New here - Can this be Lyme? help interprete please.

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ariel1821
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 7/29/2009 7:49 AM (GMT -6)   
Hi, I'm new here and found this site through google. Very helpful...
My tests results states this (below) and i'm wondering if i do have lyme. Please help interprete if you have the same results or know what this means. I did this test on my own through Lab Corp (privately), when i had described some symptoms to my doctor and she said I had MS. I don't believe i have MS since no one in my family has it. MRI results are pending. I just want to rule out Lyme before I go on for years with no solution. She's currently on vacation so I can't ask her thought on the results.

IgG P41 - Present Abnormal
IgG P23 - Present Abnormal
IgM P41 - Present Abnormal
IgM P23 - Present Abnormal
Lyme IgM WB Interp Positive Abnormal

IgM 39 is absent, IgG P93, 66,58,45,39,30,28, and 18 were also absent. Lyme IgG WB Interp was also absent.

Anyone here to tell me what this means? is it Lyme or MS. I'm going out of my mind worrying. I need to be prepared. Thanks.

ariel1821
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 7/29/2009 7:55 AM (GMT -6)   
I also seem to have low WBC, Neutrophils and plateletes

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/29/2009 8:30 AM (GMT -6)   
Hi Ariel,

Welcome to the forum!

Have you found a good Lyme Literate Medical Doctor yet? You should post your email so that members can tell you the contact info privately. You can email: stephanie@turnthecorner.org to find a Lyme Literate Doctor in your area. You can also go to: www.turnthecorner.org/bod.htm and ask for further sugestions.  

For more info, please read the topic at the top of the first page of this forum tittled "The Basics, Newbies check this out". It will help you get started learning about lyme.

P.S.- Just a FYI, we don't post doctors full names out of respect for them and all the complications they have been through. Initials are okay to use though.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


ariel1821
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 7/29/2009 8:33 AM (GMT -6)   
Thank you. will do.

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 7/29/2009 8:52 AM (GMT -6)   
Wow- unless I'm reading it wrong, you have a positive Western Blot by even CDC standards.(Western blots are considered positive if either IgG or IgM are positive). As screwed up as it might sound, I'm slightly jealous... lol. Those seem to be very rare.

That does indicate Lyme disease. As Cajungirl has already said, finding a LLMD is very important. With a postive test, you might be able to get your PCP to agree to treat you, but you still need the expertise on an LLMD. I have a list of doctors in the Washington/Montana/Idaho area, from when I was trying to find an LLMD. If you live near there, let me know.

Good for you for being so on top of things! And good luck.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/29/2009 9:01 AM (GMT -6)   
Ariel, Please don't waste your time going to any other than a Lyme literate doctor. If you find one, he/she probably won't be on your insurance plan but it is worth every penny to get well and not let the bacteria get out of hand and the right treatment for the right amount of time. Most doctors are uneducated as far as Lyme diseasae goes--especially infectious disease MDs. Ticker will probably post the symptoms and other info. you need to get started meanwhile read and learn as much as you can because you will have to be your own advocate with this illness. Ticker also has a list of doctors in many states.

This site has members with a wealth of information about Lyme and other infections that go with it. You will learn much here.
Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties.

Outstare The Darkness--------The Light Will Come!


ariel1821
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 7/29/2009 9:20 AM (GMT -6)   
minerals said...
Ariel, Please don't waste your time going to any other than a Lyme literate doctor. If you find one, he/she probably won't be on your insurance plan but it is worth every penny to get well and not let the bacteria get out of hand and the right treatment for the right amount of time. Most doctors are uneducated as far as Lyme diseasae goes--especially infectious disease MDs. Ticker will probably post the symptoms and other info. you need to get started meanwhile read and learn as much as you can because you will have to be your own advocate with this illness. Ticker also has a list of doctors in many states.

