Under Our Skin

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trollz5
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 6:31 PM (GMT -6)   
Hello! I am very new to this group, actually, just tonight.
 
I'm hoping someone can tell me where I can purchase the DVD, "Under Our Skin". I read that it doesn't release until Sept., however, I've read some posts here that suggest otherwise.
 
I've been on a downward slope for 5 years; my doctor insists I have Fibro, but I have no tender points (I've been to numerous specialists and they agree). I've asked to have my Lyme test sent to IGenex, but doc insists that ALL tests sent there come back positive.  shakehead   Last week I went to Dartmouth-Hitchcock Medical Center, and they agree... NO tender points and did another Lyme test; sending it off to the Mayo Clinic. At this time, I have not recieved any results.
 
 
 
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/23/2009 8:46 PM (GMT -6)   

Here is the Web Site that may help you:

http://www.underourskin.com/index.html

Kitt


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/23/2009 8:46 PM (GMT -6)   
Hi Trollz,

You just missed being able to get it. They finally took the link down. I'm so sorry. It is a great movie for sure.

I'm not sure why yout doctor said that all test results from Igenex comes back positive because there are many here, including me, that have a negative result but got diangnosed clinically.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/23/2009 8:51 PM (GMT -6)   

CG, LOL we posted at same time.  I have no vested interest in this site and it is educational so I put the link back up but I am not promoting the movie one way or another and I am sure the members will respect that. I have reviewed the web site.

Kitt


 

Kitt,
Moderator: Osteoarthritis, GERD/Heartburn
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CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/24/2009 12:41 AM (GMT -6)   
Kitt,

No problem darling;) I should have posted it myself even though the link isn't up anymore.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


trollz5
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/24/2009 10:03 AM (GMT -6)   
Thank you!

I did visit the link before joining this group; also saw the "trailer" on U-Tube, and really can't remember how I found this group. [img]/community/emoticons/smile.gif[/img] I'll wait for the video when it comes out in Sept.

I'm sure most people are quite frustrated with all the politics involved, as I surely am. Just a course of antibiotics would be proof (if I got worse), that I do, indeed, have Lyme's. Once again, I went through the symptoms list (hope it's okay to post a link): http://www.jobsoneducation.com/cliniciansCME
/index.asp?show=lesson&page=courses/105213/
lesson.htm&lsn_id=105
and I am SO there! I'm going to email my doc the link as well. I love her and she IS a great doctor... a real person, but I don't think family doctors are familiar with disease like a specialist is (Lyme's Specialist). It's impossible to see a Lyme's specialist in my area... they are not taking new patients for a very long time.

Ironically, I just watched a documentary last night on the politics of co-infections/parasites... scientists or organizations actually own the rights to these new found parasites... how incredibly insane! It's all about greed... indeed. I think it was "Monsters Inside Us", or something like that.

I also know folks who have had their blood work sent to IGenex and had it come back negative, and some who were clinically diagnosed anyway and treated. We are all, clearly, at the mercy of our physicans.

I really like the format of this forum... easy to use, but is there spell check somewhere? <Big Smile>

Post Edited By Moderator (CajunGrl) : 7/24/2009 10:03:21 PM (GMT-6)


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/24/2009 10:55 AM (GMT -6)   
Glad you like the format.  I am sorry but no spell check so do not worry if you make typos or errors we usually can figure it out.  :)
Kitt

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/24/2009 11:36 AM (GMT -6)   
Cindy, thank you for the link. and welcome to the board.

as for spell check. i am able to use the one on my toolbar now. as i am one of the worse spellers here..LOL and sometimes i do forget to use it :(
   RD
 
still looking for answers.
 
Remember that advice if free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/24/2009 9:56 PM (GMT -6)   
Cindy,

Thanks for the link hun. I'm glad you posted it because Ive been having some involuntary jerking and have never seen a list with that on there.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


trollz5
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/25/2009 10:03 AM (GMT -6)   
Thanks, I'm so glad you like the link (I also have the jerking and teeth aching). I'm going to post a couple more links in case someone here hasn't seen them, as well, I'm going to post a couple of emails from a friend (in Bold) of mine whose son has Lyme's. This friend has 3 PhD's, a photographic memory, and doesn't miss a trick.
 
The simplest short answer to the testing conundrum is, Lyme is an immunosuppressive organism. The vast majority of Lyme infected people will test negative for Lyme. I can not overemphasize that a negative test does not mean that you do not have Lyme or associated coinfections. There is also a slew of ridiculous politics that make the test even worse than it could be--if you are ever interested I could summarize it for you, but it is easy enough to find out about. I would put money on the idea that you have Lyme. If you do, a course of antibiotics will often unmask the disease so that you become seropositive. I think that you should pursue it--but of course it is your body. But I think you should call Dr. T. C. in Kennebunk. She specializes in treating Lyme and her husband is her partner and is a naturopath. I also think you should go to this web site and read what they say, especially the Burrascano guidelines:
 
Here is another link I thought might be useful:
http://abreathofhope.blogspot.com/2005/03/interface-if-cronic-lyme-disease-cfs.html
Dr. D. is the doctor we are going to try to make a connection with. . .
 
 
And, this message is more recent...
If Dr. D. is right, IGENEX should give you the positive result you need (he didn't even send a test out for Kieran because he pretty well implied that they almost always get a positive result, but that's not the point, the point is if you try the antibiotcs and they don't help, what have you lost?? So whatever you do to get them prescribed so you can give it a try is worth it.

Meanwhile, if you do get started on antibiotics, and you have Lyme, expect a flare of symptoms, somteimes pretty severe...take comfort, if it happens, that that is considered nearly diagnostic by Lyme practitioners and means you are on the road to recovery.
 
Now, my daily prescriptions are: oxycontin, oxycodone, neurotin, clonazapam, etc., etc., so you would think that with they slew of doctors/specialists that I've been to and no one can give me an actual diagnosis other than, well, maybe Fibro, that they would at least try the course of antibiotics. I guess I'll just have to insist more loudly.
 
Sorry this is so long...
Cindy
 

Post Edited By Moderator (CajunGrl) : 7/25/2009 11:20:00 AM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/25/2009 11:30 AM (GMT -6)   
Hi Cindy,

Please check your email hun:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2993
   Posted 6/2/2012 6:24 AM (GMT -6)   
I'm hoping someone can tell me where I can purchase the DVD, "Under Our Skin"


I found the podcast for "Under Our Skin" on Hulu:

www.hulu.com/watch/268761/under-our-skin
Male/60 DX ulcerative colitis Feb08, or maybe Crohn's colitis.
No Meds, allergic to Mesalamine. Remission since Mar10. Psyllium seed mixed with VSL3 is very helpful. Food journal instead of SCD.

Lots of fruit & vegetables (but no plums, kale, or carrots), no soda, no gluten, no HFCS, no xylitol or sorbitol, no trans fat, no shellfish, few processed foods, no carrageenan.
Probiotics, fish oil, multivitamin, extra D3, K2, high gamma E, phos choline, magnesium, boswellia, curcumin, glutamine.
Nature created all of the locks, therefore Nature has all of the keys

Post Edited (BabeintheWoods) : 6/2/2012 7:20:12 AM (GMT-6)


Purplegirl
Regular Member


Date Joined Dec 2011
Total Posts : 329
   Posted 6/2/2012 7:53 AM (GMT -6)   
I got mine from Amazon.com
~ Angie ~

Garfield48
Regular Member


Date Joined Feb 2012
Total Posts : 143
   Posted 6/4/2012 3:05 PM (GMT -6)   
you can watch it streaming on Netflix if you suscribe to them.

Also, FYI - I have noticed that there seems to be at least some docs from Dart who do NOT buy into the ILIADS line of thinking that Lyme is hard to find and hard to kill rather they seem more aligned with Lyme is easy to find & easy to kill and that chronic Lyme doesn't exist. I don't know if that is an institution-wide policy or the opinion of particular docs. If I remember correctly, that was voiced on the NH Chronicles Lyme series that you can watch on WMUR.

(Welcome to the world of the Lyme controversy!)
Healing since Jan 5 2012

Azithromycin, HH, Artemesia, Nattokinase, lyme tincture, adrenal tincture, acupuncture & Zhi Bai Di Huang Wan, probiotics, L-glutamine, nature-throid (hashimoto's thyroiditis). Past (bactrim, probenecid, cefdinir)

Garfield48
Regular Member


Date Joined Feb 2012
Total Posts : 143
   Posted 6/4/2012 3:13 PM (GMT -6)   
Just noticed on Dr. Jones site that you can watch it free on-line at HULU

http://www.hulu.com/watch/268761/under-our-skin
Healing since Jan 5 2012

Azithromycin, HH, Artemesia, Nattokinase, lyme tincture, adrenal tincture, acupuncture & Zhi Bai Di Huang Wan, probiotics, L-glutamine, nature-throid (hashimoto's thyroiditis). Past (bactrim, probenecid, cefdinir)
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