IDSA Public Hearing of LD Panel & Presenters - just a little scoop

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JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 7/27/2009 10:17 AM (GMT -6)   
Just got back from Dr. C's office (Tampa) and I showed him a copy of the panel members, etc. (I copied sojourner's post).  Dr. C said that he submitted himself as a panel member/presenter and they turned him down because he makes more than $15,000.00 a year off of Lyme disease patients.....  I thought that amount was if you earned over 15k off of an "interest" in LD; like owning an infusion company, or holding a patent, or being invested in a drug company, etc.  He said, that's what he thought too.  But they denied him.  He circled Wormser and said "That is the loud mouth that needs to be shut up."  HAHA!  I told him I was glad Donta was on the list since he refused to sign the guidelines.
 
Anyway, my visit sucked - I GOT LOST ON THE WAY TO HIS OFFICE!.  And, my gammuglobins are very low..... so after the Invans IV's, I'll be on gammuglobin IV's (I don't even really get what this is about - I'll have to find energy to look into it - I kinda get it, but my brain is so foggy).  My gammuglobin numbers were less than half of the low point of the range.
 
And, I'll have a monthly leaching tomorrow.... as a baseline.  Then I go back to Dr. C's on Wed. to get a pneumonia vaccine..... then in a month I'll get another leaching to see if I am producing any antibodies for pneumonia.
 
I don't seem to be winning this battle...at least not today.  shakehead shakehead shakehead rolleyes rolleyes smhair rolleyes rolleyes shakehead shakehead shakehead
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- I begin to fall apart, 08/01-LD +, 10/01- Igenex and CDC LD positive, 10/02-LD +, 11/03-LD +, 10/07-Bartonella +, CD57=3, koseri IgA +, Morganella +, motgani +,Rocky Mountain Spotted Fever +, Typhus +, Klebsiella pneumonia +, Proteus miabilis +, Citrobacter i IgA +, Hafnia alvai IgA +, NKC4 +, Interleukin 4 (IL4) +, IL8, Immunobillin (IM01) +. 
Rx's 06/15/09: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Lyrica 600, Levaquin 500, Diflucan, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/27/2009 10:26 AM (GMT -6)   
Jelaine,

I sent you an email hun.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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