Lyme, Doxy or me?

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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/26/2009 6:19 PM (GMT -6)   

I’m really sorry to butt in here again with my own questions while so many of you are suffering.  I honestly do not want sympathies, but hoping for possible answers.

 

It just so happened that the day after my first LLMD appt and lab work, I had to remove a tick from my belly.  Maybe that is not important – it was not attached long, no more than 2 hrs.  This was July 1 and there is still a red mark where he was – he was very tightly clamped on.

 

Because of the new bite, Dr started me on 100 mg Doxy, twice per day.  Since then, gradually, my neck and back pain have returned, the back pain often intolerable, but does come and go. I realize that could be from my old infection – the coming and going.

 

So I don’t know if what I’m experiencing is the Doxy, or a new infection. I don’t’ even know if I’m on enough doxy.

 

The worst, are my psychiatric symptoms. Every day, at around the same time (late afternoon), my body will start tightening up and all my muscles will clench.  I have realized that this is the exact same thing that happened to me after my suspect bite 2 years ago.  I had attributed that to anxiety related to a new job w/ a lot of pressure, because that is what it felt like.   Also, I had a lot of trouble keeping up in training – I could not remember anything.

 

I got so sick from it I had to quit, then go thru the anguish of finding a new job.  Then I went thru horrible depression while job searching.  Since I found my current job, I do need to watch the anxiety, but that part had been better for well over a year – well, at least it felt manageable.

 

Now, (for the past 2 weeks)  it seems to be a physical thing – this starts up every day in the afternoon and gradually builds til my body feels like one huge knot.  Then, when I get home the depression hits me very hard and I can’t find a way out of it.  I feel very desperate and despondent and tho I am not actually suicidal, I don’t feel I can continue on and don’t much want to live anymore.

 

I’m sorry, but it is horrible and I don’t think I can take it anymore.  I have confided to my daughter about this, and also complained about the increasing pain. She watched UOS trailer and reminded me that the treatment can be more painful than the disease.  Beyond that nobody wants to hear my complaints – I am sure because no one knows what to do anyway.

 

I clean my son’s apt every other week for cash and at the end of last week, my back was hurting so bad, I decided to skip a few doses of Doxy and take some Tylenol and see if I felt any better.  I am not positive, but I think I did feel some better. I had a lot of pain, but I made it. And then we had a cookout, so I did not note the depression hitting, although I didn’t feel too hot when I got home. That was yesterday.

 

I took 2 doxy this morning and this evening, the psychiatric stuff has hit very hard.  I feel desperate and kind of ‘out of it’ w/ uncontrollable crying and feelings like I can’t go on.  I can’t even make myself get my stuff together for tomorrow and take a shower or pack my lunch.  I feel like I can’t go to work anymore, but there is NO WAY that I can call in sick – my desk is piled so high w/ work and I am behind.  

 

I used to like my job and I used to like to work. But I feel like I can’t make myself do it anymore. It’s overwhelming and my whole body is so clenched it hurts.  This depression is the worst, tho, because I can’t beef up my attitude or try to think positive – I can’t even see a reason to.

 

The only thing in this world that brings me one drop of pleasure is burying my face into a real live, furry animal (my dogs) and cry.  I have an overwhelming emotional thing there w/ them and I can’t handle it.

 

Well, I realize that I’m rambling and having trouble thinking.  So here’s my questions:

 

If this is the same way I felt 2 years ago, after that tick bite, would it more likely mean that I did contract a new infection (even while on Doxy), or is this possibly the doxy?  Is this some kind of emotional herx?  If it is, I can’t take it, I will have to space it.  Still, I don’t feel like my dose is very high at all. And I didn’t feel anything like this while on Amox (when I had cellulites and then oral surgery).

 

Should I quit the doxy for a few days and see what happens?  I’m scared to make it worse and I’m scared to not do anything. I feel so mentally ill I cannot even make a decision.

 

PS, if it's not too late:  Since starting the doxy I have not been able to sleep well or for very long, even taking xanax. (not unusual for me, tho) I did not take any doxy yesterday and took 4 xanax, which knocked me out and I slept the best in 2 weeks. So could the doxy be causing the sleeping problems? And yes, I know xanax can depress me. I'm also on antidepressants.

 

PPS: it feels so bad and overwhelming, I have a very desperate urge to check into a hospital or something.  But obviiously, I can't.

 

 


 

Post Edited (+Lyme) : 7/26/2009 6:35:20 PM (GMT-6)


james from missouri
Regular Member


Date Joined May 2009
Total Posts : 432
   Posted 7/26/2009 8:25 PM (GMT -6)   
when i started being sick, i had bad back pain in the afternoon.. it went away sort of after a week, a few weeks later i started coughing, so i went to the doc, he gave me doxy, the next day i had the EM rash on my foot.. i thought it was the doxy.. then i prolly figured it was the doxy cleaning house on lyme. I got really anxious and stressed, over everything going on, my back pain is still here today.. It really tight feeling in the lower/upper back.. and i still can't get over this tightness right under my chest, in the middle of the chest and the odd rash that spreads across my chest when i'm active..

i would stay on the ABX until its over.. It can't hurt anything.. as far as sleeping, i was sleeping great before any ABX. When i started the ABX i sleep maybe 4 hrs a night.. it really sucks bad!!

i was going to the ER alot, 3 times in a month.. they did nothing for me.. so unless i stop breathing i'm going to wait it out and take my drugs.. after my tests come back, i can go from there hopefully.

good luck.. stay positive, i have been doing better this way... i surrounded myself with good people these last few weeks, and it has helped me out alot.. plus this place is so cool

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/26/2009 8:43 PM (GMT -6)   
James, that is great for you -- surrounding yourself w/ good people. One major thing that is not helping me is my co-workers. I love my boss -- she is well experienced, VERY smart, fair, reasonable and also helpful. But the 3 B's I work alongside of are total and complete B's if you catch my drif. They often speak to me very snottily, often nasty. One of them is just about off her rocker and she is a real problem for me. I have been working since I was 14 and not only have I been able to professionally deal w/ co-workers' issues since my very first job, I have never been in a position like this.

