I got to talk to a LLMD

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/24/2009 10:53 PM (GMT -6)   
I talked to a LLMD in Co. explained everything to him, and gave him a report on all my test, he quit his practise to teat for lyme as his wife has it. i was so socked when i called and he answered the phone. we talked for about an hour and he told me i needed IV abx. but that he is not able to do the IVs.
 
so he then gave me the  name an number of another LLMD in Co springs. anyone have any info on this Dr. please share :)
 
 
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/24/2009 11:32 PM (GMT -6)   
RD,

Can you email me his name? I can look him up and send you a link to read until you get more responses.

Btw, that's awesome you got to finally speak to someone!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/25/2009 3:34:40 AM (GMT-6)


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/25/2009 3:03 AM (GMT -6)   
that's good news - I hope this is the start of a 'turning point' for you - keeping everything crossed!!

gorbsx

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 7/25/2009 10:16 AM (GMT -6)   
RD: I was excited when I saw your post, I was hoping you found someone is Texas. This LLMD did not know anyone here that could treat us?? D

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/25/2009 10:50 AM (GMT -6)   
TryingAnything,

Hi there:) How are you doing today?

The doctor she talked to knew that she needed IV antibiotics because she has alot of neuro problems. Having neuro problems with Lyme usually calls for aggressive treatment. And IV antibiotics also break the blood brain barrier.


**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/25/2009 11:39:03 AM (GMT-6)


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/25/2009 11:14 AM (GMT -6)   
Dowa
how far away from Denton Tx. are you? there is another LLMD there. its over 600 miles for me and so is the one i called in Co. i chose to call him as he was close to my b/f family in Wy. so i wouldn't have a hotel bill. but he even told me of the one in Tx. this man also left his reg practise to treat lyme as a family member has it.
it is so sad this has to happen for them to wake up to the disease. email me and i will pass you the info.

i explained everything to him. all my tests MRI EMG Blood and so on, he said my bans 23 was only lyme specific and i should be in aggressive treatment. and that i was in NJ should of told the ID i was not a false positive.

on Monday i will be calling the other one he gave me the info on, and go from there. now i have possible found a Dr. i have to work out a way to go and pay for it. this alone can be the hardest part for me.

tryingAnYthinG
he seemed to know his stuff about treating lyme as his wife has it. and that i was more then likely exposed to it 10 yrs ago aggressive treatment is needed
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/25/2009 6:35 PM (GMT -6)   
Neurological Lyme usually needs IV abx.
RD has severe neuro symptoms
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 7/25/2009 7:55 PM (GMT -6)   
Well # 1, you DO know why and YOU know we do also.

#2, You keep asking the same questions over and over again. NO Duplicate posts, please read the rules.

If you would like further discussion, please feel free to Email me.


Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/25/2009 8:54 PM (GMT -6)   
Hooray! That is such good news RD! Hopefully you have as much luck with the doc in Co. springs.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/25/2009 11:09 PM (GMT -6)   
i am praying! things really cant get worse. i know i need treatment and i know i cant get it here where i live so far. so when i call on Monday and the they say either yes or no to helping me i am either going to get better or i am in the same boat I've been in. but i will not go down without a fight.

now maybe my neuro will be willing to treat me if i get confirmation from a reputable Dr too as he is right here. he is the only one i have seen so far who doesn't say there is no lyme here or you have a false positive. he just goes by a lot more then the test alone. i am due to have a LP on Tuesday. then i will know if he will believe i have lyme or not.

1 thing in my favor is i have copies of my tests. please anyone reading this who doesn't get there copies do so now as it can mean big savings and less testing in the long run.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/26/2009 4:01 PM (GMT -6)   
RD, I am so happy for you and wish you all the best with this new doctor. It all sounds very hopeful. Sending you lots of prayers, hugs and positive thoughts.


TryingAnything, I haven't been on the forum much the past week or so and just have to ask - Are you lymekiller posting the same questions and comments now using a different name? If not, I apologize for asking. If so, I doubt you are going to find that our responses have changed much from two weeks ago.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/26/2009 4:10 PM (GMT -6)   
RD, I truly hope this works out for you!  Your case is one of the most criminal cases I have known! Once you get  your answers and your treatment, I hope you have a whopper lawsuit for the negligence you have endured!

 


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 7/26/2009 4:24 PM (GMT -6)   
I apologize if I offended you. Your posts sound a lot like lymekiller and I noticed he has not been on since you starting posting.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 7/26/2009 11:15 PM (GMT -6)   
scorpio and +lyme, thank you both for your thoughts and prayers, as you have them in return from me.

as for the lawsuit. once i have proof positive documation to back it up . you can bet your sweet buttooty i will be right on it. i do not ever want to see someone else have to go thro this bull. hipocrater oath my butt. they do more harm in my book by turning us away.

i am not alone when it comes to finding someone willing to work with us, but there is more who can not aford to pay out of pocket then can. so we do without? cause we cant work for being sick? why should we be made to suffer do to a disease we didnt ask for.

if i do this siuy witch i am more then willing to do. i will have it all set up to help others who cant aford to pay so they can get treatment too. this is my goal!!

scorpio, i have thought it was Lk too. it all adds up same bands same sx. same questions. just a new set of clothes..LOL it could be he wasnt killing the lyme fast enough, so he changed nics. and like you if i am wrong i am sorry. as i do not want any heard feeling to come of it.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 16, 2017 1:37 PM (GMT -6)
There are a total of 2,856,134 posts in 313,369 threads.
View Active Threads


Who's Online
This forum has 155033 registered members. Please welcome our newest member, LoveBill.
521 Guest(s), 11 Registered Member(s) are currently online.  Details
fadedaway, PeterDisAbelard., Doggiedo, LoveBill, Mrs. Brady, Doire, KittyJ, Cctree23, dennishayesiv, rcroller, Red Leg


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer