Sorry I keep talking about Flagyl...lol...or am I the only one laughing and everyone else is annoyed

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Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/18/2009 11:37 PM (GMT -6)   
I have been reading a lot about this drug lately, and I've come to find that people who experience really bad side effects usually had a really bad bacteria or parasite. There was the occasional person who had something small and got bad side effects, but for the most part I think it's safe to assume that most of the really bad stuff comes from die-off.
 
Okay, I will put the Flagyl discussion to rest now. Haha
 
:)


Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/19/2009 12:12 AM (GMT -6)   
YOU are NEVER annoying! You are just trying to find answers. What you said above makes alot of sense.
I have Lyme Disease; Lyme Disease DOES NOT have ME!

**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/19/2009 11:54 AM (GMT -6)   
I didn't feel bad on it last month...well I should say it didn't make me feel worse than I was already feeling. This month I wanted to kill myself. It happened a few days in. I have no idea why now and not before (?)
Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 7/19/2009 1:12 PM (GMT -6)   
This is something Ticker sent me... not sure if you have read it before.

"What To Expect When Taking A Nitroimidazole
The Lyme patient's response to taking Flagyl, or similar, is rather complex. On the basis of talking with about 100 chronic Lyme patients who have taken Flagyl and closely observing three Lyme patients on Flagyl/tinidazole I think there is a general pattern.

Days 1-6 Mild worsening of symptoms - aches, pains and general malaise. There are often palpitations and some difficulty breathing.

Days 7-10 The honeymoon. Patients feel dramatically better, often with all pain gone, energy returns.

Days 11-21 Unfortunately the honeymoon does not last. While the joint and low back pain may go away, malaise and neurological problems come on with vengeance. Profound lack of energy and motivation.

Days 21-33 Depression. For no known reason deep, deep depression starts about now. It may lead to suicidal thoughts and be very stressful for family members. Being forewarned helps greatly so Lyme patients should warn all those around them before it happens. Depression typically lasts about 10 days. Some Lyme patients react badly to anti-depressants so there should probably be avoided.

Warning! Days 40-60. A number of patients have experienced shortness of breath and palpitations at about 6 weeks. These events may require an ER visit. This may be due to a sudden die off of the bacteria.

Days 34-60 Gradual improvement, especially in neurological status, manifest as "good days". Eventually the "good days" become seven days per week. Profound fatigue remains however and will not abate perhaps for six months. At 60-90 days there should be no symptoms other than fatigue. Time to take a vacation!
"

This list and schedule is almost exactly how ive felt since i started 3 weeks ago.  i am marking on my calender the days where things change and when i move into the next phase.  its been very close to 100% accurate.
 
BTW, I am now taking 3 pills of 250 mg flagyl per day and one pill of bactrim double strength. I will be on this for the forseeable future. I am very very sick now with herx. But i refuse to stop this regimen as i am confident this is gonna kill those little buggers. I am taking 3 percosets a day and that has helped me tremendously with the sickness and the pain. i want this gone!!

Vin


History:
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease - June 08 
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme Disease
Drugs: 6mp 75 mg|lialda 2.4 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Bactrim|PRN Perc/Tramadol
 
 
 
 
 


Jendays247
Veteran Member


Date Joined Jul 2006
Total Posts : 652
   Posted 7/19/2009 1:13 PM (GMT -6)   
Thanks Vin. I actually have read that a few times before but I can't really relate since I've only been on Flagyl for 1 wk at a time! I would be afraid I'd never get a 'honeymoon' phase if I had to keep on taking it!

Current treatment (began June 10th 2009):
Biaxin 1000mg/day, Pulsing Flagyl 500mg/day 1 Week Every Month
 
 
 
"...and isn't it a kind of madness to be living by a code of silence when you've really got a lot to say...?"


rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 7/20/2009 8:40 PM (GMT -6)   
when i was active lyme flagyl kicked that parasites a--. it was hard for the first few months but i think this was the drug that gave me my first symptom free period of time. It was the die off that made me so sick good luck lisa

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/20/2009 8:52 PM (GMT -6)   
Wow. Maybe I was reacting to it working and my sickness was not just a side effect. All I know is that I was nonfunctioning on it. I dont know if i have the guts to try it again. I am scared of that crap!!!!
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