This site has members with a wealth of information about Lyme and other infections that go with it. You will learn much here.
Blessings

hi -
 
What is ticker? where do i find it?

ariel1821
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 7/29/2009 9:21 AM (GMT -6)   
Nicky D said...
Wow- unless I'm reading it wrong, you have a positive Western Blot by even CDC standards.(Western blots are considered positive if either IgG or IgM are positive). As screwed up as it might sound, I'm slightly jealous... lol. Those seem to be very rare.

That does indicate Lyme disease. As Cajungirl has already said, finding a LLMD is very important. With a postive test, you might be able to get your PCP to agree to treat you, but you still need the expertise on an LLMD. I have a list of doctors in the Washington/Montana/Idaho area, from when I was trying to find an LLMD. If you live near there, let me know.

Good for you for being so on top of things! And good luck.
Hi Nicky,
 
in a way, i'm glad it's lyme and not MS. At least there is a cure/relief with this. I'll find an LLMD using the referall above by the moderator. Thanks so much.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/29/2009 9:30 AM (GMT -6)   
Ariel,

Ticker is one of our veteran members here. She is very knowledgeable and will help you as best she can.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 7/29/2009 9:50 AM (GMT -6)   
Ariel,
When you get your MRI back if it does show lesions you should know that you CAN get lesions in your brain from Lyme also.  Your Neuro will most likely tell you that your pos WB is a false pos (like mine did).  Did you post your symptoms?  You should add a signature that will list at the bottom of your posts.  I also suggest reading all you can, because the doctors really don't know much about LD.  Good Luck, and let us know what your MRI says.
Take Care, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


ariel1821
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 7/29/2009 10:29 AM (GMT -6)   
Hi - Thank you all so much for your help and information, I'm truly grateful for the support. I'm awaiting replies from the two people i emailed for doctors in my area. If you know any in North NJ, please send it my way - ariel1821@hotmail.com.

My symptoms for the past 2 to 3 years were tingling in feet and hands, sometimes pain in knees. My doc thought i was getting diabetic, but i ignored her and never went back (school and stuff). Last year, it turned into ticking hands and muscles, but that disappeared after a while. This year it went to numbness in my left leg, it felt heavy.

This past month - mid June / July, i felt worse. Heaviness and weekness in both legs, pain in knees, ticking muscles in legs, thighs, and arm. I couldn't hold a pen much due to hand shaking sometimes, short term memory and confusion problems, had burning sensations on the skin of my left leg, both arms and back, walking and balance problems, stiff neck and stuffy head, had high temperature for about 3 days which felt better with cold showers (like i was menopausal - which i'm not, still too young for that), fever & headaches, sometimes unexplainable sweats. These signs prompted me to go see my doctor and take it seriously.

Last week to this week, all symptoms disappeared except for a little numbness in both feet. I've learnt to live with that. But i feel so much better.

Very wierd things happening but I'm glad I know. I think I'm getting worse and would like to attack it now before i start missing work. Not good.

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 7/29/2009 10:41 AM (GMT -6)   
Ariel, Did you read the Newbie Section? Check it out, it is a great place to start.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/29/2009 10:42 AM (GMT -6)   
People are jelouse that you have a positive test because it is so hard sometimes for people to believe you that you have Lyme, so they wish they had a positive test to confirm what they know they have.
the Lyme bacteria borrelia burgdorferi causes immune system supression, also the bacteria can hide inside cells to avoid detection and other ways of avoiding detection or production of immune reaction and successful antibodies.
considering that tests are looking for your antibodies to give a result of positive and not the actual bacteria itself, you can see how current testing is unreliable.
Even a test which looks for the actual bacteria and that is blood based is not reliable if the bacteria is in your tissues and not in that particular sample.
So someone can be very sick with Lyme and give a negative test result.
But the IDSA does not seem to believe those truths. Just because they just dont feel like believing it . Well after tomorrow we wont have to care what they feel like believeing. What we feel like is crap, and it isnt stress.
If you have come this far you are prob on the right track. there are so many people out there with this who do not know.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.

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