I am sorry for all you are going through. I guess unless you experience Lyme it is really hard to understand how scary the future is. I am really trying to stay positive. For about 10 days a month I am at 80%. the rest of the time not so great. Even on the days I feel better that doesn't mean that I don't have any symptoms. I always have some. Some days I don't even want to leave the house. I think I am just nervous. When I first started meds I felt like I was going to kick this. Now that I am 8 months in and not better I am scared that this is the new me. Forever. I am so afraid to go off, and not be under the care of my doctor. It is my security blanket. Just having a bad few days, crying over the possibility of going it alone at some point. Maybe the new meds kicking in and the Lyme affecting my head right now.
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.
Outstare The Darkness--------The Light Will Come!