I really don't care about their opinions of me (they all hate their parents, some of their siblings, and all the workers in other depts. too, so who cares?)But the constant negativity is really getting bad.

btw, the depression is now lifted for tonite.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/26/2009 11:54 PM (GMT -6)   
Lyme,

I have really bad anxiety and depression when I am on antibiotics. I think it was a herx for me. My first herx was the worse. I could not get rid of the depression. It clung onto me like a black cloud. It was so weird. I would wake up feeling this heaviness on my chest....not pain, but depression. I did notice that it got better once that antibiotics were out of my system.

I don't want to tell you to get off but maybe testing it to see if it gets better while you're off will give you an answer. Make sure your LLMD knows you are getting off for a bit.

You do seem to have alot of neurological symptoms. Has your doctor talked to you about getting on an IV?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 7/27/2009 1:55 PM (GMT -6)   
I am so sorry to hear about your ordeal.
Doxy did nothing for me either. And I too had a tiny tick on me and it left a small read dot on me...that is still there.
My 11 mos old got a bulls eye.
My 6 year old had none but I picked the ticks off of her.

200 mg is not enough to do anything. And since there are 300 strains of lyme. Of course you can get it over and over again.
Doxy will not prevent a current infection.
But taking B1 will keep them off of you.

I hear you about the dogs and how great it is to have some company. I would by dogs over and over again and ended up with 5 lol
Does your dog lay about and seem to be tired too? Has your dog slowed way down?
If so....bet he or she has it too.
If you wish to talk to me about this tap on the letter to the left and I will chat with you.

I would get on cymbalta for your pain.
And of course you know that lyme causes insomnia too.
Be careful about the zanax, very addictive.
GEt yourself into a routine and go to bed at teh same time, and get up at the same time. Hard as heck I know.
The cymbalta is much safer than celebrex.
What things are you taking to build up your immube system?
Huge doses of vit C?
Huge doses of vit supp?
Marie

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 7/27/2009 1:57 PM (GMT -6)   
Oh I was doing 400 of doxy a day for 60 days...did not work.
I would try amoxy 1,200 a day. That is what the founder of it did.
My 44 pound daughter did this amount when she got it again last summer. And she got better.
She has some arthris, at the age of 6.
I keep this at bay with lots of supp. now.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/30/2009 5:38 PM (GMT -6)   
Hi Martha, I am way behind here and just now seeing your response to me.  I miss a lot of posts, and cannot keep up!  I appreciate your response and I appreciate how much everyone here cares so much, even tho I am not able to read and respond to all posts. It's all I can do to go to work and give my dogs an outing these days, and not doing well at that either!
 
I cannot imagine what it must be like to be fighting all this for a child! You have my sympathies and my prayers!
Yeah, I have megadosed C and other vites for over 20 yrs, probably the reason I'm not sicker. 
 
 And yeah, saw my LLMD today and he said there was 'miscommunication' about the doxy dose. He did not give me 2 months worth -- he neglected to rx twice as much!
 
He's given me a new script for Amox, which I think I prefer.  However, he said that the amox would not be effective if I contracted Rocky Mt from the new tick bite.  So we agreed, I will double up on the doxy and finish it and then start Amox.
 
Id had about 3 weeks worth of Amox recently for other issues, but it sure seemed like I experienced some improvement -- a little.  But Dr said that wasn't enough amox to have made me feel better. I hope he is wrong and that I respond very well.
 
And yes, I am into working on my immune system, now that I have my test results and new script and can try to set my mind of what kind of work it needs to do!  I really want some LDN, but he hasn't even read the info I gave him yet.  I'm going to come up w/ my own 'protocol' and get cracking!
 
Holy Cow! I was getting ready to post that he'd only presribed 875 mg of Amox twice per day and I didn't think that was enough.  Now I see that it's 875 X 2, twice per day.  Isn't that an awful lot? Since the doxy script was messed up, do you think I should call him about this amox?  HE IS NEARLY IMPOSSIBLE TO REACH!!!
 
I need to go research my CD57 and will be back later.....

 


gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 7/31/2009 1:45 PM (GMT -6)   
doxy made me feel very depressed/anxious I was crying a lot etc, my legs were like lead - I had a feeling of a lump in my throat - acid reflux, etc, etc, - I would say you need to change your abx.

I now take Amoxicillin 2grams. daily - I do not feel anywhere near as awful as doxy. made me feel - according to my LLMD. amox. can be just as effective as doxy.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/31/2009 1:54 PM (GMT -6)   
Thank you, Gorby, I appreciate your post! what you described is exactly how I felt, but I didn't know if it was the doxy, a herx, or a new infection! (had a new tick) Most of the time I could fix it up to not have the bad heartburn/reflux, but it took a lot of work. I have grown to hate that huge bottle of blue pills -- it sits on the counter like a creepy troll and gives me the willies just to look at it. I never felt that way about any other abx before!
 


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/31/2009 2:28 PM (GMT -6)   
Hi +Lyme

How much longer will you be on the Doxy then? Don't ever hesitate to come here when you're feeling down! It's good you have dogs- my dog is my lifeline somedays. And hopefully a lot of this will resolve when you change abx.
I can't really give you info on dosage and side effects, unfortunately.

I hope you feel better soon!
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