Any other North Easter Missouri Lyme Victims Out There?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MosinNagantLover
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/28/2009 12:42 PM (GMT -6)   
Hi all, I just joined the forum. I am currently on my 4th round of antibiotics after being diagnosed with Lymes disease a little over a month ago. I basically diagnosed myself after suffering repeated bouts of left sided neuritis mainly in my left arm, ribs, side and breast. When I began having flu like symptoms with general malaise, fever and lack of energy, the alarms went off and I remembered noticing a bulls eye rash on my stomach last fall after receiving numerous tick bites while clearing debris off our property in north eastern Missouri. The doctor was ready to start doing useless CT scans on me when I called him and casually asked if there could be a connection between my symptoms and the tick bites.

BINGO! I was immediately put on Doxy and a month later went through about 18 different tests including the Western Block test. I had one titer come back positive, and while not conclusive, ( he said that took 10 positive titers )my doctor said that given the fact that I had the rash, had the bites and had the symptoms, that was conclusive enough for him and reason enough to continue treatment.

Soooooo, after 5 weeks on Doxy, I am on my second ten day round of Amoxicillin and feeling gradually better after each round of antibiotics. I went through something similar to this many years ago when I was diagnosed with Rheumatic Fever and I am a nurse so I recognized the unmistakable signs of a bacterial infection and know how persistent they can be.

I'm hopeful that after this round I can back off on treatment. At this time I'm no longer running fever, my thinking isn't quite as fuzzy, I'm only having twinges of neuralgia instead of continuous raw nerve agony I was experiencing and my energy levels, while not great, are better.

I may be a nurse but I'm new to this Lyme nightmare. How good can I expect to feel? I have a suspicion that like Rheumatic Fever, it likes to shall we say hang around and torment you from time to time. Every local person I know who has had Lyme disease tells me I caught it early so I should be able to eradicate it. This has been going on for almost a year now though and frankly, it can go away any time it wants to!!! tongue

I was also wondering how many Missourites are out there, especially NEMOs who have close encounters of the tick side and lived to tell about it.

What's your best defense? Seems as tthough no matter what I spray on me one trip out to check our fields or fish and I'm finding new ticks on me.

My general opinion is that all ticks need to painfully die but I know that's impossible. SO what have you found to be the best insecticide to use?

Thanks in advance for any information you can pass on.

I was lucky that I have a doctor who listens to me!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/28/2009 1:41 PM (GMT -6)   
Hi Mos,

Welcome to the forum! I have some information below that will help you in case you want to find a Lyme Literate Doctor. Also, if you do a search, you will find a discussion on using B-1 as a repellant.

Have you found a good Lyme Literate Medical Doctor yet? You should post your email so that members can tell you the contact info privately. You can email: stephanie@turnthecorner.org to find a Lyme Literate Doctor in your area. You can also go to: www.turnthecorner.org/bod.htm and ask for further sugestions.  

For more info, please read the topic at the top of the first page of this forum tittled "The Basics, Newbies check this out". It will help you get started learning about lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 7/28/2009 2:15 PM (GMT -6)   
You mentioned neuritis on your left side with breast involvement. May I ask you if your breast actually swells when it flares up? I have one sided pain and my left breast will actually swell when it happens. Doc does not seem to know what it is. Thanks and welcome, eveyone here on the forum is very helpful....     D

MosinNagantLover
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/28/2009 3:07 PM (GMT -6)   
Yes, I did have swelling along with the pain. One side of my breast even seemed to be swollen more than the right side and the pain was like sharp needle/stabbing pains. The doctor could palpate the tenderest areas and the worst was the pain under the breast which was like a constant toothache. He called it a neuritis and could trace the path of the inflammation from my spine around my chest wall, following the nerve path.

It has subsided and after the initial treatment of antibiotics, the swelling went down dramatically. My personal suspicion was some sort of lymph node engorgement/inflammation that was causing the swelling. The breast is so cystic even normally that who knows what affect the infection has on them should it settle there? My left breast is usually my smaller breast and suddenly, it was larger than the right. shocked

I'm still having some twinges at times, but nothing like before. Getting a mammogram is still really low on my list of things to do because frankly, I don't think I could still stand the pressure on that side.
Life is what happens while you make other plans. The late great John Lennon


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 7/28/2009 3:18 PM (GMT -6)   
Thank you so much for your reply. My problem I would say is the same, neuritis. The doc I was seeing (not LLMD) thought vasculitis as it causes the same stabbing sensation.  (and feels warm to touch) Were you ever told that was a possibility, vasculitis is common with Lyme Disease. Thanks again  D

MosinNagantLover
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/28/2009 3:39 PM (GMT -6)   
No mention of vasculitis. I didn't have any "hot spots" or redness that I noticed. The swelling was weird at times. I could trace the worst of the swelling from 1pm to center if you picture the breast as a clock and go clockwise with it. It seemed to be a palpable ridge that was really tender. The area is still slightly tender but there was never any discernible lumps.

My doc isn't exactly llmd, although there are people in our area who he is treating for Lyme so he is familiar with the disease. He spoke of a Communicable Disease Specialist that he knows but everyone I have talked to in our area who has experience with the disease all say that there is a GREAT LLMD in Springfield MO that I should consider if things don't settle down.

What symptoms have you had with the vasculitis? Is that the culprit behind the headaches you get with this??
Life is what happens while you make other plans. The late great John Lennon


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 7/28/2009 4:32 PM (GMT -6)   
Vasculitis is very common in Lyme. It can cause pain anywhere as it is an inflammation of your arteries and yes it can cause headache and stiff neck as well. The doctor in Springfield is the doc who diagnosed me over the phone after I faxed him my lab work. If he is not far, I would definately go. I have heard only great things about him and appparently is a great "person" as well as doctor. He has a great web  site, have you seen it? Thanks for your replies, good luck-   D
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 19, 2017 5:53 PM (GMT -6)
There are a total of 2,884,421 posts in 316,488 threads.
View Active Threads


Who's Online
This forum has 157609 registered members. Please welcome our newest member, melloman.
436 Guest(s), 13 Registered Member(s) are currently online.  Details
KevinJWhite, Lapis_29, netsavy006, TotesMagotes, sdfsdfdsfdf06, dacarte3, getting by, Tudpock18, Dadeen, Manzanita2, FlowersGal, Gunner34, iank1434


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer