Western blot by Lapcorp....or was it an Elisa? Aren't those like 30% accurate. Please reply. Scared.

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Beautiful Disaster 28
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 9:53 AM (GMT -7)   
I am so confused. Last April, 2008, I tested cdc positive for Lyme and Bart. Then we rested in June through Labcorp. CDC positive again. Then I went to IGenex. Pretty much off the charts positive. Band 31 with confirmation test that confirmed it was Lyme and not other viruses. Cost me a lot of money. I had a ton of bands....or at least a lot of bands according to me, considering I didn't expect to see that many when I got the results. My llmd at the time said I had the almost the most out of anyone I had ever seen.

So, then my NEW regular doctor performed a Western Blot but it looked more like an ELISA but maybe I am wrong. What's going on? It said there is no Lyme. I remember hearing a story that a lady from Connecticut who was one of the originals who was treated by Alan Sterre (sp) who told her that you never ever get rid of this bacteria. She tests positive for every follow up. She is older now of course but still comes up positive. The test results that I got back are confusing but he says I don't have it. I will include them because it doesn't make sense to me. My other WB always had bands listed either reactive or non-reactive. This seemed to just have titers or whatever.

I feel sicker than EVER. The doctor thinks because my hands are not crippled that I don't have Lyme and it's Post Lyme Syndrome. The only place I have arthritis is is my back. My knees are bad also. For a long time it was just my left knee....long before I was sick. Now it's my right knee.

I'm confused. Lyme or NOT? Why was my IGenex test so positive? I don't understand this.

I won't bother with all of my other symptoms because it's a laundry list and I don't want to bore. But I almost have ever sx under the sun.

Can someone tell me about this result??? I really need help because now it brings me back where I was 2 years ago. Doubting, wondering, feeling like I've been on the wrong track. I haven't been on ANY abx for 10 months, can't afford it.

Did they run an Elisa on me? My others showed bands either Abnormal or non reactive. This had no bands at all.

Can you fill me in?

Here's the results: The lab tests states: L Lyme AB/ Western Blot Reflex....is this the same as a Western Blot. My other papers say "Western Blot", not "Western Blot Reflex"

Lyme Anti body reflex: IgG/IgM AB greater than 0.91 and index range 0.00 -0.90 My doctor said that is negative but when I look at it, it looks like it's over the index range, am I wrong?

Then, the other part of it is "Lyme Disease Antibodies, Quant, IgM: greater than 0.91. Index range 0.00- 0.90.

This was an Elisa right? It says EIA. Does that mean Elisa? I'm so confused. Can anyone help me? My doctor says it's negative but I wanted a real WB with the bands! This doesn't seem to be it. As much help as as many replies are possible. I feel like my diagnosis has been taken away and now I feel back to square one. I also found out that I have Hashimoto's yesterday. HELP!
Lyme

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 850
   Posted 7/14/2009 10:10 AM (GMT -7)   
If you tested positive on all those tests...you have Lyme.

Many would "kill" to test CDC positive thru LabCorp!
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


Beautiful Disaster 28
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 10:18 AM (GMT -7)   
That's what I thought 2xshy....

Can anyone expound on what those titers mean or whatever they are? To me, it looks positive. Can someone explain in all of your knowledge and expertise? Negative or positive?

Beautiful Disaster 28
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 7/14/2009 10:19 AM (GMT -7)   
Also, was that a WB? My other WB showed BANDS....either non reactive or reactive. This wasn't anything of the sort. Does EIA or whatever it is, isn't that an Elisa?

Stunned123
Regular Member


Date Joined Apr 2009
Total Posts : 114
   Posted 7/14/2009 10:23 AM (GMT -7)   
Hi,
I am understanding that the result given is 0.91? Was that your result? It sounds like they ran and ELISA screen. I believe if that titer comes back positive, they automatically run a WB. You might have to ask them to run a WB specifically.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 7/14/2009 10:45 AM (GMT -7)   
Yeah this doctor for one does not believe in chronic lyme. you can tell this by his phrasing "post lyme syndrome" this is what the infectious disease society calls any symptoms past antibiotic treatment. So run from this one or dont use him for any lyme reasons.
Also yes in my opinion these tests are not accurate at any percent!! haha
But truthfully the reason is, the Igenex lab per say looks for the most strains of BB that exist, I think is iss somewhere around 300 known strains of BB.
So Igenex gives u the testing for all of these.
Some of the other labs do not come close to testing u for all of these strains so yes u will be negative if u arent tested for what strain u have.
I hope that helps.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 850
   Posted 7/14/2009 11:16 AM (GMT -7)   
I do not know if it is a money issue, but you really should continue seeing your Dr. C. He can and will get you well. He knows his stuff, follows Dr. B's guidlines and takes most insurance.

One cannot ask for much more than that in a LLMD, especially here in Florida!
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/14/2009 12:39 PM (GMT -7)   
i have a positive labcorp WB. and the ID i was sent to does not belive it. so he ran another test to some lab no one has heard of and it can back negitive. he did this so he wouldnt have to treat me. if your able to go to a LLMD then i say go to em and forget the Drs who do not belive in lyme. you'll be better off.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 7/14/2009 2:30 PM (GMT -7)   
Make sure you have read my above response that tells you why you got a neg test result.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/15/2009 2:06 AM (GMT -7)   
It looks like you had an Elisa done. Why did this new doc order another Lyme test after you had all the other ones that were positive? Had a been some time since the last one?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 7/15/2009 10:07 AM (GMT -7)   
bump mk sure u read all above responses
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/15/2009 12:59 PM (GMT -7)   
You have Lyme......

Your doctor is ignorant as far as Lyme goes

When Lyme bacteria goes deeper into the tissues, brain, muscles and bones, it leaves the blood stream and eludes detection. That is why many blood tests are negative after testing positive. The cork screw shaped bacteria screw themselves into the body deeper and deeper, as you get sicker and sicker while uneducated doctors tell you you have no Lyme.

Walk don't run to a Lyme literate doctor as soon as you can and educate yourself about this horrid disease because you will have to be your own advocate. The doctor probably won't be covered by your insurance if he is any good as far a lyme knowledge. But what ever you pay will be worth it in the long run. Take this advise from one who knows, has been there, has done that and more!

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!

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