Test Results...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/17/2009 5:06 PM (GMT -6)   
Toxoplasma Ab IGG - 0.0
Toxoplasma Ab IGM - .09 (neg)
HSV1 IgG - 5.98 (out of range high)
HSV 2 GLYCO IgG .08 (negative)
HSV 1 & 2 Ab, IGM .59 (negative)
Cat Scratch Fever Bart Hen Ab IGG <1.64 (neg)
                                                 IGM <1.16 (neg)
This test is a different strain than Igenex tests for Bart, I believe, because my doctor said Cat Scratch is a BLO (bartonella like organism)
 
 
 
So......I know HSV 1 is common but isn't that a pretty high number?
 
Anyone care to share and compare? :)
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/17/2009 5:12 PM (GMT -6)   
i dunno if that is high or not, but i know mine is prolly up there too.. i get cold sores all the dang time.. Did you run a mono test?

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/17/2009 5:46 PM (GMT -6)   
No, he didn't do a mono test and I've never had mono or any mono symptoms.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 7:15 PM (GMT -6)   
Now you need to get checked for HHV6, Epstein Barr, Mycoplasma and Cytomegalovirus.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/17/2009 7:42 PM (GMT -6)   
mono resembles alot of lyme stuff. usually people with lyme have mono.. i would get the EBV test done to see where your at on your levels..

as far as other tests.. i have no idea what else to do.. there are so many things to get tested for..

Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/17/2009 7:51 PM (GMT -6)   
Chantel - I'm pissed because I asked my LLMD to check for HHV 6 and he didn't! I did however get tested for EBV and Cytomegalovirus as well as Parvovirus.

Should I really have him test to mycoplasma?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 8:00 PM (GMT -6)   
I think Ticker is the one that told me to make sure I got tested for Mycoplasma. It can do some nasty things to the body. I would get tested for it if I were you. I know it's alot to check for, but if you have these viruses along with Lyme, it can make you real sick.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/17/2009 8:35 PM (GMT -6)   
But can they do anything for these viruses if they are not active? Or I suppose they wouldn't hurt you if they weren't active...
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/17/2009 8:43 PM (GMT -6)   
James, or anybody, can you tell me the correlation between Lyme and Mono? I had mono as a teenager and that shows. But I also show a current infection. Significantly high (>5) IgG for both VCA and EBNA . I thought that w/ mono, you were immune for life? Is this of significance?

The only HHV tested was for HHV6. One sentence in the 'interpretation' states that there is a high prevalence of HHV-6 antibodies in a 'mid life population.' However, it goes on to say that rises in antibody titers have been detected during infection w/ other viruses, thus there is a high prevalence of HHV-6 antibodies, and so correlations between IgG titers w/ specific diseases are 'of little clinical value.' What does this mean?

I am very interested in hearing what you all say about the HHV6. I have test results but no updated Dr visit yet.

My Parvovirus B-19 IgG is also high, 'out of range'. But it also says that 'specific IgG persists for years and provides lifetime immunity... Majority of adults show evidence of past infections. It goes on to say that in the immunocompromised, chronically anemic, and a fetus, more tests are recommended. (ie; IgM)

So does anyone know what this means? Why order it if the antibodies are so common? Or does, 'high out of range' indicate current infection? Or are these tests a way for the Dr to check on how well my immune system is working?

No CD57 results yet. Labcorps sent results to Quest, absolutely no idea why.

James, and anyone else, if you know, please tell me how mono and lyme seem to be somehow linked?
 
..... and then there's my nasty Babs high enough to indicate 'acute infection.'
 
great, just great.
 


Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day

Post Edited (+Lyme) : 7/17/2009 8:48:48 PM (GMT-6)


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/17/2009 8:49 PM (GMT -6)   
to my understanding, once you get mono, it stays dormant in your body, so my llmd told me 95% of people have the EBV virus.. Mine was at 2.24 and my LLMD wasn't concerned about that number. kinda of like chicken pox, you get it and the virus stays dormant for shingles, and some people get it later in life when their immune system is down.. My LLMD said, once something stressful happens in your life, you might suprress your immune, or if you overtrain your body, you immune system is weak and these virus' come out.. they flare!!

Gracies mom told me to get checked for mono. so i did, and it came back positive. somehow they are linked though..

Post Edited (james from missouri) : 7/17/2009 8:52:09 PM (GMT-6)


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/17/2009 8:58 PM (GMT -6)   
Thanks, James. I'm going to do more research on this!

Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 9:41 PM (GMT -6)   
Lyme,

Alot of people have these viruses BUT they lay dormant. Only when the immune system becomes compromised, do these viruses come out. That's why it's important to check for them. If your titers are high enough and the test shows an accute infection, then you will get treated for it if there is a treatment protocol. For HHV6, valtrex is given for treatment.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/17/2009 10:42 PM (GMT -6)   
they have also linked hhv6 to ms
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/17/2009 11:57 PM (GMT -6)   
HHV6 was horrible. I went through alot of fatigue and brain fog. I remember having those symptoms the most. I felt like I wasn't even here on this earth. It was a weird feeling. Some days, I felt like I was going to die. It was just awful!

