:02 PM (GMT -6)   
I think that's how I got Bart....from a cat scratch. I used to rescue stray cats and kittens and adopt them out. I was holding a kitten that got scared and jumped down off of my shoulder while scratching me on it's way down. I remember feeling achy and flu-like the next day but never put two and two together until now.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 7:10 PM (GMT -6)   
Can babs and bart cause the neuro stuff? I have a higher chance of having those two from cats than I do having lyme from a tick.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 7:12 PM (GMT -6)   
CG- how can I IM you or are you on your phone?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/12/2009 7:14 PM (GMT -6)   
Jen,

I'm on my phone. Email me, I will get it right away.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 8:14 PM (GMT -6)   
It wasn't a panic attack...I was just laying down and it hit me...I know what a panic attack is trust me - I've had them before out of nowhere. I will say my anxiety did not help what was happening, but it wasn't a panic attack.

Now I am concerned because I'm reading all of this stuff about congenital toxoplasmosis and how infants may not show symptoms until later in life (early adulthood) but that most people with latent toxoplasmosis have AIDS! I haven't had an HIV test in three years and I'm scared out of my mind now that maybe I did get it from this guy right before I got sick and now ..... I'm even sicker!

James, I sound just like you! I'm a wreck thinking about this. I was fine to believe that maybe I just had congenital toxoplasmosis from my mom but what if it's more that that...you almost can't find a website about latent toxoplasmosis that doesn't have HIV being the main cause of the infection.

CALLING DR TOMORROW..........!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/12/2009 8:16 PM (GMT -6)   

I'm deleting my post because Jendays response came up the same time as mine -- they crossed.  So her response covered some of my questions/input.


Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day

Post Edited (+Lyme) : 7/12/2009 8:38:55 PM (GMT-6)


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/12/2009 8:27 PM (GMT -6)   
i'll tell you what, its scary about the hiv thing.. it was always on my mind for 4 years, i just blocked it out, i got sick, and it came full frontal on me.. I had to take the test.. it was horrible and after my results i felt better. i knew i was still sick, but that monster was out of the way..

Jen--just take the test to get it out of the way, ARS is complicated, but you would show symptoms of hiv acute infection 3-4 weeks after exposure.. and even if the guy was hiv positive, there is still like a 1/1000 chance you got it..

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/12/2009 9:17 PM (GMT -6)   
Jen,

Your Lyme doctor can take an Aids test too. Actually, they usually test for Aids and Syphlis to rule them out.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 9:41 PM (GMT -6)   
I got tested for both 3 years ago but geez that means nothing to me now!
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/12/2009 10:09 PM (GMT -6)   
I hate to get so fixated on this toxoplasmosis thing...but one of the differential dx for it is Syphilis...and if Syphilis is a differential, I bet lyme would be too, huh?

This just makes so much sense considering my entire life and my mom's life before I was even born! For some reason I have a strange feeling about this...
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


veromia333
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Date Joined Mar 2009
Total Posts : 674
   Posted 7/12/2009 11:22 PM (GMT -6)   
I'm glad your ok Jen let us know what results u get.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/13/2009 8:34 AM (GMT -6)   
Well, I went in this morning and had these tests done...I have to go to a different hospital for the rest:


24 Hour Urine for Porphyrins
24 Hour Urine for Heavy Metals (already had hair test done)
HSV 1 and 2 IGG/IGM
G6PD
Cat Scratch AB Panel
Toxo IGG/IGM

I had them give me a copy of what they did because at this point I question everything...and of course they checked HIV and not HSV...maybe that was a blessing in disguise but I called to have them switch the test to HSV I and II since that's what I was supposed to be checked for in the first place! They said luckily, the tubes are the same color for both tests so they don't need to redraw the blood. I think I'm going to go get a regular HIV test at our Health Department right now since I'm just freaking out about it.

Ah...the only thing getting me through this day is my valium to help with my balance and foggy thinking! I feel somewhat normal for the first time in forever, and it's only because I'm somewhat sedated! lol
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 7/13/2009 8:52 AM (GMT -6)   
Jen,

When I was first sick I went through the same thing as you. I had these "episodes" that weren't panic attacks, but I just thought I was going to die and something really bad was happening. I couldn't explain it, but I would run to the ER to be told to "relax" and given an ativan and sent home with all my tests coming back normal. It went on for a long time and I knew in my heart something was really wrong. Well, it was and it was lyme. I too thought I had HIV, I thought I had a disease no one had ever heard of that they would name after me when I was gone. It was bad and I was obsessed with thinking it was something other than lyme for a long long time. Well, that was 14 years ago and the only think I had was lyme. And believe me, that was enough. I spent so many nights with my heart racing out of control. With sever anxiety and panic and fears. With the mental issues and physical issues, fingers tingling, head tingling. You name it, I had it. There were nights I didn't know if I would make it through the morning. One night I even had my mother stay in bed with me because I didn't want to die alone and I knew I would not make it. Well, of course, I did. It is the lyme that makes you feel this way and think this way. I eventually stopped going to the ER because I knew they wouldn't find anything and couldn't treat what I had. I just had to stay on the abx and somehow find a way to get through each day, sometimes minute by minute. But, after some time, things got better and eventually I did get well. I went on to live a normal life again. I relapsed years later, but here I am with a beautiful 16 month old girl. Granted, I still have some issues with lyme, but nothing like I went through all those years ago. I have my bad days here and there, but for the most part, I am ok and you will be too. I was 23 when I was diagnosed. I got sick at 20 and it took 2 1/2 years on abx along with exercise to get well. It was a long road, but it will happen for you. Try to focus on the lyme and beating it. I don't think you have something else, but ruling things out is good for peace of mind.

james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/13/2009 10:47 AM (GMT -6)   
let us know...

i had my hiv test done, they told me 20 minutes, 3 days later i went back to get my results and the hiv test was actually done that day..

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/13/2009 12:25 PM (GMT -6)   
I got the rapid blood test done...and it was negative thank GOD. She did it right in front of me and talked to me (asked me sexual health questions) the whole time.

She asked if I wanted a Syphilis test and I said absolutely...so today I was a pin cushion! I've gotten poked 5 times since yesterday!

I am relieved though.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/13/2009 12:42 PM (GMT -6)   
That's good to hear Jen! And it must have been nice to get the results right then, rather than having to worry for days (like poor James). I've always thought it's annoying that they only call you if the results are positive!
 
Good luck with the rest of your tests!
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