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Traveler
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   Posted 7/26/2009 4:59 PM (GMT -6)   
Hi All,
I was reading Dr. Burrascano's "Advanced Topics in Lyme Disease", and he mentioned the "Lyme Shrug". Can anyone explain this to me?

How is it different than, say, a 'regular' shrug?

Thank you in advance for any help that you can give.

Trav

Post Edited By Moderator (MMMNAVY) : 7/26/2009 7:27:22 PM (GMT-6)


+Lyme
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   Posted 7/26/2009 5:04 PM (GMT -6)   
Do you think it could mean the sort of shoulder twitching that the guy in the Under Our Skin trailer has? The guy that says if he dies, maybe his death could help others not suffer what he has. Check it out. I do not know if this is what Dr. B means, it just came to mind.
 


Traveler
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   Posted 7/26/2009 7:08 PM (GMT -6)   
Thank you so much +Lyme!!

I look up the trailer for 'Under Our Skin' as soon as I get home.

Right now I'm at my daughters' house, helping with the beautiful little grandson she 'gave' us 2 weeks ago.

I'll be going home tomorrow, where I'll have my 'puter back.

Thank you again!

Post Edited By Moderator (MMMNAVY) : 7/26/2009 7:28:13 PM (GMT-6)


Traveler
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   Posted 7/26/2009 10:19 PM (GMT -6)   
Hi +Lyme~

Okay, so I couldn't wait until I got home to watch the trailer. But I did not see what you were trying to explain - am I having one of those Lyme moments we all love so dearly?

Will continue to search this out & will post any solid info I come across.

Thanks again,
Trav

Post Edited By Moderator (CajunGrl) : 7/26/2009 11:33:18 PM (GMT-6)


CajunGrl
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   Posted 7/26/2009 11:35 PM (GMT -6)   
Traveler,

Hey hun. I think the guy that Lyme is talking about is on the DVD. I don't think he's on the trailers.

Btw, if you don't mind, can you shorten up you signature a little. 10 lines is the most we can have including spaces. Thanks hun:)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/27/2009 10:17:00 AM (GMT-6)


Nicky D
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   Posted 7/27/2009 8:16 AM (GMT -6)   
Hi traveller,

I actually thought the "Lyme shrug" referred to the cracking/popping joints LD patients get. This is typically the worst in the shoulders/neck. So you get a shrug that sounds like you're crunching soda bottles...(I have this :).


This is much more common than the "shoulder shrug" the girl in UOS has. Strong twitches like that usually only occur in severe cases of LD, while the noisy shrug can occur with all severities.

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 7/27/2009 11:41 AM (GMT -6)   
I would really like to know more about this. I have this type of thing I do with my shoulder and I would definately call it a shrug, I always thought it was some sort of nervous twitch. I am aware of the fact that I do it, just hard to stop. NEVER imagined it could be from Lyme, amazing. Is there anything I can read about it online?? D

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35849
   Posted 7/27/2009 2:16 PM (GMT -6)   
CajunGrl said...
Traveler,

Hey hun. I think the guy that Lyme is talking about is on the DVD. I don't think he's on the trailers.

Btw, if you don't mind, can you shorten up you signature a little. 10 lines is the most we can have including spaces. Thanks hun:)


Hi Cg!!
Thank you for that info - I think I'm beginning to understand the whole lyme shrug thing!!!
& I shortened up my sig. - please let me know if it is not okay yet ~ please??

Thanks CG!
Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 7/27/2009 2:29 PM (GMT -6)   
Nicky D said...
Hi traveller,

I actually thought the "Lyme shrug" referred to the cracking/popping joints LD patients get. This is typically the worst in the shoulders/neck. So you get a shrug that sounds like you're crunching soda bottles...(I have this :).

purple]Hi Nicky!
thank you for your info. I happen to agree with you on this - although I suspect that is the slower hug than normal people do.I currently live with this also. Have had it for all of my entire adult hood. sad

This is much more common than the "shoulder shrug" the girl in UOS has. Strong twitches like that usually only occur in severe cases of LD, while the noisy shrug can occur with all severities.


