Do I Dare to Hope

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/15/2009 10:37 PM (GMT -6)   
I saw my nuero tonight, he is my last hope for treatment in Tx. he placed me on Gabapentin 300mg 3x day. and thinks i need to up the dose now, do to the neuropathy and now the reflexes in my right knee are not working. he hit my 3 times and nothing happened at all.
 
he whent over everything else too with me. the MRI and the blood work from my other DRs. so he is ordering about 6 new tests for me to have tomorrow(blood work) then a EEG, and spinal tap. witch i do not want.
 
he told me if he finds whatever it is he is looking for he will treat my aggressively for lyme then. i posed a nice puzzle to him tonight. and told him i am getting worse each day.
 
so i guess now i have no choice but to have the spinal tap to get treatment, uggggg
 
sad part of this is its going to be another 2 months b4 i can have it all done and see him again.
 
oh yah he also thinks i may need to start B12 shots too.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/15/2009 10:45 PM (GMT -6)   
Hi RD!

I really hope he does decide to treat for Lyme- it's great that you've even got a doc to consider it! Too bad you have to wait two months, though. He's not looking for Lyme in the spinal tap, is he? Because I've heard that you only have about a 20% chance of finding it....

And B12 shots are a good idea. They help with nerve pain/symptoms.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/15/2009 10:55 PM (GMT -6)   
he said he was looking for some kind of enzymes. for a few different things. he is very hard for me to understand.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/15/2009 11:45 PM (GMT -6)   
This is what all of our hope here at the forum and your persistence can do. Keep on going darling! We love u!
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 7/16/2009 7:07 AM (GMT -6)   
You should visit Dr. Zhang's website. The chinese herbs have helped me a lot. www.sinomedresearch.org/drz.htm His book explains his methods. And it is explains why antibiotics only can take you so far.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/17/2009 1:29 AM (GMT -6)   
ttlittlestar, thank you for the link i will look into it and see what i may come up with.

V, i'll keep going till i'm 6 feet under. i'm not one to give up. i do know when i am not being treated properly tho. i am just scared to get my hopes up again to have them dashes once more. it is so sad when you are put in this place by Drs.
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 1:35 AM (GMT -6)   
It makes me so mad that they are giving you the run around like this. They are taking all of these tests, repeating some, and it is less expensive to just treat you. This just blows my mind.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/17/2009 1:46 AM (GMT -6)   
CG in the last yr alone i have had my CBC and RA test done 5 times. CBCs are a lil high but have been at the same number for 6 months no change. i was told my body is fighting something most likely arthritis. but they do not know what kind i have.

just my luck i have something no one heard of. i want it named after me.LOL
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 1:48 AM (GMT -6)   
Well, I'm afraid that disease is.........Lyme! Tada! I should become a doctor. Ha!
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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