Hello, Sorry I just kind of jump on here from time to time and post. I guess I should introduce myself. LOL
My name is Amy and I live near Youngstown, Ohio. Our entire family has Lyme. My mom, brother, his fiance, myself, my 2 boys, maybe my daughter and my husband.
I tested CDC positive for Lyme in October of last year. We think I am congenital. Have had some chronic health issues since I was a child. My mom has been sick and misdiagnosed since she was a child.
After I had my last son c section in 99 then my grandma died. It was a very tramatic time for me. This is when things strarted to really go down hill for me. My anxiety & depression got worse. Started getting stomach & bladder problems. Although I did have frequent bladder infections and constipation as a child. Anyways, then I started getting memory problems. Then fatigue, neuro symptoms and arthritis. All over about a 9 year time frame.
My mom had the same pattern to her illness, which at the time she thought was Fibromyalgia. She also had several other health problems on top of that. All probably from Lyme but we didn't know that.
After many doctors, thinking I was crazy and many years of researching on my own I thought it might be Lyme. I went to an LLMD and got tested. Then talked my mom into a test. Not only does she have Lyme but almost all of the co-infections too! She is very sick!! Had I not figured this out she may have died!
So my kids have had many health issues over the years. I started to think maybe they had congenital Lyme too. So we had them tested. My youngest son also has Aspergers (a form of autism).
We are all in treatment now. I just recently took myself and my 2 boys all the way up to WI to see a new LLMD. The one we had wasn't trying new things and I felt like I was going nowhere.
I was taking 600 mg of Doxy and 1500 mg of Biaxin but now I am pulsing 1000 mg of Biaxin with 300 mg of Clindamycin HCL.
That is my very brief story. LOL As we all know our real stories are very long!! Glad to meet everyone!! Amy
One BIG Lyme family!! Possibly congential...
~I tested CDC positive 10/08
~My mom Igenex positive 11/08
~My brother Igenex positive 4/09
~My 2 boys some positive & IND bands, clinical diagnosis 3/09
~My youngest has Aspergers too (a form of autism)