I als live with those twitches, although mine are not super severe. Most of the time I have only tremors. I have manged to give myself a black eye 3 times & a fat lip 6 or 7 times now! shakehead

Thank you for your post - it's always nice to know that you are not the only one having any (of the many) sx.

Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 7/27/2009 2:35 PM (GMT -6)   
Dowa said...
I would really like to know more about this. I have this type of thing I do with my shoulder and I would definately call it a shrug, I always thought it was some sort of nervous twitch. I am aware of the fact that I do it, just hard to stop. NEVER imagined it could be from Lyme, amazing. Is there anything I can read about it online?? D


Hi Dowa!
I know what you mean!! It's is really irritating & after a while, my right shoulder will start in as well. Geeez!! What a mes Lymies can be in!!

The only place I have seen it mentioned is in Dr. Burrasconos' 'Advanced Topics in Lyme Disease'. I hope to have the energy to find his website - I'm sure it will be packed full of info!!

I wish you the best of luck & love in your search for all of the 'right' info.

Trav
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 4:31 AM (GMT -6)   
Traveler,

Thank you for understanding the signature issue. I appreciate that. Your great now!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/28/2009 7:57 AM (GMT -6)   
I have been searching for the trailer in which I saw the 'shrugging' guy, because I have not seen the documentary, only misc trailers.  I had saved one to My Space and went there to see if it wat the one and when I click on the link it says it has been removed due to terms of use violation.  So now I am unable to find it.  It may have been the original trailer. Are you  able to watch the trailer at underourskin.com?  I am not able to play it for some reason, that's why I went to find it on youtube.com.

 


Dowa
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   Posted 7/28/2009 10:54 AM (GMT -6)   
+Lyme: Can you  descibe what the "shrugging guy" looked like?? This is all new to me, but I am doing something like shrugging and would really like to see it or have it described to me. Never imagined it was a Lyme symptom.  thanks alot      D

+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 7/28/2009 10:24 PM (GMT -6)   
Dowa, sorry, I have to go from memory (LYME memory..... ) this is about all I can remember about him. His segment was very short. He was maybe early 30ish? (but I'm bad guessing age). He was dark haired, white guy, and seems like he was wearing a sweater. 
 
Only shows him from just below the shoulders and up.
There is an intense look in his eyes, sort of an 'anger, frustration, questioning' look.  If I didn't know he was talking about Lyme, I would think he had Tourette's. (in fact, maybe Lyme has caused his tourettes?).
 
As he talks, as best I recall, his shoulders twitch kind of upward like a jerking kind of shrug.  (FREQUENTLY) And he has them bad -- it's continuous in his segment.
 
Anyone here is free to describe him better, cause I don't claim the best of memories.  Maybe I'll try a search on him. Keep this in mind: That he appeared afflicted w/ Tourette's stuck in my mind -- except his face and speech were normal, except for that look in his eyes.
 
He says something about if he dies, he hopes his death will help others.
 
Best I can do unless/until I can find him again.
 


+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 7/28/2009 10:45 PM (GMT -6)   
If you go here, are you able to click on the photo to start the trailer? I am not able to get quicktime started here, but it could be my computer.

http://www.underourskin.com/watch.html
 


Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 7/29/2009 11:15 AM (GMT -6)   
Yes, I was able to watch the clip without problems. I did not however see anyone shrugging in this piece. thanks  D

Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 7/29/2009 3:05 PM (GMT -6)   
Hi Dowa,
I'm thinking the Lyme shrug thing is more of upwards, going forward or backwards, with purpose & pain registering on the face - maybe???
This is definitely more of a mystery than I intended!!! =)
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Lovelabs
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Date Joined Jun 2009
Total Posts : 367
   Posted 7/29/2009 8:01 PM (GMT -6)   
I think Lyme shrug is the inflamation in the neck and back of the head that causes the crunching sounds when you turn your head. Classic Lyme. I have this very bad. I think what the guy in UOS has is a twitch in his shoulder that is severe. I know that when I lie down I get this feeling like I have to stretch and tighten my left arm. I have control over it though I think the guy in the movie didn't. But the shrug is different. Just so you know.

Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 7/29/2009 8:41 PM (GMT -6)   
Hi Lovelabs,
I have had this crackling in my upper back for so long that I really don't remember not having it. It is believed that I was infected with a TBI when I was between the ages of 5 & 7.

I was just wondering how the Lyme shrug was different, as I read about it for the 1st time last week. I was struggling my way through (kind of) Dr. B's "Advanced Topics on Lyme Disease".

I have not yet seen UOS, so I was unsure of what was shown when 'the guy' showed this sx.

Thank you very much for replying.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/29/2009 9:37 PM (GMT -6)   
I know it is the worst symptom. The guy in the movie kept having this twitch in his arm/shoulder. The shrug is different and more to do with the creaking and crackling joints.

Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 8/1/2009 10:33 AM (GMT -6)   
Well, it's good to know that all those sounds are not really 'normal'!!
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Lyme Arthritis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).


Roxie60
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Date Joined Jun 2011
Total Posts : 1115
   Posted 11/16/2013 1:50 PM (GMT -6)   
Wow, I keep learning so much. I thought the horrible cracking every time I move my head/neck was just me getting older. I have complained about it for years, even got to the point it scared me but I was told nothing to worry about (wish I had a buck for everytime doctors have told me that). Even diagnosed with cervical spondilosis last year (had to look it up) the name for a creaking neck?

Never knew the crunching sounds in my neck and I also get loud popping sounds in other large joints could be related to lyme. Want to do more reserach but looks like one of those days I can only keep my head up a couple hours at a time. Back to the couch for a bit. Back later to learn more about this, even has a name crepitant neck

Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 11/16/2013 2:06 PM (GMT -6)   
LOL! Boy was this an oldie!! I find it funny when my older posts get brought up like this. It's interesting to read how I was doing at different points.

Just so that you know, most of the neck cracking, crinkly sounds are gone now for me!! The only time I have it now is when I'm really tensed up and my shoulders are tight as well.
Lyme herbs used: "Chronic Tonic" from www.mistymeadows.org/wendydocs/Lyme Disease.pdf for 9 months

Bart herb - only Houttuynia for 6 months
tx ended 1-2013

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.

Soaring Free
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Date Joined Sep 2013
Total Posts : 714
   Posted 11/16/2013 7:19 PM (GMT -6)   
I thought the 'shrug' was from the severe discomfort in the back of the head and neck, and shoulders....when the person is constantly moving their head, neck, shoulders due to this pain. Doing movements like a 'shrug'.

Maybe I'm wrong, but I have this pain, sometimes for 24/7 and for days (up to 5 - 7 in a row)! I find myself doing this shrug a lot when I'm suffering with this. It's one of the most painful issues I have with the lyme/co infections. The pain keeps me from resting, sleeping, even being able to sit the pain is so severe. Plus, I think after the inability to rest/sleep, the tingling and feelings like my spine in my neck is being crushed together are the worse.

Oh well, one day I will be better than I was before this lyme/co infection! Yay!!!

Traveler
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Date Joined May 2007
Total Posts : 35849
   Posted 11/17/2013 10:06 AM (GMT -6)   
From what I could find out, the 'Lyme Shrug' had to do with the inability to relax the shoulder muscles due to meningitis type symptoms and was something that was continuous. Now however, it seems that even if it's a quick shoulder shrug repeatedly over the course of a day, it's still considered the 'Lyme Shrug'.

I guess if you aren't really intending to shrug your shoulders, but it's more involuntary, it's a Lyme shrug - but like so many other things with this disease, there needs to be more research.

And yes, one day you too will be able to look back at this time and say, "I survived! I'm healed!" :-)
Lyme herbs used: "Chronic Tonic" from www.mistymeadows.org/wendydocs/Lyme Disease.pdf for 9 months

Bart herb - only Houttuynia for 6 months
tx ended 1-2013

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV

Questions about what I've posted or just have questions? Please email me!!! Click on blue envelope under my screen name.
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