when to stop abx

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Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/29/2009 7:31 AM (GMT -6)   
I am assuming people do stop when they are not 100%. I am not there yet and don't even expect to be. Is there a point when you just stop and see how well you can fight it on your own? I am 8 months into treatment and know that I will have to face the reality of stopping at some point. I actually could throw up thinking about it. I really depend on my doctor and the thought of going it alone at some point really scares me. Any of you think about this, or have done it? I know they say the relapse rate is so high. Do we ever just go on without our doc? I think for some reason I am getting scared about that possibility. Maybe it is the new meds making me emotional.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/29/2009 9:10 AM (GMT -6)   
That is the million dollar question many of us have that are on meds. When can we stop.

I have been on abx for 2 1/2 years now including IV for 4 months. There are a few times that I thought I was well enough to see where I was at and weaned off only to find within a few weeks that the symptoms came back. So I go like a dog with her tail between her legs running back to the meds.

My LLMD says that when I am 80% better for a few months then I can try it again. However I think one needs to take herbs and suppliments while off meds to ensure wellness.

However, Lately I have found that many of my symptoms were from not enough thyroid meds--so maybe I will try to go off again after I see my llmd at the end of August. Most days since upping my thyroid meds I feel 80% good. But am I terrified to go it alone??????
You Betcha!
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/29/2009 11:24 AM (GMT -6)   
I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/29/2009 6:06 PM (GMT -6)   
I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.
Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/29/2009 8:44 PM (GMT -6)   
Minerals and Lovelabs,

Why do you both have the exact same post?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 7/29/2009 9:29 PM (GMT -6)   
I don't know what happened. I just posted it once. Weird huh?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/29/2009 9:44 PM (GMT -6)   
Very weird, lol. Maybe Minerals was trying to copy and paste your post to reply?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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