It gives you flu-like symtoms too but feels 10x's worse than the normal flu.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/18/2009 12:06 AM (GMT -6)   
Did you get treated for HHV6? I've been reading about this a lot lately...do you know how you got it?
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/18/2009 12:16 AM (GMT -6)   
Hey Jen;)

No, I didn't get treated for it because my titer wasn't high enough. The nurse told me that I would just have to let it take it's course. I felt like complete crap. In my opinion, I think I should have been given something.

I was a secretary at a Chiropractors office. I was around patients all the time and some even came in sick. I think it is possible that someone could have been carrying it and I contracted it because my immune system was so low.

I remember telling the chiropractor how awful and how tired I would get drinking energy drinks. She told me then that it sounded like my immune system was shot. Well, she was right.....it was. My CD57 was 23!! And it's supposed to be between 60-300. Doctors usually like seeing their patients in the 100's range.

Sorry if I babbled. How are you feeling?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/18/2009 12:24 AM (GMT -6)   
I had to take my Valium today because I felt really out of it even with the Zen stuff...but I'm okay right now...I have to say today has been better than the last week or so. I'm just worried it was side effects rather than a herx. The neuro stuff was terrible.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/18/2009 1:02 AM (GMT -6)   
But are you better than when you first started antibiotics?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/18/2009 1:03 AM (GMT -6)   
I'm better than when I started my Flagyl pulse.
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/18/2009 1:18 AM (GMT -6)   
In my opinion, it seems like the medication is doing something.

What do you think?
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/18/2009 8:35 AM (GMT -6)   
This is just great.   The lab interpretations suggest that HHV6 and parvovirus antibodies are common in adults -- and some lab stuff I've read seem to indicate that because I had chicken pox and measles, possibly 5th disease as a child, that I would have these antibodies because they grant lifetime immunity.  I swear that's some of what I found when researching these lab results.
 
Now, I've looked at HHV6 again and I'm pretty upset about what I'm reading.  I'm also seeing Ep-Barr linked to chronic fatigue.
 
What is up w/ all this?? I understand that folks are misdiagnosed w/ some of those diseases when they have lyme. But what in the heck is this connection between these viruses and lyme?  Suppression of the immune system?
 
Did lyme suppress my system so these became active?  Or did my immune system become suppressed because of these diseases and so I was more susceptible to lyme?
 
Also -- the LLMD had made diagnosis of Lyme based on band 39 and clinical evaluation.  I do not yet have my CD57 and the lab did not do another WB as requested.  I am thinking that the obvious Babesia (high enough to be 'acute') lends more weight to having Lyme. Wouldn't it be uncommon to have Babs and no lyme?
 
How will we ever find the answers to these questions?  Maybe eventually, I will help us figure this out, IF I actually have all these infections and IF they are active.
 
WHAT do I tell my parents?  My father is ill too and I don't want to burden them w/ negative stuff (mom is 79 and dad is 80). But they always ask about my labs and Dr visit.
 
My kids think I'm just negative, complainer (which I am).  My daughter believes I am ill, but also believes that I want to be, and that I need an attitude adjustment!
 
OK, I mostly need answers/opinions on the highlighted paragraph. I am very  upset that my LLMD has not contacted me. And I am very upset about the lab missing at least 3 (+ 3 more if you count what PCP ordered) of the tests he ordered.  I know you all have been thru worse and I am very sorry. Still, please help me the questions above, OK? Do I have these infections or does the labwork just show my immunity?
 
From research, I'm certain about the mono. Looks like I need to do more.  But if I also have the other 2 infections and they're active, I'm in some deep doo doo.  (never had a fever blister in my life, but I think this is a different herpes)
 
I'm sorry, but I don't recall if anyone has posted anything on parvovirus?  my number looks fairly high, I think. (over 5)


Suspect TBI in 1972.  Attacked tonsils (recurring high fevers, constant low grade fevers, chronic tonsillitis) , pregnancy (miscarraige), appendix, heart (mitral valve prolapse), hypoglycemia, depression, chronic acute neck and back pain.  

Next suspect Mother's Day 2007.  Diagnosed w/ Lyme and Bart June 2009. (awaiting more test results)

In treatment for recurrent depression, anxiety, low thyroid.

Bit again 7/1/2009, began Doxy 200 mg /day

Post Edited (+Lyme) : 7/18/2009 9:03:25 AM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 22, 2017 3:22 PM (GMT -6)
There are a total of 2,885,704 posts in 316,631 threads.
View Active Threads


Who's Online
This forum has 157739 registered members. Please welcome our newest member, fjzraa.
422 Guest(s), 13 Registered Member(s) are currently online.  Details
John_TX, imagardener2, 07kr5, Artist Mark, Doggiedo, Casa11, Jerry L., Tsak11, Pirouette, Slowdive182, Uniform Charlie, FLBeachgal, GaryDouglas


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer